Re: new comer to the group - JEAN and TANYA

[Guest guest]

I just had to go off of 12.5 micrograms of Levothyroxine because it made my heart race, bp high, weight loss, extrememly irritable, etc. I am to stay off it for two weeks and then the are going to check TSH, T3 and T4.My concern is that because I cannot even tolerate the tiniest baby dose (12.5), what else is there for me to do? I have Hashimoto's thyroid so I know that I need to be on something. By the way, I was on 12.5 mcgs for 5 weeks and by week 3 my TSH went from 6.1 to 2.5; not sure what it was at the end of 5 weeks because I had to go off it so suddenly. My T4 remained the same as it has always been at 1.1 with antibodies still >1000.Any similar experiences or hope or advice would be welcomed. wrote: I flip between hyper and hypo and it doesn't take much to get my HR up and get dizzy and funny feeling....I take inderal 20 mg if I get over 110 bpm. -- Re: new comer to the group Sorry to hear that. Sounds like you've been swinging btwn hypo/hyper,which must be a tough place to be. Maybe others here have experiencesthat can help you. Keep us posted.>> Sue,> > I developed heart palpitations with an extremely fast resting heart > rate; approximately 115bpm. They did a full cardio work up and other > than a very minor mitral valve prolapse My heart was fine. The > caridologist said the

prolapse was negligible an would likely resolve > itself when my thyroid calmed down. The danger was that the > palpitations did not go away and sometimes something as basic as > housework could cause me to be so dizzy I couldn't function.> > My doctor checked a total thyroid panel for 6 months before pulling > me off of synthroid ompletely. Over that time he continued to lower > the does from 125mcg to 25mcg 3 days a week before taking me off > completely. The culprit was a low/untraceable TSH and T3 that was off > the wall. My current GP has just been checking TSH but when I talked > to her about my symptoms she decided to send me to an endo.> > jean

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[Guest guest]

It sounds like you all possibly have adrenal issues, which is very common with hypo/Hashi's. If you adrenals are fatigued, your cells are unable to use the T3 and it will build up in your blood...thus causing the 'hyper' type symptoms and problems with thyroid meds. Then, when you have labs done, it will show your levels are normal or even high, yet you'll feel awful. Also, with adrenal fatigue you will have issues like dizziness, lightheadedness, racing pulse, heart palps, etc. All thyroid med inserts state that adrenals should be tested *before* starting the med, but most docs dont know enough to even do this! I had these same issues until I learned about adrenal fatigue. If you want to learn more, here is a wonderful group where I learned about hypo & adrenal issues, as well as how to treat them: http://health.groups.yahoo.com/group/NaturalThyroidHormones/

Joy

Re: new comer to the group

Sorry to hear that. Sounds like you've been swinging btwn hypo/hyper,which must be a tough place to be. Maybe others here have experiencesthat can help you. Keep us posted.>> Sue,> > I developed heart palpitations with an extremely fast resting heart > rate; approximately 115bpm. They did a full cardio work up and other > than a very minor mitral valve prolapse My heart was fine. The > caridologist said the prolapse was negligible an would likely resolve > itself when my thyroid calmed down. The danger was that the > palpitations did not go away and sometimes something as basic as > housework could cause me to be so dizzy I couldn't function.> > My doctor checked a total thyroid panel for 6 months before pulling > me off of synthroid ompletely. Over that time he continued to lower > the does from 125mcg to 25mcg 3 days a week before taking me off > completely. The culprit was a low/untraceable TSH and T3 that was off > the wall. My current GP has just been checking TSH but when I talked > to her about my symptoms she decided to send me to an endo.> > jean

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[Guest guest]

I think that I need to clarify that after being put on a low dose of

levoxylwhen my labs were normal 5.0 on a range of 1.2-5.5 my next

tsh eas 6.12 with same range. I became MORE hypothyroid after taking

the levoxyl. I agree with the adrenal issue.

This is not at all a new issue for me. I have been symptomatic for

hashimoto's since age 10. I have been bouncing around between hypo

and hyper for about 12 years. I have yet to spend a year without

changing doses up or down.

They checked my adrenals 6 years ago thinking my symptoms may be

cushinoid. My blood tests for ACTH and DHEA were twice the normal

range. However, a 24 urine test for cortisol was normal so they did

not treat.

jean

> >

> > Sue,

> >

> > I developed heart palpitations with an extremely fast

resting heart

> > rate; approximately 115bpm. They did a full cardio

work up and other

> > than a very minor mitral valve prolapse My heart was

fine. The

> > caridologist said the prolapse was negligible an would

likely resolve

> > itself when my thyroid calmed down. The danger was

that the

> > palpitations did not go away and sometimes something

as basic as

> > housework could cause me to be so dizzy I couldn't

function.

> >

> > My doctor checked a total thyroid panel for 6 months

before pulling

> > me off of synthroid ompletely. Over that time he

continued to lower

> > the does from 125mcg to 25mcg 3 days a week before

taking me off

> > completely. The culprit was a low/untraceable TSH and

T3 that was off

> > the wall. My current GP has just been checking TSH but

when I talked

> > to her about my symptoms she decided to send me to an

endo.

> >

> > jean

>

>

>

>

>

>

>

>

>

>

>

>

>

> -------------------------------------------------------------------

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> Want to be your own boss? Learn how on Yahoo! Small Business.

>

[Guest guest]

It's a common problem....many doctors don't know that just because a TSH is "in range" does not mean the person is not hypo. In fact, your Free T3 and Free T4 numbers are WAY more important than TSH. TSH is a *pituitary* hormone, whereas your 'frees' will actually show how much hormone is available for your body to use. Your "normal" 5.0 lab is actually too high...especially with Hashi's. You need to be closer down to the <1 range. Also, know it's not uncommon to go 'more hypo' when you are put on low dose therapy. You actually need *more* hormone, especially as your thyroid continues to be disabled by the antibodies.

As far as cortisol tests, the 24 hour urine is not the optimal way to test it. A 4x day saliva will actually give you a better result. The 24 hour urine is an average over a whole day. Many people (like myself) were really low in Cortisol in the morning (when it should be highest) and then higher in the evening when it should be lower. But with a 24 hour urine, it averages out to normal. I suffered for years until I got a good doc and learned about saliva testing...only then did the issues show up. By then, I had low Cortisol, low DHEA, and low sex hormones.

I highly suggest you go to the group I gave to you and read through the files and posts. You'll learn so much, and find ways to help yourself be well again. I suffered with Hashi's for over 13 years without treatment and then another 3 years undertreated on both Synthroid & Levoxyl. I didn't actually start feeling well again until joining that group and learning how to help myself get better.

Best of luck,

Joy

Re: new comer to the group - JEAN and TANYA

I think that I need to clarify that after being put on a low dose of levoxylwhen my labs were normal 5.0 on a range of 1.2-5.5 my next tsh eas 6.12 with same range. I became MORE hypothyroid after taking the levoxyl. I agree with the adrenal issue.This is not at all a new issue for me. I have been symptomatic for hashimoto's since age 10. I have been bouncing around between hypo and hyper for about 12 years. I have yet to spend a year without changing doses up or down.They checked my adrenals 6 years ago thinking my symptoms may be cushinoid. My blood tests for ACTH and DHEA were twice the normal range. However, a 24 urine test for cortisol was normal so they did not treat.jean

..

[Guest guest]

Hi, Joy -- just curious to know what adrenal regimen you follow? I

just recently began treating my adrenals. My doctor is starting me on

25 mg 7-keto DHEA. I don't feel anything yet, but understand it is

supposed to be a long road. I tried taking only Armour and various

combinations of Armour and regular thyroid, and I seem to feel the

best on mostly T4 with just a little Armour. I belong to that group

you mentioned, plus an adrenal group, but it seems the adrenal

treatments/ issues get so complicated I have trouble following.

Thanks,