Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi All, Well I am finished going to the Dr to figure out what is wrong....I am just flat out fustrated. Oh well....This time they gave a muscle relaxer and told me to take the bextra once a day and not to take the sski, but gave me a medicine that can affect my vision .....Plaquanel (SP)? I am done with the meds and the dr.s > >Reply-To: erythema_nodosum_Group >To: erythema_nodosum_Group >Subject: RA pain >Date: Mon, 29 Mar 2004 19:43:11 -0000 > >, >Honestly, I try to ignore it unless it gets bad. I can take up to 6 >asprins at a time, but I prefer not to...My knees and hips are always >sore. >The traveling pain is so weird, you don't expect it to jump from >joint to joint like it does. The rheumatolgist said that there isn't >a 'fix' for it, you have to ride it out. If you can do it without >drugs, great. If not, then don't hesitate to get some. >I hope your appointment nets you some relief. >Sandy > > > > > > Dear Vicki, > > > > I'm so sorry you have been so sick and needed to be > > >hospitalized. > > > > You did indeed have viral meningitis symptoms--nothing to fool > > >around > > > > with. I don't know if you ever read about my 18 days of high >fever. > > >I > > > > tested negative for everything. Finally the fever broke and I >was so > > > > worn out and weak I could hardly walk. For the next three >months I > > >had > > > > drenching night sweats. The doctor though I might have RA, but >the > > > > pain in my wrist left after a couple days and I never had joint > > > > symptoms again. My doctor thought I also had " some kid of >virus " . I > > > > hope you recover very soon, Vicki!!! > > > > Love, > > > > > > > > > > > _________________________________________________________________ > > Get tax tips, tools and access to IRS forms – all in one place at >MSN Money! > > http://moneycentral.msn.com/tax/home.asp > _________________________________________________________________ Free up your inbox with MSN Hotmail Extra Storage. Multiple plans available. http://join.msn.com/?pgmarket=en-us & page=hotmail/es2 & ST=1/go/onm00200362ave/dire\ ct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 >but gave me a medicine that can > affect my vision .....Plaquanel (SP)? I am done with the meds and the dr.s - Do not be afraid of the Plaquenil - I have been on it for some time as it is one of the core meds for lupus (the " source " of my EN) and have had no problems. Yes, it MAY cause problems but these are easily avoided by having your eyes checked with what is called " visual field acuity " test every 6 months to a year. Quinine (which is the base of this drug) MAY cause a loss of peripheral vision - it is one of the warnings on the list of cautions but it is very rare. Neither my rheumatologist (in practice about 25 years) who has prescribed it for thousands of patients nor my ophthalmologist (also in practice for about the same length of time) with over 200 patients on whom he does the visual field test has ever had the problem show up in a patient. If it does, then you simply stop taking the drug - it is not a dramatic sudden loss of vision but a gradually lose of the " outer edges " . I am in two " virtual " lupus support groups and one group that meets face to face - in the three years since I have been involved with them, ONE person on Plaquenil has experienced eye problems and has been switched to an immune suppressant drug instead. One word of warning - it does take several months for the Plaquenil to kick in to it's maximum " punch " - it took about 4 months before my fatigue level (my main lupus symptom) and rashes showed appreciable improvement. The only other medication I am on is a prescription NSAID (Sulindac) - both help with the RA symptoms that come with lupus but the NSAID only helps the RA stiffness and aids in controlling the inflammation whereas the Plaquenil assists there it primarily controls the immune system which has gone wild. Sue --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.596 / Virus Database: 379 - Release Date: 2/26/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Dear , I can appreciate your frustration! I wasn't familiar with either Bextra or Paquinil so I did a search and added these Prescription Drugs to our Links. The side effects sound quite frightening. As once told me " All drugs have side effects " . Sometimes the side effects are worse than the disorder you are using them for. In the meantime, here is a link about RA that may give you some non- drug ideas: http://www.arthritis.org/conditions/self_care.asp I know you are already doing lots of the things mentioned like weight loss and healthful diet, but maybe this link will give you other ideas. You have such a wonderful attitude , and I am so sorry you are having such a hard time. My friend, Sabina who has arthritis, says that swimming helps her and that the warmer weather is good too. Today I read that ginger root is good to reduce inflammation. Sabina is giving it a try. Take care of yourself. I will be praying that you feel better soon. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Plaquenil alone will not work. You need something to go with this med. You should also know that when taking Plaquenil, you must blanch or Par Boil all vegetables grown in the ground. Plaquenil lowers your resistance farther so you are more susceptible to bacteria. So the ground harbors this and if not properly cleaned we are in trouble. I was on Plaqenil. These are my Sarcoidosis meds since I am not taking or doing anything for the EN. Methotrexate, Imuran and for pain Vicodin not only from Sarc and EN, but also broken back in two places. Sharon RA pain>Date: Mon, 29 Mar 2004 19:43:11 -0000>>,>Honestly, I try to ignore it unless it gets bad. I can take up to 6>asprins at a time, but I prefer not to...My knees and hips are always>sore.>The traveling pain is so weird, you don't expect it to jump from>joint to joint like it does. The rheumatolgist said that there isn't>a 'fix' for it, you have to ride it out. If you can do it without>drugs, great. If not, then don't hesitate to get some.>I hope your appointment nets you some relief.>Sandy>>> > > > Dear Vicki,> > > > I'm so sorry you have been so sick and needed to be> > >hospitalized.> > > > You did indeed have viral meningitis symptoms--nothing to fool> > >around> > > > with. I don't know if you ever read about my 18 days of high>fever.> > >I> > > > tested negative for everything. Finally the fever broke and I>was so> > > > worn out and weak I could hardly walk. For the next three>months I> > >had> > > > drenching night sweats. The doctor though I might have RA, but>the> > > > pain in my wrist left after a couple days and I never had joint> > > > symptoms again. My doctor thought I also had "some kid of>virus". I> > > > hope you recover very soon, Vicki!!!> > > > Love,> > > > > > >> >> > _________________________________________________________________> > Get tax tips, tools and access to IRS forms - all in one place at>MSN Money!> > http://moneycentral.msn.com/tax/home.asp>_________________________________________________________________Free up your inbox with MSN Hotmail Extra Storage. Multiple plans available. http://join.msn.com/?pgmarket=en-us & page=hotmail/es2 & ST=1/go/onm00200362ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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