Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 To: All M.E. Online Groups, ME Free For All. org volunteers and M.E. Chums. (If anyone does not wish to receive e-mails of this kind, for whatever reason, please let me know and I'll ensure you are removed to prevent any further inconvenience) PERMISSION TO FORWARD, REPOST & USE IN NEWSLETTERS. Please urge your listowner to post everything even - perhaps especially - things they personally do not agree with for fair balance. If any of my postings is being censored, or selectively edited out, by a listowner, you may wish to join my M.E. Chums list to get the whole unbiased picture. ------------------------------ My response to an article about a teenager with M.E., Adam's battle to beat ME, The Weekly News, 7 June 2008. Not online, so copy scanned across here * http://tinyurl.com/57vnzg *May I urge as many as can manage to respond to at least one of the several myths & stereotypes in this article, eg: " M.E., a condition more commonly associated with high-flying adults than 13-year-old schoolboys " and " We were told ME is caused mostly by psychological problems ... " This paper is based in Britain but M.E. doesn't mind which countries it invades so I hope people from outside the UK will respond too. Please note, the advice to write short letters to get a better chance of publication especially applies here. Most printed are just 2 or 3 sentences. Even if they do not choose it, your letter may help others to get in and, even if they don't want it, we would like to put it on our website with the others here http://www.mefreeforall.org/2008-Apr-Jun.448.0.html#c3622 The e-mail address is weeklynews@... or you can write to: Letters Page, The Weekly News, 185 Fleet Street, London EC4A 2HS The published date may appear to be ahead of time because it is a weekly publication. On our website it appears -2 days (Should not trouble fans of The Twilight Zone, X-Files, or Trekkies). Cheers drjohngreensmith@... *The Weekly News Letters*. Progress towards a cure for M.E. (*Myalgic Encephalomyelitis*) is being impeded because some doctors prefer to ascribe this disabling neurological illness to a psychological cause (*Adam's battle to beat ME, The Weekly News, 7 June 2008*) for which there is no reliable evidence, rather than admit they do not, as yet, understand its physiological cause, for which there is, already, an abundance. Yet, millions of pounds have gone to provide two management techniques, one of which, Cognitive Behaviour Therapy (CBT), has no lasting benefit for people with M.E. and the other, Graded Exercise Treatment (GET), makes more people worse. Incredibly, even without statistics to justify establishing it, let alone continuing and ignoring latest research evidence, as well as pleas and cautions from M.E. sufferers and researchers, even more millions are being poured in, while promising biomedical research is starved of research funds. This is why so many M.E. sufferers have remained ill, having to cope as best they can, for decades, praying for a breakthrough. Yours sincerely drjohngreensmith@... Dr H Greensmith ME Free For All. org Quote Link to comment Share on other sites More sharing options...
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