To: Jerry C. Re: Digest Number 4718

[Guest guest]

CFIDS, CFS, ME, FM & related illnesses Jerry Camz....sounds as if you are over

medicating and your body must be quite stressed....what are you

taking for the yeast infection? Maybe if you cut out 3/4 of the meds, the

yeast might begin clearing?

What is causing the yeast infection? what do they tell you? Flo Such,

ixoye111@...

----- Original Message -----

In a message dated 11/26/2011 9:40:47 A.M. Eastern Standard Time,

jerrycamz@... writes:

Hi,

I tried the methylation protocol from Rich van K., and did not respond. I

also failed to respond to glutathione precursors. (Taking glutathione

itself orally is a waste, as it is digested into its individual peptides) I

also

added methionine to the protocol; synthesizing methionine requires the

methylation pathway.

I have also tried d-ribose and NADH, both with no effect. I was even

tested with IVIG (immunoglobulins) for a highly activated complement

pathway; it

lowered the active complement but did nothing to the symptoms. At $18K a

throw, Medicare deemed it not worthwhile. (I was lucky to even be able to

try it.)

The things that have helped have been carnitine (or acetyl-carnitine),

thiamine (injected), hydroxycobalamine (by injection), CoQ10, and CFS

Support

Formula or FM Support Formula from Labs (ProHealth's FM formula

also works). Neurontin and amitriptyline help with the pain, over and above

Oxycontin. I needed Fosamax, calcium and magnesium to bring me out of

osteoporosis (T=-2.7); I need magnesium in 2/3 the amount of calcium (i.e.

600 mg

Ca/400mg Mg 2X/day). [NOTE: neurontin interferes with calcium and magnesium

absorption, so they have to be taken at different times.]

Then i have to take a bunch of antihistamines and nasal steroids, as my

allergy season starts 1/1 and runs to 12/31.

I may have a somewhat different version of CFS than a lot of you. I did

have an NMR test for mitochondrial function (research subject) which found 0

aerobic capacity, and do have severe day-after crashes. That means

mitochondrial involvement for sure. Of course, since there is no systematic

work on

complete pathways, and research studies only show one facet, I can't say

for sure that mitochondrial dysfunction is the root cause. But as with

everything, you need to try it for yourself to find out what works for you.

At

least the methylation and glutathione precursor protocols are fairly cheap

(unlike ribose, for instance) and easy to do. I also have a poor immune

response (require 2 Pneumovax shots to get protection which lasts less than

4

years), which has allowed a chronic yeast infection, that occasionally flare

s up very painfully and has cost me one testicle so far.

Gerald R. , Ph.D.