Re: To: Lambert, CFS/ME & NON-HIV AIDS

[Guest guest]

Absolutely, I agree. No more labels and also no more putdowns.

A.

Re: To: Lambert, CFS/ME & NON-HIV AIDS

bravo kudos thank you for your words we all needed a moment to think,opinions

are just that, opinions and everyone has them the moral of the story is people

the hell with what the labels we give ourselves are. We are sick and hurt and

confused most of the time via the double speak we constantly receive from the

world of medical knowledge, and come here exactly for that reason were looking

for some understanding and compassion and the reality of it all is even the

medical community can not agree on what constitutes disease and sickness so

instead of us responding like the know it all PROFESSIONALS that we constantly

encounter and often times feel belittled by in our quest for validation

WITHIN THE MEDICAL ESTABLISHMENT FOR ANSWERS lets remember compassion and

understanding that each of us has a unique journey in the living with illness

what ever the label we choose to put on our sleeve, but we all share a common

denominater

We hurt darn it and somedays its scary to think man this could be the rest of

[Guest guest]

I think many of us are sick and tired, which can make our tolerance low and our

sensitivity high.

I think we are all mature enough to respect differences of opinion without

disclaimers or upset.

Through other people's posts, I see what others have been trying to tell me for

years!

I see my defensive nature, my negativity, my jumping to conclusions. So much of

the " upset " of being robbed of life by an " invisible " illness/disease that

hardened me into a socially isolated, miserable person unaware of my own poison.

I work hard now to try to focus on the positives, rather than give this horrible

illness the power to steal the sporadic, fleeting moments I'm well enough to be

out of bed.

I'm learning ways to adjust. I'm still trying to get well. I'm just trying to

enjoy what I have.

Staying alone makes me miserable, a misery I became unaware of.

When the worlds seems to be full of aholes, I've learned to look in the mirror.

Because I let this illness make me into a curmudgeon. And I'm trying to move

toward a positive mental attitude. Easier said than done. Takes a ton of

deliberate focus and action and a ton of telling my old- bitty hag to " Stop! "

Lori

[Guest guest]

Chloe, I agree with you on this. I can see Ms. Lambert's bombardment of

supporting information growing into a problem. I hope she is here to be an

actual cohesive part of the group, not just to overwhelm us with her

interpretations.

PJ

>

> I understand your points but if people don't agree with your theory then it's

time to agree to disagree.

> This group is about respecting and supporting each other. Not trying to force

your beliefs on anyone else. If you can't abide by the rules of this group maybe

it's not the right place for you.

> Chloe

>

[Guest guest]

bravo kudos thank you for your words we all needed a moment to think,opinions

are just that, opinions and everyone has them the moral of the story is people

the hell with what the labels we give ourselves are. We are sick and hurt and

confused most of the time via the double speak we constantly receive from the

world of medical knowledge, and come here exactly for that reason were looking

for some understanding and compassion and the reality of it all is even the

medical community can not agree on what constitutes disease and sickness so

instead of us responding like the know it all PROFESSIONALS that we constantly

encounter and often times feel belittled by in our quest for validation

WITHIN THE MEDICAL ESTABLISHMENT FOR ANSWERS lets remember compassion and

understanding that each of us has a unique journey in the living with illness

what ever the label we choose to put on our sleeve, but we all share a common

denominater

We hurt darn it and somedays its scary to think man this could be the rest of

my life.

>

> I think many of us are sick and tired, which can make our tolerance low and

our sensitivity high.

>

> I think we are all mature enough to respect differences of opinion without

disclaimers or upset.

>

> Through other people's posts, I see what others have been trying to tell me

for years!

>

> I see my defensive nature, my negativity, my jumping to conclusions. So much

of the " upset " of being robbed of life by an " invisible " illness/disease that

hardened me into a socially isolated, miserable person unaware of my own poison.

>

> I work hard now to try to focus on the positives, rather than give this

horrible illness the power to steal the sporadic, fleeting moments I'm well

enough to be out of bed.

>

> I'm learning ways to adjust. I'm still trying to get well. I'm just trying to

enjoy what I have.

>

> Staying alone makes me miserable, a misery I became unaware of.

>

> When the worlds seems to be full of aholes, I've learned to look in the

mirror. Because I let this illness make me into a curmudgeon. And I'm trying to

move toward a positive mental attitude. Easier said than done. Takes a ton of

deliberate focus and action and a ton of telling my old- bitty hag to " Stop! "

>

> Lori

>