UPDATE: Keeping a diary for M.E. and My M.E. Diary 2012 Trial (6 December 2012)

[Guest guest]

PERMISSION TO FORWARD AND RE-POST ON OTHER FORUMS, SOCIAL NETWORKING

SITES AND USE IN NEWSLETTERS. PLEASE TWEET AND RE-TWEET ON TWITTER.

Thanks to Action for M.E.'s Daily Press Summary for an update of

coverage of our, " Keeping a diary for M.E. " longitudinal project and

introductory, " My M.E. diary 2012 trial " , which do not appear online but

only newspaper versions.

Our introductory letter appears in these newspapers:

Dr Greensmith of ME Community Trust invites people with M.E. to

start their new year diaries on a dedicated Facebook page called 'My

M.E. Diary 2012 Trial.' The aim: to record and share symptoms and

experiences for future reference and to make the collective voice of

M.E. more audible.

Western Daily Press, p 18

Western Mail (Cardiff), p 16-17

Manchester Evening News, p 25

News Letter (Northern Ireland), p 14

For those living outside the UK (or who were not paying attention in

geography lessons), these are newspapers serving major cities, quite

evenly distributed, as people with M.E. are socially and geographically.

It's a satisfying start.

Our press briefing is being circulated - and we have even been asked by

more than one Editor (Scotland is the most enthusiastic, so far) to send

one because they have M.E. groups in their areas and want to know more.

Thanks to all those who have already e-mailed for guidance to take part.

Please bear with us. It is already bigger and taking longer than we thought.

May I, therefore, appeal for more volunteers in all departments:

- Any help from people in the UK to help with administration to

promote here.

- " Ambassadors " in every part of the world to forward both letter and

press release to your national & local media OR get the details to us to

do. We have some promises in USA, Canada, Australia and parts of Europe

but we do need a lot more in the same and further afield.

- As many diarists as we can get. Remember one less may not only be

dilution but pollution.

Please bear with us. I think there will be delays but I'm sure it will

be worth it.

We are too stretched to answer individual questions and suggestions

(that is really what the " My M.E. Diary 2012 trial " is for) but we do

welcome all constructive criticism at paqs@...

Best wishes

drjohngreensmith@...

M.E. Community Trust.org