Guest guest Posted January 31, 1999 Report Share Posted January 31, 1999 Mark, I live in Seattle but go to California to see Dr. Franco about 3 times per year. I've been having a HECK of a time talking to him or a nurse lately. He apparently has a new receptionist/self-appointed gatekeeper that won't put me through, take a message, etc. Says to get any help I must COME IN because she doesn't want to become the " go-between " . Well, I AM going in this coming Thursday, the 4th, and hopefully I won't make a complete fool of myself while voicing my displeasure. I'm currently on 200mg minocin three days per week and zithromax two days per week. I hoping to begin IVs or IMs soon. Other than that, I'm taking Motrin (tons), ginger/curcumin and Omega EFA for inflammation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 1999 Report Share Posted January 31, 1999 In a message dated 1/31/99 7:05:59 PM Pacific Standard Time, Finnish1@... writes: << Says to get any help I must COME IN because she doesn't want to become the " go-between " . Well, I AM going in this coming Thursday, the 4th, and hopefully I won't make a complete fool of myself while voicing my displeasure. >> Ah that receptionist must be related to the ER nurse from Hades I ran into at the hospital the other night. Where do they find their help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 1999 Report Share Posted January 31, 1999 In a message dated 1/31/99 4:26:44 PM Pacific Standard Time, Finnish1@... writes: << I'm constantly in excruciating pain from the top of my head to the tips of my toes. Can't move. Can't function. Taking far too much Motrin. >> Hey Lose the Motrin it is ibuprofen and is bad for you, and tell you dr. to give you some decent pain killers I take codeine #4's for my pain when need to and if it gets too bad I take a trip to the good hospital <As opposed to the private hospital with the nurse from Hades> and get a shot of Demerol. Good luck in talking to your dr. about pain medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 What dosage minocin are you taking? What's your Doc telling you? Mark RA 4/98 AP 7/98 rheumatic Colburn, MSM, etc. >From: Finnish1@... > >Hello, Everyone. Glad you're all back. :-) > >This is probably old news, and I may have missed correspondence about this >subject, but did anyone see Colburn on Regis & Kathie Lee recently? I >missed it. And I know I've seen numerous posts regarding MSM in the past. >What is it? And what does it do? Also, I heard third-hand that Colburn used >some sort of " electro-magnetic " therapy for his RA. Anyone know about this? > >I'm desperate. I'm in hell. I've had RA for only 2 years this month, been on >minocin for 19 months, and the only thing keeping me here (on earth) is the >fact that I have 2 little boys depending on me. I'm constantly in >excruciating pain from the top of my head to the tips of my toes. Can't move. >Can't function. Taking far too much Motrin. Don't know what to do or how to >hang on. > >Help! > > > >------------------------------------------------------------------------ >To unsubscribe from this mailing list, or to change your subscription >to digest, go to the ONElist web site, at and >select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 , you have my heart because I felt just like you. If I could only help. All I can say is get the IV's or IM Clindamycin that is what really started me feeling better. You need to be on something stronger than Motrin or the inflamation will never let the antibiotics work. See if your doc won't give you stronger anti inflam. I also take Cortef which is supposto be better than prednisone. See if the doc will order Ultram its a pain pill not an inflam and you can use it with an inflam. I hope you feel better soon <BIG hug> cooky RA 20 mos --- AP 16 mos Finnish1@... wrote: > > From: Finnish1@... > > Hello, Everyone. Glad you're all back. :-) > > This is probably old news, and I may have missed correspondence about this > subject, but did anyone see Colburn on Regis & Kathie Lee recently? I > missed it. And I know I've seen numerous posts regarding MSM in the past. > What is it? And what does it do? Also, I heard third-hand that Colburn used > some sort of " electro-magnetic " therapy for his RA. Anyone know about this? > > I'm desperate. I'm in hell. I've had RA for only 2 years this month, been on > minocin for 19 months, and the only thing keeping me here (on earth) is the > fact that I have 2 little boys depending on me. I'm constantly in > excruciating pain from the top of my head to the tips of my toes. Can't move. > Can't function. Taking far too much Motrin. Don't know what to do or how to > hang on. > > Help! > > > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 Finnish1@... wrote: > > From: Finnish1@... > > I'm desperate. I'm in hell. I've had RA for only 2 years this month, been on > minocin for 19 months, and the only thing keeping me here (on earth) is the > fact that I have 2 little boys depending on me. I'm constantly in > excruciating pain from the top of my head to the tips of my toes. Can't move. > Can't function. Taking far too much Motrin. Don't know what to do or how to > hang o , it's time for some detective work. 1. Are you on the diet? Drinking 8 - 8 oz. glasses of water a day min.? Good elimination? 2. What changes have you see in your labs? 3. Maybe a switch to doxycycline is in order, or doxy in the morning and Minocin in the evening. What about IV clindamycin so necessary in most cases of resistant or long standing RA? How about adding Zithromax? Discuss this with your doctor. 4. You've been on antibiotics for 19 months plus NSAIDS. It's time you checked for systemic candida and leaky gut. These problems will impede your progress and in many cases cause a regression. 5. Have you checked for other infections - allergies, sinuses, root canals, etc.? Optimum benefit from this therapy is achieved when all these problems are properly addressed. 6. Did you have an elevated ASO, and if so was it treated? The ASO titer can spike again and should be checked periodically for a while until the doctor is convinced the problem is eradicated. 7. Are you deficient in antibody? Intravenous immunoglobulin might be necessary. Last but by no means least - check your pH value. These organisms need an acidic environment in order to survive. PH strips can be purchased in some drug stores. You might try 1-800-969-6601 to obtain these strips. 6.5 to 7 indicates a good alkaline environment. If you need help in this area, let me know. > Ray Barrett has recently posted on oxygen therapy and that is worth investigating. Contact him for further details. Ethel ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 1999 Report Share Posted February 2, 1999 boy do I feel lucky...Dr. Sinnott has a special time each day alloted to his AP patients...you speak to Dr. Sinnott personally and he has never billed me for the several calls I have made to him in the last 26 months. what a guy..huh? Cindi/Iowa RA 42 yrs AP 26 months P.S. I became a grandma for the first time this evening....Autumn Joy weighed in at 7lbs 6oz....mom and baby doing fine...dad's grinning from ear to ear....baby's perfect....lol << I know just how you feel. My regular doc is in a clinic and it is the same way. Also like you my clinic is long distance and I always rack up a bill trying to get thru to someone. I believe the girls are trained to never deliver messages or let you talk with the doctor. Once I did complain to my doctor and he said to just tell them he told me to call him. Still if I really want to talk with him I have to make an appointment and go in and Medicare gets stuck with the bill. >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.