Letter, Re: Quality of care for M.E. sufferers (13 October 2011)

October 13, 2011

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Letters.

There is never a mention about quality of care for people suffering for

decades with M.E. (Myalgic Encephalomyelitis) in their own homes. Yet

they are victims of the same types of neglect reported, after

unannounced inspections of NHS hospitals, by the Care Quality Commission

(/CQC calls for action to improve care for older people, Press Release,

13 October 2011/ -

t_view_1 & cit_id=37659),

including basic nutrition, personal needs and, overwhelmingly, social

isolation, often failing to meet legal standards, never mind any

consideration of decency.

This is because (a) no one from the Commission, or anyone else,

including doctors, family, neighbours - not a soul in many cases - ever

visits them, or even phones and ( many people with M.E. don't have a

carer anyway - no one - not even a single struggling member of the

family, or child who ought to be at school and they certainly couldn't

afford to pay for one, even if they could find a trustworthy one.

It may be that some readers were genuinely not aware of this shameful

state of affairs, which may leave them unwashed and not properly fed for

months as a time, because M.E. sufferers are unable to call out for help

for themselves. But now that this organisation has done so, on their

behalf, there is no excuse for it to continue, is there? Sadly, I think

it will, even if anyone is ever prosecuted for not caring. It would be

far better if individuals cared, without having to be told that it was

the least they ought to do.

Yours sincerely

drjohngreensmith@...

Dr H Greensmith

ME Community Trust.org

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