LETTER PUBLISHED: Research overlooks that sufferers may have several illnesses not one or two (Bristol Evening Post 27 September 2011)

[Guest guest]

PERMISSION TO FORWARD AND RE-POST ON OTHER FORUMS, SOCIAL NETWORKING

SITES AND USE IN NEWSLETTERS

http://www.thisisbristol.co.uk/Research-overlooks-sufferers-illnesses/story-1341\

0821-detail/story.html

Short link: http://tinyurl.com/5szwxmu

May I suggest that as many as are able send an e-mail in reply,

expressing a variety of opinions. You may also leave a comment below the

letter online -- Trolls stay in your caves, please.

I have started the comments section with this one,

Thank you very much for publishing this letter about the crucial issue

of separating M.E. (Myalgic Encephalomyelitis) from " fatigue " and its

bookends " Chronic " and " syndrome " , which so many of us believe is

impeding progress towards recovery of people who have been ill for

decades, not only M.E. sufferers but those with other illnesses who have

been bundled as CFS. Treatment recommendations such as Cognitive

Behaviour Therapy (CBT) and Graded Exercise Therapy (GET) have been

proved ineffective or even harmful and it has been an open door for

unregulated charlatans' unproven and costly interventions.

I have forwarded the web link to fellow sufferers and researchers

worldwide, including Dr Crawley, encouraging as many as can manage to

contribute a variety of opinions. I have suggested that Trolls stay in

their caves and we only have intelligent contributions on the basis of

which well-designed research can proceed. Thanks again, Evening Post,

for allowing a platform for the standard of debate rarely seen in

newspapers for general readership but reserved for scientific journals

to which fewer have access.

[Please don't take the bait of any Trolls, or be one yourself. Take some

time to compose your comment, don't send in high emotion and let us make

a difference.]

Best wishes

drjohngreensmith@...

M.E. Community Trust.org