Msg to SheMuse, ,nne and Group

[Guest guest]

Dear All,

Subjectively I feel the swollen ankles are edema from fluid and

lymph. When I get a flare in the usual leg the ankle will only swell

if the lower lump comes out. If the higher one does, the ankle is

unaffected. Perhaps the " stickly stuff " is lymph? Does the body

produce lymph to counter inflammation? Since I only get the one leg

affected, I feel prior tissue injury is making me more suseptible to

EN in that area.

, I hope you don't get a full blown flare-up! Could

stress be a factor for you? Seems I am under stress whever I am

standing a lot. A thought just occurred to me..my chiropractor years

ago told me I had one leg a bit shorter than the other. The fect that

I have no back pain led him to say I was " perfectly accomdated " --and

I don't limp. He could tell by one hip being higher than the other

when I stood flat footed. I wonder if standing/walking puts stress on

my body to maintain the " accomadation " ?

By the way, , is there a reason you can't get SSKI? If

I'm not too nosey ;-)

Roseanne, I didn't realize you are a veteran of EN like me! Do

you see any relationship between your fibro and EN--like are you on

any meds for fibro that may be supressing your EN? The fact that you

rarely get it now makes me hopeful for the rest of us to " lengthen

our remissions " as a goal of the group. If you are taking any

vitamins or minerals or whatever that might be lengthening the

remissions and making the flare-up less severe,that would be of vital

interest to the group ( and ME ;-) )

Just an aside here, but I read that nicotine can suppress the

autoimmune response. I'm not a smoker--never have been, but I wonder

if any members are. If we have smokers in the group, I'd welcome

their observations. Wouldn't it be a hoot if a low level nicotine

patch would help us? I am NOT recommending this and have never tried

it, but I would love to have a researcher do the trial.

Wishing Everyone a happy week!

Love,

[Guest guest]

Hi ,

I have read that nicotine is an antiinflammatory, the same kind of

action that an NSAID(Motrin,etc.) has. Be very careful with the

dosage you use, especially someone who has never smoked. You can

get very sick from taking too high a dosage.

SSKI is a real oldtimer. You need potassium iodide crystals and

water to make it up, equal quantities of each. The pharmacy may not

be able to get the crystals, or not be familiar with it. There are

pharmacies that specialize in compounding.

Regards,

> Dear All,

> Subjectively I feel the swollen ankles are edema from fluid

and

> lymph. When I get a flare in the usual leg the ankle will only

swell

> if the lower lump comes out. If the higher one does, the ankle is

> unaffected. Perhaps the " stickly stuff " is lymph? Does the body

> produce lymph to counter inflammation? Since I only get the one

leg

> affected, I feel prior tissue injury is making me more suseptible

to

> EN in that area.

> , I hope you don't get a full blown flare-up! Could

> stress be a factor for you? Seems I am under stress whever I am

> standing a lot. A thought just occurred to me..my chiropractor

years

> ago told me I had one leg a bit shorter than the other. The fect

that

> I have no back pain led him to say I was " perfectly accomdated " --

and

> I don't limp. He could tell by one hip being higher than the other

> when I stood flat footed. I wonder if standing/walking puts stress

on

> my body to maintain the " accomadation " ?

> By the way, , is there a reason you can't get SSKI?

If

> I'm not too nosey ;-)

> Roseanne, I didn't realize you are a veteran of EN like me!

Do

> you see any relationship between your fibro and EN--like are you

on

> any meds for fibro that may be supressing your EN? The fact that

you

> rarely get it now makes me hopeful for the rest of us to " lengthen

> our remissions " as a goal of the group. If you are taking any

> vitamins or minerals or whatever that might be lengthening the

> remissions and making the flare-up less severe,that would be of

vital

> interest to the group ( and ME ;-) )

> Just an aside here, but I read that nicotine can suppress the

> autoimmune response. I'm not a smoker--never have been, but I

wonder

> if any members are. If we have smokers in the group, I'd welcome

> their observations. Wouldn't it be a hoot if a low level nicotine

> patch would help us? I am NOT recommending this and have never

tried

> it, but I would love to have a researcher do the trial.

> Wishing Everyone a happy week!

> Love,

>

[Guest guest]

Hi everyone,

Woke up this morning to find another lump at the top of the same

leg. They are only small but it's amazing how much they hurt,

especially when I bump them! I can't get any p idode solution made

up for me. I have a prescription from my specialist but the only

chemist that used to be able to do it for me say they can now longer

get it in! They have been trying for months to get it as I wanted

to have it at home just in case I had a flare up but no luck! I

have tried other chemists and they all say they have no need for it

anymore! If anyone has any suggestions on how I should go about

getting some more they will be very welcome!

Steph