Re: ME/CFS Hypothyroidism

[Guest guest]

That's very interesting...my temperature is always either 96. something or 97.

something...and actually any time I have taken my temperature and found out that

it is 98.6, I usually feel like I have a fever at that point...I would be

interested to find out where you read that. It's very interesting and

unfortunately sounds way too familiar.

Tina

stephanie wrote:

Hi Dee!

I've noticed on my RA and Lupus health board that many have thyroid issues and

hyperactive thyroid with their autoimmune disease. I do have an article that was

written in my local paper from a nurse practitioner.

[Guest guest]

>

> Hi Di,

>

> Thanks so much for answering as i'm new to all this and am just

starting to find out things about these illnesses (as docs are mostly

putting it all down to a 'depressive reaction'. They've never said

what i'm 'reacting' to strangely enough. lol

>

> Anyway, i've been diagnosed with Hypo Hashimoto's disease. But even

though i'm taking my meds for that i'm not feeling much better, and

i'm having strange sypmtoms which don't seem to match up to the

hashi, so i've been researching and my symptoms led me to the cfs/me

and fibro direction. My question though, is that there seem to be a

lot of people with hypothyroid disease are telling me that cfs, fibro

etc...doesn't exist. That is it just an undiagnosed form of

hypothyroidism, or something that the drug companies made just so

they could invent another medication. A case of, why just flog them

thyroid medication when we can say they are completely seperate

conditions and sell double the amount of medications.'

>

> Is this true? I'm only asking as i'm trying to sort myself out,

and being from Australia we don't really have that huge 'drug

companies' thing here. We just kind of go along with what the US

seems to do and say.

> Any adice would be greatly appreciated.

> Thanks so much

> dee

>

>

>

[Guest guest]

Thanks everyone for your replies. I believe ME to be a seperate issue too, a

disease in its own right. It was the hypo/cfs connection i was mostly confused

about.

Your opinions were really interesting and have helped me sort some things out in

my own head. Thanks so much everyone, much appreciated.

Hugs

dee

[Guest guest]

Hi Dee, I just had to reply to

your question about whether

CFS/ME/Fibro are real or just

another form of

Hypothyroidism. As someone who

has had CFS/ME for over 12

years and Fibro for at least

5, I can reassure you that

they are real. I do agree with

that s's

Disease may be part of some

forms of these issues. I

certainly have some of the

symptoms. But as an American,

living in the country that is,

seemingly, dedicated to greed

- especially when it comes to

medications and health care -

I can reassure you there are

no wonder pills costing huge

amounts of money that the drug

firms have come up with. If

only they would. I do take a

pill that costs me around $10

for each one, but it was

developed for narcolepsy and

is sparingly used for CFS/ME.

It helps a bit, I get out of

bed every day. But I do end up

back in bed, and I have no

energy to do anything during

the day, when I am up. There

are many more medications for

Thyroid in this country than

for CFIDS. The only thing that

ever showed any help,

Ampligen, has never been

approved by the FDA (Federal

Drug Administration) though

PWCs have asked and asked.

So, for what it's worth - yes,

Virginia there is a Santa

Claus and yes, Dee there is

CFS/ME/Fibro. I only wish it

were thyroid so it would be

treatable. This is an

excellent place to come and

ask questions. Someone will

always have some kind of

answer. I haven't been around

long, but I've learned a lot

already. Taffy

" And the consequence of our

existence

Is the reason for our

being. "

Stuart Todd 5/27/71 -

3/13/90

" God be between you and harm

in all the

empty places you must

walk. "

Jill Riley 4/24/63 -

10/12/00

[Guest guest]

Thanks so much for all that infomation Ness, i really appreciate it and will be

doing lots of reading me thinks!

Hugs

debs