Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 OK, so I've only been doing the recommended new treatment for about 10 days but I've had some mixed results. The avena sativa stuff really knocked me out at first, and I got a couple nights of great sleep. I passed out between 2:30 and 3am. Felt really energetic, like being back on provigil. After that I worked myself off tylenol pm but haven't gotten any further with lowering other things like aleve or nyquil. I had to go all the way down to Sacramento (a 3 1/2hr car ride) for dental work this week. That knocked some of the stuffing out me further. Yesterday I was feeling well enough to make the 45min trip down to Reno for errands. By the end of what turned into a really long day I was over-exhausted in a huge amount of pain in made me extremely nauseas and I was awake until 5:30am because of it. I'm finding the no black tea, no sugar, no honey, and low grain diet to be difficult. Honestly, I haven't got the whole O blood type diet completely straight yet.The dr said to eat protein like jerky when craving an energy boost (no peanut butter sucks), so I tried to pick some up but they all had either corn syrup or sugar. It doesn't help that the prescriptions I needed this dr to mail in to my mail order pharmacy have not been so I'm having to space out my lyrica to one 100mg pill a day instead of 3. My lymph nodes in the front of my neck feel inflamed and have been the past week. I need to call and make a new appointment (he wanted me in after 2 weeks) but haven't heard a peep about whether insurance will cover any of this.I don't have the money to afford this treatment so it falls on my parents. I want to make sure they will get some of that upfront money back from insurance because I know they don't really have the money for it either. Sigh...does anyone think it would be normal for a homeopathic dr who regularly treats fms to not know what savella is? The dr googled it in front of me to find out what type of med it is. I'm not giving up on it yet, but am not stunned by it either. While I'm excited to travel next month, I'm starting to feel daunted. I'm so tired of being held back by the confines of cfs and fms. Alia In a completely unrelated discussion, my 10yr high school reunion will be this year. I got sick with cfs when I was a sophomore and I guess I'm hoping that isn't everything people remember about me. I don't want conversations about it, or about the fact that I'm not employed and on social security disability. I'm thinking I'll just tell people I'm taking a break to travel between college and grad school Quote Link to comment Share on other sites More sharing options...
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