XMRV Conference *Lipkin Study*

[Guest guest]

A participant of the meeting below and member of

Help ME Circle, became furious after reading the

denigrating impertinences by Prof. Simon Wessely in

the article *Dangers of research into chronic fatigue

syndrome* by the freelance journalist Nigel Hawkes.

(reference: *Wessely & White: Weeping Bitterly* Help

ME Circle, 24 June 2011 - BMJ 2011;342:d3780)

He specially quoted S.W:

*They're damaged and disturbed, with an obsession

about psychiatry. With these people, it isn't that they

don't want to get better but if the price is

recognising the psychiatric basis of the condition,

they'd rather not get better.*

He was not sure if the text is confidential, so wants

to stay anonymous, but he could not resist to inform

the sufferers of the unbearable disease ME/CFS about

the exiting report below, from the conference on

XMRV in Reno - 24/06/11 (?)

Because of the weekend I couldn't reach him, but if I

understood him well, I suppose (but not quite sure),

that the text is written by Dr. Cheney.

~jan van roijen

````

'I and a few other colleagues just completed a large

conference call with NIH officials and many interested

parties regarding the proposed *Lipkin* study which is

poised to soon be launched.

Results are expected by early next year or sooner on

150 CFS cases and 150 matched controls from six

centers familiar with CFS (Stanford U., Harvard U.,

U. Miami, NYC, Incline Village and Salt Lake City).

These cases are from three academic centers and

three private practices who see CFS cases.

The study, independently agreed upon by three XMRV

investigators (WPI-Mikovits, FDA-Lo/Alter and

CDC-Switzer), and overseen by Ian Lipkin himself at

the NIH will resolve the current disagreements on:

a) the existence of detectable XMRV/MLV in CFS

and

the association of XMRV/MLV with CFS.

After listening to about 20 key players on three

continents as well as Lipkin himself who appears very

non-partisan, there is no doubt in my mind what this

study will show with the full backing of the NIH in its

outcome and conclusions.

The good thing will be that all reagents will be

certified as contaminant free.

All samples will be collected the same way and

cases/controls assessed the same way.

In the analysis, though different labs will do *their

thing*, they are allowed the methods they choose.

If a sample is positive from any of the three, it will be

counted positive and if any sample is negative from all

three, it will be counted as negative.

If one sample is positive from one site and negative

from the other two, it will be deemed positive for

purposes of the study conclusions.

Judy Mikovits will employ four different assays

(culture, PCR, western blot with sequencing and

serology) while Alter/Lo will employ PCR on plasma and

Switzer will use PCR on extracted DNA as sole tests.

May the games begin and the best man or woman

win.

If Judy Mikovits can, in a blinded fashion, come to the

same conclusions she arrived at before in the Science

paper, the sky will fall in on all other naysayers and

reputations and egos will suffer great humiliation.

I am confident she will do well and so is she.

If not, the patients are no worse off than before and

this disease will remain the enigma it has always been

to those who treat it and those who live it.

However, I would not want to be Switzer or the CDC

or Jay Levy or Singh or Coffin or the Science

editors or most of the UK medical establishment right

now.

The odds are not in their favor but we will see. I think

they are all on the Titanic after what I heard today.'

[Guest guest]

I have been offering my blood to these non believers to inject themselves

with for 25 years, I would like them to prove their firm belief but no

takers as of yet. I believe Prof. Wessely has had an offer in the past and it

still stands today but now I'de like to see him take the blood of one of us

who is extremely ill.

In a message dated 6/27/2011 11:01:37 A.M. Pacific Daylight Time,

j.van.roijen@... writes:

A participant of the meeting below and member of

Help ME Circle, became furious after reading the

denigrating impertinences by Prof. Simon Wessely in

the article *Dangers of research into chronic fatigue

syndrome* by the freelance journalist Nigel Hawkes.

(reference: *Wessely & White: Weeping Bitterly* Help

ME Circle, 24 June 2011 - BMJ 2011;342:d3780)

He specially quoted S.W:

*They're damaged and disturbed, with an obsession

about psychiatry. With these people, it isn't that they

don't want to get better but if the price is

recognising the psychiatric basis of the condition,

they'd rather not get better.*

[Guest guest]

I think I'm a tad sadistic, must be a side affect.

In a message dated 6/29/2011 7:28:23 P.M. Pacific Daylight Time,

ShyCat2@... writes:

I have been offering my blood to these non believers to inject themselves

with for 25 years, I would like them to prove their firm belief but no

takers as of yet. I believe Prof. Wessely has had an offer in the past and

it

still stands today but now I'de like to see him take the blood of one of

us

who is extremely ill.