Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Dear Tina, I couldn't have said it better myself! I'm so happy you had a beautiful and restful day! We really should " make time " to relax and enjoy ourselves on a regular basis. Got company now, so got to run. Have a great (rest of ) the weekend! Love, > > > > Hi Everyone! > > > > Did you ever hear, when you were young, that you could be > > > > anything you wanted to be? Well, it's true, you can. Our group > is > > > > young and we can create it to be anything we want, too. So I > put > > > the > > > > question to you: What direction do you want our group to take? > > > > I have been checking out other EN/Pann. Groups. Of the > groups > > > I > > > > checked out, the biggest one I told you about yesterday seems > to > > be > > > > quite involved with the latest medical and drug treatments, and > is > > > a > > > > wonderful resource for those seeking such. > > > > My own leaning is to heal the body without dependence on > > > > prescription drugs. I do feel that drugs may be necessary when > EN > > > is > > > > very resistant to remission and where it is a major > interference > > > with > > > > your life. > > > > I am, however open to moderating the group in any > direction > > it > > > > chooses to take. > > > > Let me know what you want. Tell me the direction you wish > the > > > > group to take. > > > > Have a great weekend! > > > > Love, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Dear Cobalt and Group, I really feel for all of you who are in falre-ups and who continue to work--especially the long hours on your feet you put in , Cobalt. Do you ever have off two days in a row? If you do, I would so strongly recommend you arrange to have a marathon bedrest. Try to sleep as much as you can manage. For me sleep is so restorative and really helps with the swelling in the leg. If you can't sleep that much at least try to rest in a lying down position for the edema. I know everyone's body reacts differently, but I know I'm not the only one who has such good results from bedrest--others have said the same. I just got up from sleeping nearly 12 hours straight. I am lucky I have the luxury of being able to do that. My body needed it as I didn't get any " nap " in the afternoon. Could the " mild case " of EN I experience be due in part to the way I " baby myself " with the rest I seem to need? All I know from experience is that I'd be asking for trouble if I didn't get the sleep my body craves. By the way, I have fantastic dreams in technicolor---many are complete with songs and dance numbers--like those old muscials. And I often find many wonderful rooms--often fabulously furnished-- once I opened the door to a beautiful tiled Grecian pool. Believe me, bedrest is no deprivation! It's my other life! Have a Blessed Day of Rest, Everyone! Love, > lol, I'm already thinking towards the Eryth Theme song. Man oh man. > T'was the day before walking and all thru my legs, little red bumps > formed, the size of small eggs. Walking was painful, and standing, a > hell. Etc etc. maaan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 I d get the 2 days off and the redness is taking a break too. All I have now left bugging me is the half my hand being numb and the cartilage like bumps the erythnodes that are left are becoming. Quote Link to comment Share on other sites More sharing options...
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