Debbie - greyeyes

[Guest guest]

Hi Debbie,

THANK YOU for posting your picture! You're

very pretty.

My sister has FM and takes Oxycontin along

with Neurontin - which appears

to help her circulation. Like you, she

seemed to have two (separate)

thermostats that regulated the temps of her

upper and lower torso.

Ask your doctor for samples of Neurontin.

Just for giggles, I purchased a visco-elastic

"memory foam" mattress

topper for her. To our surprise, this

has helped tremendously! The cost

was about $40 for King Size. May be

worthwhile for you to investigate.

Before closing, Provigil has been used in Europe

for years - although

fairly new to the US. If your insurance

will not help out with the cost,

check out Costco. Their prices for meds are

very reasonable, and most

locations will allow you to purchase your

RX's from them - even if you are

*not* a member. Failing this, see about

joining a credit union (or some

organization) that offers "Script Save", "Com

Care" or "Well Com" as a

free benefit with membership. These (free)

little RX cards have saved me

50% off many brand-name meds in the past.

Best Wishes To You,

Genie

PS: We long suspected my sis had Hashimoto's

too. This past Friday,

the diagnosis was confirmed. Now SIX of us

have this beast. (Grrrr....)

Debbie wrote:

Sorry..back to my appt with my neuro. Actually

I see him every 4

months so that I can keep getting my oxycontin for this Fibromyalgia

I've had for mmmmm 11 years being officially dx'd. He gave me a script

for something called Provigil. It's prescribed for narcolepsy patients

but he says he uses it off label for alot of his FM patients which has

helped some with the fatigue problem associated with FM. Had a feeling

I'd better call to see if this Rx would be covered before I took it to

the pharmacy since the doc said most of his patients he's prescribed it

for have found that insurance doesn't want to cover it so why would I think

mine would be different? Am waiting for prior authorization now and

more then likely my insurance isn't going to want to cover it either but

miracles do happen right?

Another thing that's for sure is that the Remeron and Xanax at

night give me 8 hours of good sleep every night so I'm very bewildered

as to which disease is keeping my energy level down to zilch, zero, nada,

nothing!

P.S. I uploaded a pic of me.