Re: Many drugs and e-mail spam

[Guest guest]

Dear ,

Wow! You have tried it all! I commend you on your determination

to beat this thing! Your experiences will help us all. Hopefully the

leg aches are just a reminded to relax.

About the e-mail situation. You may be referrring to the " thread "

as multiple e-mails. They will have the same subject when someone

" replys " to a posted e-mail. I get the same thing. It looks like you

have several duplicates, but it is probably just a reply to one where

the subject was left the same. Going to the group when you want to is

the way to avoid getting spammed. Also, let's try to change the

" subject " or just modify it so we can keep track of what we are

discussing.

Have a great weekend!

Love,

PS: it is my great pleasure to have you in our group!

> Hi All,

> My name is -- I was a member briefly of the other group. I am

reading with great interest what everyone has been reading.

Everything I am now reading vs what I was reading before are the

things that I have been tried on.

>

> Since I do not tolerate most medications My doctor keeps trying me

on different medications. I have been on plaquenil (didn't help),

Colchicine ( gave me real nasty gas :-) -- Cyclosporin (that was

nasty), Postassiam Iodide (nasty). The last drug I was on was

Cellcept. I only tolerated it about 2 weeks but during that time it

cleared up the nodules I had. It is a medication used for transplant

patient to keep them from rejecting the new organ. I stopped the

medication on July 8 and I have still not flared up again. I am very

happy! I am also very worried because I am under major stress and

yesterday and today my legs have started aching which has happened

several time before before a flair up. For the person who was talking

about the spot in her mouth -- I had a small lump behind my lip inside

my mouth. When I went to my oral surgeon he told me they have seen EN

in the mouth -- though, for me it didn't end of being that.

>

> I feel honored to be part of this group. I hope I can help other

people with my experience as I hope others can help me with theirs!

>

> I do have one question. When I opened up my e-mail tonight I had

over 30 messages -- the majority of the messages are the same but

often from different people. Is there a way to stop getting multiple

messages? I do not want to have to go to the site to check peoples

postings but I might have to if this is what happens everyday. I did

check my e-mail this morning. I got the 30 messages from this morning

on.

> Thanks

>

[Guest guest]

Hi ,

Thanks for letting me know about the "thread" of multiple e-mails. Unfortunately it is not just the subject line that is the same it is also the content of the e-mail. When I read through some of them they were exactly the same as others. No one had replied differently. I understand it is going to multiple people and that multiple people are answering -- so confused :-) I also get my own back that I send out. Is this usual? I did not have this occur before. I just want to make sure I am not having a problem here?

Thanks

Re: Many drugs and e-mail spam

Dear , Wow! You have tried it all! I commend you on your determination to beat this thing! Your experiences will help us all. Hopefully the leg aches are just a reminded to relax. About the e-mail situation. You may be referrring to the "thread" as multiple e-mails. They will have the same subject when someone "replys" to a posted e-mail. I get the same thing. It looks like you have several duplicates, but it is probably just a reply to one where the subject was left the same. Going to the group when you want to is the way to avoid getting spammed. Also, let's try to change the "subject" or just modify it so we can keep track of what we are discussing. Have a great weekend! Love, PS: it is my great pleasure to have you in our group! > Hi All,> My name is -- I was a member briefly of the other group. I am reading with great interest what everyone has been reading. Everything I am now reading vs what I was reading before are the things that I have been tried on.> > Since I do not tolerate most medications My doctor keeps trying me on different medications. I have been on plaquenil (didn't help), Colchicine ( gave me real nasty gas :-) -- Cyclosporin (that was nasty), Postassiam Iodide (nasty). The last drug I was on was Cellcept. I only tolerated it about 2 weeks but during that time it cleared up the nodules I had. It is a medication used for transplant patient to keep them from rejecting the new organ. I stopped the medication on July 8 and I have still not flared up again. I am very happy! I am also very worried because I am under major stress and yesterday and today my legs have started aching which has happened several time before before a flair up. For the person who was talking about the spot in her mouth -- I had a small lump behind my lip inside my mouth. When I went to my oral surgeon he told me they have seen EN in the mouth -- though, for me it didn't end of being that.> > I feel honored to be part of this group. I hope I can help other people with my experience as I hope others can help me with theirs!> > I do have one question. When I opened up my e-mail tonight I had over 30 messages -- the majority of the messages are the same but often from different people. Is there a way to stop getting multiple messages? I do not want to have to go to the site to check peoples postings but I might have to if this is what happens everyday. I did check my e-mail this morning. I got the 30 messages from this morning on.> Thanks>