Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Good that you have help! I know how hard it is to do daycare when you feel like crap..unfortunately most of my parents although very nice, just dont get it!Sucks that you are still in pain. Hope that turns a corner soon! Anita UPDATE Wow how things been long and frustratung form me. I've followed ever instrustion to the letter and NO DRY SOCKETS!!!YEPIEE HOWEVER, the left upper tooth that was in the sinus area is giving me terrible fit,I am still of double antibotics and pain meds ever 4 and 6 hours, seems to help.I will NOT be ready to take care of these kids on my own so my son's GF will come stay with me and help me,she geat with the kids and she' just a helper and Tyler HAS to go back to work! is having so much fun in NYC, he was excited when he called last night when he callee. Hope are alldoing well! Terry W from MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 I'm glad you are doing well Terry. I'm much better now. I had another spat of bronchitis but it's doing better. I'm back on Advair regularly now, too. My granddaughter had a virus this past week and is also feeling better now. I see my doctor next week and we'll see how things are going with my asthma and diabetes. The only thing I'm worried about is my diabetes. I haven't been watching my diet well lately, so my blood sugars have been up. It's my own fault and I'm working on getting the diet back on track. God bless you! Subject: UPDATETo: Cc: asthma , AsthmaSupportPLUS , asthma , "patsyh" <landProviders >Date: Tuesday, July 15, 2008, 1:55 AM Wow how things been long and frustratung form me. I've followed ever instrustion to the letter and NO DRY SOCKETS!!!YEPIEE HOWEVER, the left upper tooth that was in the sinus area is giving me terrible fit,I am still of double antibotics and pain meds ever 4 and 6 hours, seems to help.I will NOT be ready to take care of these kids on my own so my son's GF will come stay with me and help me,she geat with the kids and she' just a helper and Tyler HAS to go back to work! is having so much fun in NYC, he was excited when he called last night when he callee. Hope are alldoing well! Terry W from MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Oh I feel for you. I ma not sure exactly what is in flovent, but I know that my meds really affect my energy levels and moods. Many asthmatics take xanax to help control side effects. That may not be the right thing because he is so young & I know that you don't want to add even more meds (I worry about the long term effects on my liver all the time), but you may want to talk to the doc about the mood swings. He/she may have something mild that will help. > > Hey all I finally got my 4 yo in to see the pulmonologist last week > and so far we have only had 1 problem. She prescribed flovent for him > and it makes him a holy terror. Granted he is a toddler and will act > up, but the flovent makes him extremely aggressive. Has anyone else > run in to this problem? Other than that she is keeping him on the > singulair and zyrtec daily for his allergies, albuterol for > emergencies and has us returning in 8 weeks to work on getting an > action plan together. He starts school next week and I know that if I > am having severe difficulties in keeping him contained then the school > will as well if not to a worse degree. Any thoughts on this would be > greatly appreciated. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Wow Sara, with running a childcare, I've had several dealing like your describing. Did he just start on the flovent? If so maybe he'll settle down in a week or so as his body adjust to it, or hope so anyways, I would call her and let her know how he's reacting to it, maybe the dosage is too high or something. I have seen the kids get really hyper when they take albuteral or have to use the nebulizer. An asthma action plan for him sounds like your headed in the right direction. Also talk with the teacher and let her know what's going on, with a teacher knowing that it's not his normal behavior they are better able to handle things, also does the school have a nurse? Our schools here in MD all have nurses even the catholic school has one now,so it's a good idea to keep her abreast of everything so she can help you to help him! Good luck and I hope I was able to be of some help Terry I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992 From: asthma [mailto:asthma ] On Behalf Of dragonqueen50Sent: Monday, August 18, 2008 8:53 AMTo: asthma Subject: Update Hey all I finally got my 4 yo in to see the pulmonologist last weekand so far we have only had 1 problem. She prescribed flovent for himand it makes him a holy terror. Granted he is a toddler and will actup, but the flovent makes him extremely aggressive. Has anyone elserun in to this problem? Other than that she is keeping him on thesingulair and zyrtec daily for his allergies, albuterol foremergencies and has us returning in 8 weeks to work on getting anaction plan together. He starts school next week and I know that if Iam having severe difficulties in keeping him contained then the schoolwill as well if not to a worse degree. Any thoughts on this would begreatly appreciated. No viruses found in this incoming messageScanned by iolo AntiVirus 1.5.4.5http://www.iolo.com No viruses found in this outgoing messageScanned by iolo AntiVirus 1.5.4.5http://www.iolo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Terry thanks for the feedback! I have put in a call to the pedi-pulmo this morning and talked to one of the nurses. She is going to talk to Dr. Perkett and call me back either with a lower dose (he is one the 110 mc) or with a different medicine. As for the school, it is a headstart center and I count myself very lucky that they do have people familiar with asthma (several of the teachers have asthmatic children) however they do not have a nurse on staff. We had problems last year with his behavior w/o meds interfering, so to take a step backwards on this would be very frustrating. He has been on the flovent since the 6th and it's been unreal how he is behaving. I have an older child that is ADHD and he is more work w/o meds than she ever was behavior wise (not sure if it's because he is male or what). Thanks again for the feedback! > > Wow Sara, with running a childcare, I've had several dealing like your > describing. Did he just start on the flovent? If so maybe he'll settle down > in a week or so as his body adjust to it, or hope so anyways, I would call > her and let her know how he's reacting to it, maybe the dosage is too high > or something. I have seen the kids get really hyper when they take albuteral > or have to use the nebulizer. An asthma action plan for him sounds like your > headed in the right direction. Also talk with the teacher and let her know > what's going on, with a teacher knowing that it's not his normal behavior > they are better able to handle things, also does the school have a nurse? > Our schools here in MD all have nurses even the catholic school has one > now,so it's a good idea to keep her abreast of everything so she can help > you to help him! > > Good luck and I hope I was able to be of some help > > > Terry > I know God will not give me anything I can't handle. I just wish that He > didn't trust me so much. ~Mother > > > Teddy Bear's Early Learning Program > Established August of 1992 > > > > > _____ > > From: asthma [mailto:asthma ] On Behalf Of > dragonqueen50 > Sent: Monday, August 18, 2008 8:53 AM > To: asthma > Subject: Update > > > > Hey all I finally got my 4 yo in to see the pulmonologist last week > and so far we have only had 1 problem. She prescribed flovent for him > and it makes him a holy terror. Granted he is a toddler and will act > up, but the flovent makes him extremely aggressive. Has anyone else > run in to this problem? Other than that she is keeping him on the > singulair and zyrtec daily for his allergies, albuterol for > emergencies and has us returning in 8 weeks to work on getting an > action plan together. He starts school next week and I know that if I > am having severe difficulties in keeping him contained then the school > will as well if not to a worse degree. Any thoughts on this would be > greatly appreciated. > > > > > > > > > _____ > > No viruses found in this incoming message > Scanned by iolo AntiVirus 1.5.4.5 > http://www.iolo.com <http://www.iolo.com/iav/iavpop3> > > > _______________________________________ > No viruses found in this outgoing message > Scanned by iolo AntiVirus 1.5.4.5 > http://www.iolo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Madeline, I did not receive it. I would always respond. Cheryl Burton ncicheryl@... Update Hi all. I am so sorry I didn't post yesterday. I really thought that I had. If they weren't messing with me I was pretty much sleeping.Boy do I have a lot to share. First my heart is absolutely. beautiful. The doctors said that all of the tests were absolutely textbook. There is no enlargement or internal blood pressure changes. The valves all open and close perfectly and they can find absolutely no evidence of any kind of blockage or future artery problems. The docs are amazed. They told me that with the number of serious asthma attacks and the amount of meds I really should have enlargement to some degree. The only thing they told me is to pay attention to my heart rate. It seems to be very fast (wonder why - albuterol, salumedrol, prednizone, etc...) So I just have to time it and record the rate when I do my peak flows. I think they just can't stand for it to be perfect so they are making homework for me!! That is one major relief for me.We have also figured out that at the moment my asthma is the secondary issue. The primary issue is lung volume. In June we did a full set of PFT's and although all my numbers were bad, the lung volume was showing at 2.5 liters about half of what was expected. The docs at that time didn't really worry about it too much because they saw some minor scarring and a couple of other very mild abnormalities in the CT's or regular xrays that would explain that degree of loss. They just figured that it was a temporary thing caused by muscle fatigue from the constant asthma exaserbations (spelling?) Now my lungs are only holding a little less that one liter. Also, my FEV1 #'s and all those other #'s are at about 20% of expected. So, there was definitely some kind of permanent muscle or smooth wall damage in the lower lobes of both of my lungs in May. As to what this means for long term, we still don't know. I am scheduled to have another interview with National Jewish next Tuesday to set the actual dates of travel and service with them. In the meantime, my doc is calling them to let them know what they have found. My doc is really hoping to get me in to them in the next week or two. I am trying to talk him into letting me go home this weekend on high steroid dosages. He is really very unsettled. Even though he thinks that they have gotten me to a point where there is really not much else they can do. Same story as last time. The only difference between staying in the hospital and being at home is the maximum steroid dosage I can take, and he is reluctant to take me off of the steroids. And boy am I having some extra side effects this time! My peak flows are still sitting in the 170-180 range for the 3rd day. We don't expect them to get much better. So I have talked him into slowly redcing the steroids over the next two days and see how I do.I am only 15 minutes from the hospital (during high traffic) so I can get here very quickly if need be. So keep praying. I want to go home at least long enough to sleep in my own bed for a couple of days and catch up on some sleep and pack a back for National Jewish. Lord knows I don't want my husband doing that! LOL My spirits are high and I am doing everything I can to drive all the nurses nuts by walking the halls and refusing to use my call button (one nurse said i am like a ghost in the halls at night!! LOL) I try to walk as much as I can. Although, I am in a VIP suite this time and have plenty of room (a teeny bath, bedroom, and sitting room) if I have to stay. They won't let me go get a pedicure though. Isn't that mean?I promise I will send a quick post later today! Love you all. (P.S. Alana and Cheryl I sent you both a private email a couple of days ago. You haven't responded, did you get it?)Madline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Hi Madeline, Thank you so much for posting the great news about your heart - what a great way to start my day! Sorry about the e-mail - I'm web only and never check it anymore, just click into it every couple weeks, otherwise they terminate your account. LOL about the pedicure - but - the fumes from the polish are probably not a good idea! I am not that familiar with National Jewish - what do they do there that is better than any other facility? I hope you are feeling better. Alana > > Hi all. I am so sorry I didn't post yesterday. I really thought > that I had. If they weren't messing with me I was pretty much > sleeping. > > Boy do I have a lot to share. First my heart is absolutely. > beautiful. The doctors said that all of the tests were absolutely > textbook. There is no enlargement or internal blood pressure > changes. The valves all open and close perfectly and they can find > absolutely no evidence of any kind of blockage or future artery > problems. The docs are amazed. They told me that with the number of > serious asthma attacks and the amount of meds I really should have > enlargement to some degree. The only thing they told me is to pay > attention to my heart rate. It seems to be very fast (wonder why - > albuterol, salumedrol, prednizone, etc...) So I just have to time it > and record the rate when I do my peak flows. I think they just can't > stand for it to be perfect so they are making homework for me!! That > is one major relief for me. > > We have also figured out that at the moment my asthma is the > secondary issue. The primary issue is lung volume. In June we did a > full set of PFT's and although all my numbers were bad, the lung > volume was showing at 2.5 liters about half of what was expected. > The docs at that time didn't really worry about it too much because > they saw some minor scarring and a couple of other very mild > abnormalities in the CT's or regular xrays that would explain that > degree of loss. They just figured that it was a temporary thing > caused by muscle fatigue from the constant asthma exaserbations > (spelling?) > > Now my lungs are only holding a little less that one liter. Also, my > FEV1 #'s and all those other #'s are at about 20% of expected. So, > there was definitely some kind of permanent muscle or smooth wall > damage in the lower lobes of both of my lungs in May. As to what > this means for long term, we still don't know. I am scheduled to > have another interview with National Jewish next Tuesday to set the > actual dates of travel and service with them. In the meantime, my > doc is calling them to let them know what they have found. My doc is > really hoping to get me in to them in the next week or two. I am > trying to talk him into letting me go home this weekend on high > steroid dosages. He is really very unsettled. Even though he thinks > that they have gotten me to a point where there is really not much > else they can do. Same story as last time. The only difference > between staying in the hospital and being at home is the maximum > steroid dosage I can take, and he is reluctant to take me off of the > steroids. And boy am I having some extra side effects this time! My > peak flows are still sitting in the 170-180 range for the 3rd day. > We don't expect them to get much better. So I have talked him into > slowly redcing the steroids over the next two days and see how I do. > > I am only 15 minutes from the hospital (during high traffic) so I can > get here very quickly if need be. So keep praying. I want to go > home at least long enough to sleep in my own bed for a couple of days > and catch up on some sleep and pack a back for National Jewish. Lord > knows I don't want my husband doing that! LOL My spirits are high > and I am doing everything I can to drive all the nurses nuts by > walking the halls and refusing to use my call button (one nurse said > i am like a ghost in the halls at night!! LOL) I try to walk as > much as I can. Although, I am in a VIP suite this time and have > plenty of room (a teeny bath, bedroom, and sitting room) if I have to > stay. They won't let me go get a pedicure though. Isn't that mean? > > I promise I will send a quick post later today! Love you all. (P.S. > Alana and Cheryl I sent you both a private email a couple of days > ago. You haven't responded, did you get it?) > > Madline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 National Jewish hospital in Denver is considered the leading diagnostic center for anything pulmonary in the US. The only things they work with are pulmonary and autoimmune diseases. We have been unable to diagnose me since May & every time I deteriorate I haven't come back to the point I was before. My docs here are extremely jumpy at this moment in time. So they finally admitted that they are not God and can't figure it out. I am hoping that Denver can come up with an all important diagnosis so we can treat the proper things. Also, I am very excited to go try the air as Denver is listed on the top 10 places to live with COPD and Asthma. Madeline > > > > Hi all. I am so sorry I didn't post yesterday. I really thought > > that I had. If they weren't messing with me I was pretty much > > sleeping. > > > > Boy do I have a lot to share. First my heart is absolutely. > > beautiful. The doctors said that all of the tests were absolutely > > textbook. There is no enlargement or internal blood pressure > > changes. The valves all open and close perfectly and they can find > > absolutely no evidence of any kind of blockage or future artery > > problems. The docs are amazed. They told me that with the number > of > > serious asthma attacks and the amount of meds I really should have > > enlargement to some degree. The only thing they told me is to pay > > attention to my heart rate. It seems to be very fast (wonder why - > > albuterol, salumedrol, prednizone, etc...) So I just have to time > it > > and record the rate when I do my peak flows. I think they just > can't > > stand for it to be perfect so they are making homework for me!! > That > > is one major relief for me. > > > > We have also figured out that at the moment my asthma is the > > secondary issue. The primary issue is lung volume. In June we did > a > > full set of PFT's and although all my numbers were bad, the lung > > volume was showing at 2.5 liters about half of what was expected. > > The docs at that time didn't really worry about it too much because > > they saw some minor scarring and a couple of other very mild > > abnormalities in the CT's or regular xrays that would explain that > > degree of loss. They just figured that it was a temporary thing > > caused by muscle fatigue from the constant asthma exaserbations > > (spelling?) > > > > Now my lungs are only holding a little less that one liter. Also, > my > > FEV1 #'s and all those other #'s are at about 20% of expected. So, > > there was definitely some kind of permanent muscle or smooth wall > > damage in the lower lobes of both of my lungs in May. As to what > > this means for long term, we still don't know. I am scheduled to > > have another interview with National Jewish next Tuesday to set the > > actual dates of travel and service with them. In the meantime, my > > doc is calling them to let them know what they have found. My doc > is > > really hoping to get me in to them in the next week or two. I am > > trying to talk him into letting me go home this weekend on high > > steroid dosages. He is really very unsettled. Even though he > thinks > > that they have gotten me to a point where there is really not much > > else they can do. Same story as last time. The only difference > > between staying in the hospital and being at home is the maximum > > steroid dosage I can take, and he is reluctant to take me off of > the > > steroids. And boy am I having some extra side effects this time! > My > > peak flows are still sitting in the 170-180 range for the 3rd day. > > We don't expect them to get much better. So I have talked him into > > slowly redcing the steroids over the next two days and see how I do. > > > > I am only 15 minutes from the hospital (during high traffic) so I > can > > get here very quickly if need be. So keep praying. I want to go > > home at least long enough to sleep in my own bed for a couple of > days > > and catch up on some sleep and pack a back for National Jewish. > Lord > > knows I don't want my husband doing that! LOL My spirits are high > > and I am doing everything I can to drive all the nurses nuts by > > walking the halls and refusing to use my call button (one nurse > said > > i am like a ghost in the halls at night!! LOL) I try to walk as > > much as I can. Although, I am in a VIP suite this time and have > > plenty of room (a teeny bath, bedroom, and sitting room) if I have > to > > stay. They won't let me go get a pedicure though. Isn't that mean? > > > > I promise I will send a quick post later today! Love you all. > (P.S. > > Alana and Cheryl I sent you both a private email a couple of days > > ago. You haven't responded, did you get it?) > > > > Madline > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Thanks, Madeline. I hope it is the answer for you. Alana > > National Jewish hospital in Denver is considered the leading > diagnostic center for anything pulmonary in the US. The only things > they work with are pulmonary and autoimmune diseases. We have been > unable to diagnose me since May & every time I deteriorate I haven't > come back to the point I was before. My docs here are extremely > jumpy at this moment in time. So they finally admitted that they are > not God and can't figure it out. I am hoping that Denver can come up > with an all important diagnosis so we can treat the proper things. > Also, I am very excited to go try the air as Denver is listed on the > top 10 places to live with COPD and Asthma. > > Madeline > Quote Link to comment Share on other sites More sharing options...
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