Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Since Katy was very young (she is now 14) - when she gets excited about something, she will flap her hands back and forth really fast - it is kind of hard to describe, but her arms are going straight out (not up) and her hands are going. As soon as I just touch her hands, she stops, but we can be at the movies or just at home and something funny or exciting and she will flap her hands. I can give her a quick verbal cue or physical cue by just touching her hands and she will stop. With her speech, sometimes she has a hard time getting certain words out or will stutter. However, when she sings - she NEVER stutters or has problems with words. Her piano teacher will sometimes put on a prerecorded song on the digital piano, and she will sing and sing and just make up the words as she goes along - and never stutter. As for adverse behaviors, she has really been as easy child. I cannot remember one time she ever threw a fit, she never bit anyone and is not a hitter at all. She hardly even cries about anything. Early on, we disciplined her the same as our son - made sure she understood why she was being disciplined (which was usually pops with a designated paddle) and always disciplined in love. She responded very well to discipline and hardly got pops at all. Please don't think she is a perfect child - she's definitely has her stubbornness at times, but just being firm with her usually gets her past it - sometimes she just has to talk it out with herself - she does self-talk a lot in her room. Also something else that I know has helped with her behavior, as with any child, is her response to the Word of God. I have taught her Bible lessons since very early. As soon as she became God conscious, she did believe on the Lord Jesus Christ as her Savior. When it comes to learning God's Word, there is no handicap - your human IQ is no handicap. God in his Grace has provided a way for anyone, regardless of IQ, to learn his Word. One of the very basic principles was " Children, Obey your parents in the Lord, for this right. " Eph. 6:1 - The principle of Volition, she has freewill and can choose " yes " or " no " - all of these concepts were taught with lots of visuals and hands-on manipulative. Right now, we are studying Moses and the children of Israel and not being a grumbler. Sometimes, Katy doesn't want to go to her piano lesson and we start talking about our lessons in Moses and then she can apply what she has learned to her own attitude about piano lessons. It really does turn things around. Not trying to get preachy here but God's Word is alive and powerful and it does make a difference in the lives of our children. Charlotte Concerning Behaviors Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Collin when he gets fustrated or angrey will start to flap his hands and arms and shake. It is very scary to people who first meet him and see this. Collin started doing this when he was about 3, he is now 5 and still does it. The only thing that helps to stop this is to calm him down by TRYING to figure out what happened in the first place. ~Nikki Mother of Collin MDS 5yrs old > >Reply-To: MosaicDS >To: <MosaicDS > >Subject: Re: Concerning Behaviors >Date: Tue, 7 Mar 2006 08:22:06 -0600 > >Since Katy was very young (she is now 14) - when she gets excited about >something, she will flap her hands back and forth really fast - it is kind >of hard to describe, but her arms are going straight out (not up) and her >hands are going. As soon as I just touch her hands, she stops, but we can >be at the movies or just at home and something funny or exciting and she >will flap her hands. I can give her a quick verbal cue or physical cue by >just touching her hands and she will stop. > >With her speech, sometimes she has a hard time getting certain words out or >will stutter. However, when she sings - she NEVER stutters or has problems >with words. Her piano teacher will sometimes put on a prerecorded song on >the digital piano, and she will sing and sing and just make up the words as >she goes along - and never stutter. > >As for adverse behaviors, she has really been as easy child. I cannot >remember one time she ever threw a fit, she never bit anyone and is not a >hitter at all. She hardly even cries about anything. Early on, we >disciplined her the same as our son - made sure she understood why she was >being disciplined (which was usually pops with a designated paddle) and >always disciplined in love. She responded very well to discipline and >hardly got pops at all. > >Please don't think she is a perfect child - she's definitely has her >stubbornness at times, but just being firm with her usually gets her past >it - sometimes she just has to talk it out with herself - she does >self-talk a lot in her room. > >Also something else that I know has helped with her behavior, as with any >child, is her response to the Word of God. I have taught her Bible lessons >since very early. As soon as she became God conscious, she did believe on >the Lord Jesus Christ as her Savior. When it comes to learning God's Word, >there is no handicap - your human IQ is no handicap. God in his Grace has >provided a way for anyone, regardless of IQ, to learn his Word. One of the >very basic principles was " Children, Obey your parents in the Lord, for >this right. " Eph. 6:1 - The principle of Volition, she has freewill and >can choose " yes " or " no " - all of these concepts were taught with lots of >visuals and hands-on manipulative. Right now, we are studying Moses and >the children of Israel and not being a grumbler. Sometimes, Katy doesn't >want to go to her piano lesson and we start talking about our lessons in >Moses and then she can apply what she has learned to her own attitude about >piano lessons. It really does turn things around. > >Not trying to get preachy here but God's Word is alive and powerful and it >does make a difference in the lives of our children. > >Charlotte > > Concerning Behaviors > > > Hi Everyone, > I was wondering if you could characterize some specific behaviors in >your child with MDS. I know that frustration builds when there is a delay >in communication, and that often causes the child to lash out by hitting, >biting, or thowing a fit. (perhaps you can include your input on that) > Also, as I wrote in our last newsletter, Wandering is a big issue with >children with MDS. > Are there other specific behaviors that you are dealing with or have >dealt with? And, what age is or has your child exhibited this behavior? > > Thanks > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Tim flaps his hands when he is excited. This is interesting that you both have mentioned hand flapping. Is this something all of the kids with MDS do? Kristy Walton wrote: Collin when he gets fustrated or angrey will start to flap his hands and arms and shake. It is very scary to people who first meet him and see this. Collin started doing this when he was about 3, he is now 5 and still does it. The only thing that helps to stop this is to calm him down by TRYING to figure out what happened in the first place. ~Nikki Mother of Collin MDS 5yrs old > >Reply-To: MosaicDS >To: <MosaicDS > >Subject: Re: Concerning Behaviors >Date: Tue, 7 Mar 2006 08:22:06 -0600 > >Since Katy was very young (she is now 14) - when she gets excited about >something, she will flap her hands back and forth really fast - it is kind >of hard to describe, but her arms are going straight out (not up) and her >hands are going. As soon as I just touch her hands, she stops, but we can >be at the movies or just at home and something funny or exciting and she >will flap her hands. I can give her a quick verbal cue or physical cue by >just touching her hands and she will stop. > >With her speech, sometimes she has a hard time getting certain words out or >will stutter. However, when she sings - she NEVER stutters or has problems >with words. Her piano teacher will sometimes put on a prerecorded song on >the digital piano, and she will sing and sing and just make up the words as >she goes along - and never stutter. > >As for adverse behaviors, she has really been as easy child. I cannot >remember one time she ever threw a fit, she never bit anyone and is not a >hitter at all. She hardly even cries about anything. Early on, we >disciplined her the same as our son - made sure she understood why she was >being disciplined (which was usually pops with a designated paddle) and >always disciplined in love. She responded very well to discipline and >hardly got pops at all. > >Please don't think she is a perfect child - she's definitely has her >stubbornness at times, but just being firm with her usually gets her past >it - sometimes she just has to talk it out with herself - she does >self-talk a lot in her room. > >Also something else that I know has helped with her behavior, as with any >child, is her response to the Word of God. I have taught her Bible lessons >since very early. As soon as she became God conscious, she did believe on >the Lord Jesus Christ as her Savior. When it comes to learning God's Word, >there is no handicap - your human IQ is no handicap. God in his Grace has >provided a way for anyone, regardless of IQ, to learn his Word. One of the >very basic principles was " Children, Obey your parents in the Lord, for >this right. " Eph. 6:1 - The principle of Volition, she has freewill and >can choose " yes " or " no " - all of these concepts were taught with lots of >visuals and hands-on manipulative. Right now, we are studying Moses and >the children of Israel and not being a grumbler. Sometimes, Katy doesn't >want to go to her piano lesson and we start talking about our lessons in >Moses and then she can apply what she has learned to her own attitude about >piano lessons. It really does turn things around. > >Not trying to get preachy here but God's Word is alive and powerful and it >does make a difference in the lives of our children. > >Charlotte > > Concerning Behaviors > > > Hi Everyone, > I was wondering if you could characterize some specific behaviors in >your child with MDS. I know that frustration builds when there is a delay >in communication, and that often causes the child to lash out by hitting, >biting, or thowing a fit. (perhaps you can include your input on that) > Also, as I wrote in our last newsletter, Wandering is a big issue with >children with MDS. > Are there other specific behaviors that you are dealing with or have >dealt with? And, what age is or has your child exhibited this behavior? > > Thanks > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Kristy - does not flap; however she is stubborn ( " like mule " we say to her). She will pretend to not hear you if she does not want to do what you are telling her to do. Because she doesn't talk, her teachers sometimes assume she does not understand. But she does, she will manipulate the adults in her life to do the things she does not want to do (like cutting or writing or flopping on the couch at bed time because she knows I can't lift her) and she is too adorable when she does want to do something. She knows how to manipulate people and she is rather good at it. When she is angry or upset she will cry; she will cry if she gets yelled at. She will cry if she is trying to tell you something and you don't understand. She will also cry if her brother gets yelled at. She doesn't like anyone getting in trouble (even the pets). is chaos in motion, she feels a need to dump out any container she finds with anything in it. Cleaning up only if I turn off the TV until it is cleaned up. Darlene - mom to (9) and (7) > > Tim flaps his hands when he is excited. This is interesting that you both > have mentioned hand flapping. Is this something all of the kids with MDS do? > Kristy > > Walton wrote: > Collin when he gets fustrated or angrey will start to flap his hands and > arms and shake. It is very scary to people who first meet him and see > this. > Collin started doing this when he was about 3, he is now 5 and still does > it. The only thing that helps to stop this is to calm him down by TRYING > to > figure out what happened in the first place. > > ~Nikki > Mother of Collin MDS 5yrs old > > > > > >Reply-To: MosaicDS > >To: <MosaicDS > > >Subject: Re: Concerning Behaviors > >Date: Tue, 7 Mar 2006 08:22:06 -0600 > > > >Since Katy was very young (she is now 14) - when she gets excited about > >something, she will flap her hands back and forth really fast - it is > kind > >of hard to describe, but her arms are going straight out (not up) and her > >hands are going. As soon as I just touch her hands, she stops, but we > can > >be at the movies or just at home and something funny or exciting and she > >will flap her hands. I can give her a quick verbal cue or physical cue > by > >just touching her hands and she will stop. > > > >With her speech, sometimes she has a hard time getting certain words out > or > >will stutter. However, when she sings - she NEVER stutters or has > problems > >with words. Her piano teacher will sometimes put on a prerecorded song > on > >the digital piano, and she will sing and sing and just make up the words > as > >she goes along - and never stutter. > > > >As for adverse behaviors, she has really been as easy child. I cannot > >remember one time she ever threw a fit, she never bit anyone and is not a > >hitter at all. She hardly even cries about anything. Early on, we > >disciplined her the same as our son - made sure she understood why she > was > >being disciplined (which was usually pops with a designated paddle) and > >always disciplined in love. She responded very well to discipline and > >hardly got pops at all. > > > >Please don't think she is a perfect child - she's definitely has her > >stubbornness at times, but just being firm with her usually gets her past > >it - sometimes she just has to talk it out with herself - she does > >self-talk a lot in her room. > > > >Also something else that I know has helped with her behavior, as with any > >child, is her response to the Word of God. I have taught her Bible > lessons > >since very early. As soon as she became God conscious, she did believe > on > >the Lord Jesus Christ as her Savior. When it comes to learning God's > Word, > >there is no handicap - your human IQ is no handicap. God in his Grace > has > >provided a way for anyone, regardless of IQ, to learn his Word. One of > the > >very basic principles was " Children, Obey your parents in the Lord, for > >this right. " Eph. 6:1 - The principle of Volition, she has freewill and > >can choose " yes " or " no " - all of these concepts were taught with lots of > >visuals and hands-on manipulative. Right now, we are studying Moses and > >the children of Israel and not being a grumbler. Sometimes, Katy doesn't > >want to go to her piano lesson and we start talking about our lessons in > >Moses and then she can apply what she has learned to her own attitude > about > >piano lessons. It really does turn things around. > > > >Not trying to get preachy here but God's Word is alive and powerful and > it > >does make a difference in the lives of our children. > > > >Charlotte > > > > Concerning Behaviors > > > > > > Hi Everyone, > > I was wondering if you could characterize some specific behaviors in > >your child with MDS. I know that frustration builds when there is a delay > >in communication, and that often causes the child to lash out by hitting, > >biting, or thowing a fit. (perhaps you can include your input on that) > > Also, as I wrote in our last newsletter, Wandering is a big issue > with > >children with MDS. > > Are there other specific behaviors that you are dealing with or have > >dealt with? And, what age is or has your child exhibited this behavior? > > > > Thanks > > Kristy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I think it must be something all kids with MDS and DS do! Thanks, Kim Good Goats www.geocities.com/goodgoats2004/home.html Regards Bullmastiffs www.geocities.com/regardsbullmastiffs/home.html Hoppin' Herd of Hares www.geocities.com/hoppinherdofhares2003/home.html Got Genetics www.geocities.com/gotgenetics/home.html Western Sun www.geocities.com/westernsuntack/ Got Down Syndrome www.geocities.com/dsinfo05/home.html ~Repent For The Kingdom Of Heaven Is At Hand~ a true church www.atruechurch.info Tim flaps his hands when he is excited. This is interesting that you both have mentioned hand flapping. Is this something all of the kids with MDS do?  Kristy Walton wrote:  Collin when he gets fustrated or angrey will start to flap his hands and arms and shake. It is very scary to people who first meet him and see this. Collin started doing this when he was about 3, he is now 5 and still does it. The only thing that helps to stop this is to calm him down by TRYING to figure out what happened in the first place. ~Nikki Mother of Collin MDS 5yrs old > >Reply-To: MosaicDS >To: <MosaicDS > >Subject: Re: Concerning Behaviors >Date: Tue, 7 Mar 2006 08:22:06 -0600 > >Since Katy was very young (she is now 14) - when she gets excited about >something, she will flap her hands back and forth really fast - it is kind >of hard to describe, but her arms are going straight out (not up) and her >hands are going. As soon as I just touch her hands, she stops, but we can >be at the movies or just at home and something funny or exciting and she >will flap her hands. I can give her a quick verbal cue or physical cue by >just touching her hands and she will stop. > >With her speech, sometimes she has a hard time getting certain words out or >will stutter. However, when she sings - she NEVER stutters or has problems >with words. Her piano teacher will sometimes put on a prerecorded song on >the digital piano, and she will sing and sing and just make up the words as >she goes along - and never stutter. > >As for adverse behaviors, she has really been as easy child. I cannot >remember one time she ever threw a fit, she never bit anyone and is not a >hitter at all. She hardly even cries about anything. Early on, we >disciplined her the same as our son - made sure she understood why she was >being disciplined (which was usually pops with a designated paddle) and >always disciplined in love. She responded very well to discipline and >hardly got pops at all. > >Please don't think she is a perfect child - she's definitely has her >stubbornness at times, but just being firm with her usually gets her past >it - sometimes she just has to talk it out with herself - she does >self-talk a lot in her room. > >Also something else that I know has helped with her behavior, as with any >child, is her response to the Word of God. I have taught her Bible lessons >since very early. As soon as she became God conscious, she did believe on >the Lord Jesus Christ as her Savior. When it comes to learning God's Word, >there is no handicap - your human IQ is no handicap. God in his Grace has >provided a way for anyone, regardless of IQ, to learn his Word. One of the >very basic principles was " Children, Obey your parents in the Lord, for >this right. "  Eph. 6:1 - The principle of Volition, she has freewill and >can choose " yes " or " no " - all of these concepts were taught with lots of >visuals and hands-on manipulative. Right now, we are studying Moses and >the children of Israel and not being a grumbler. Sometimes, Katy doesn't >want to go to her piano lesson and we start talking about our lessons in >Moses and then she can apply what she has learned to her own attitude about >piano lessons. It really does turn things around. > >Not trying to get preachy here but God's Word is alive and powerful and it >does make a difference in the lives of our children. > >Charlotte > >  Concerning Behaviors > > >  Hi Everyone, >    I was wondering if you could characterize some specific behaviors in >your child with MDS. I know that frustration builds when there is a delay >in communication, and that often causes the child to lash out by hitting, >biting, or thowing a fit. (perhaps you can include your input on that) >    Also, as I wrote in our last newsletter, Wandering is a big issue with >children with MDS. >    Are there other specific behaviors that you are dealing with or have >dealt with? And, what age is or has your child exhibited this behavior? > >    Thanks >    Kristy > > >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Kristy: Maitlan does not flap his hands. He is more like he pretends he did not hear you. He also crys a lot when he is upset. , Mellissa 22, Morghan 19, 16, Maitlan (mds) 3, Mcklaine 9 months -- Thanks, Tacy www.cwlight.com/asap www.alwaysspecialandpersonal.com --------- Concerning Behaviors > > > > > > Hi Everyone, > > I was wondering if you could characterize some specific behaviors in > >your child with MDS. I know that frustration builds when there is a delay > >in communication, and that often causes the child to lash out by hitting, > >biting, or thowing a fit. (perhaps you can include your input on that) > > Also, as I wrote in our last newsletter, Wandering is a big issue > with > >children with MDS. > > Are there other specific behaviors that you are dealing with or have > >dealt with? And, what age is or has your child exhibited this behavior? > > > > Thanks > > Kristy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Hmm... I don't consider it too 'concerning', but , 13, like, was it Nat?, has a whole cast and crew of imaginary friends, names and all, and he has very animated, lively conversations with them. For the most part, he does control this in public, and in the classroom as far as I know, but at home, when he can go alone into his room, he really lets go!! I've seen him start to get into it in the car when we're all driving, and we just have to remind him to " turn the volume down " on his " friends " and sound effects, and you can tell he was in his own lil world and didn't realize he was doing it that loudly! ~ANGEL~ Mom to (13) Mosaic Down Syndrome/Hirschsprung's Disease and Lance (17), Tyler (14), (11) Jaeda (9) and Shayne (3) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Nat isn't a flapper either. So, I think this is a behavior that can occur. Now, Nat is a thumb sucker and talks out loud to himself and his imaginary friends!! It is challenging, at times, to see the reactions of others seeing an 11yo who is almost 5' tall sucking his thumb and having a delightful conversation with himself!! LOL!! He, too, is my easier one to discipline. He does need a lot of reminding, as his short term memory is horrible. I also agree with Charlotte that Nat understand's the Kingdom of God so much better than I probably will ever be able. He is able to love with such a pure and innocent heart. For example, on Sunday, when the collection plate was being passed, he realized that is 4 other sibs didn't have any money, (dad was in the vestible with the 2yo!!). Nat generously went into his pocket and brought out 4 quarters, the last of his money for the rest of the month, and gladly gave it up so that they would be able to have collection money. Needless to say, I was a bit misty-eyed!!! One thing that is difficult, at times, is trying to find a gift that is age appropriate, yet he'd like. It is difficult to find Bob the Builder or Dora stuff for an 11yo!! It gets challenging. However, he is a guy with very simple tastes, cars, music ,swings, and cheeseburgers!!! Irene who now is in Houston, (partially thanks to Kristy!!!! LOL!!!) and mom to Nat 11 MDS, Luke 9, Emilia 7, Lillian 4, and Ikey 2 Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Wow my son does it too! My daughter does it as well and she doesn't have mds, but she may be copying her brother. This is interesting. Brannon was the first child I ever seen do this. a and Brannon 5 w/mds and Gabby 4 -- Re: Concerning Behaviors >Date: Tue, 7 Mar 2006 08:22:06 -0600 > >Since Katy was very young (she is now 14) - when she gets excited about >something, she will flap her hands back and forth really fast - it is kind >of hard to describe, but her arms are going straight out (not up) and her >hands are going. As soon as I just touch her hands, she stops, but we can >be at the movies or just at home and something funny or exciting and she >will flap her hands. I can give her a quick verbal cue or physical cue by >just touching her hands and she will stop. > >With her speech, sometimes she has a hard time getting certain words out or >will stutter. However, when she sings - she NEVER stutters or has problems >with words. Her piano teacher will sometimes put on a prerecorded song on >the digital piano, and she will sing and sing and just make up the words as >she goes along - and never stutter. > >As for adverse behaviors, she has really been as easy child. I cannot >remember one time she ever threw a fit, she never bit anyone and is not a >hitter at all. She hardly even cries about anything. Early on, we >disciplined her the same as our son - made sure she understood why she was >being disciplined (which was usually pops with a designated paddle) and >always disciplined in love. She responded very well to discipline and >hardly got pops at all. > >Please don't think she is a perfect child - she's definitely has her >stubbornness at times, but just being firm with her usually gets her past >it - sometimes she just has to talk it out with herself - she does >self-talk a lot in her room. > >Also something else that I know has helped with her behavior, as with any >child, is her response to the Word of God. I have taught her Bible lessons >since very early. As soon as she became God conscious, she did believe on >the Lord Jesus Christ as her Savior. When it comes to learning God's Word, >there is no handicap - your human IQ is no handicap. God in his Grace has >provided a way for anyone, regardless of IQ, to learn his Word. One of the >very basic principles was " Children, Obey your parents in the Lord, for >this right. " Eph. 6:1 - The principle of Volition, she has freewill and >can choose " yes " or " no " - all of these concepts were taught with lots of >visuals and hands-on manipulative. Right now, we are studying Moses and >the children of Israel and not being a grumbler. Sometimes, Katy doesn't >want to go to her piano lesson and we start talking about our lessons in >Moses and then she can apply what she has learned to her own attitude about >piano lessons. It really does turn things around. > >Not trying to get preachy here but God's Word is alive and powerful and it >does make a difference in the lives of our children. > >Charlotte > > Concerning Behaviors > > > Hi Everyone, > I was wondering if you could characterize some specific behaviors in >your child with MDS. I know that frustration builds when there is a delay >in communication, and that often causes the child to lash out by hitting, >biting, or thowing a fit. (perhaps you can include your input on that) > Also, as I wrote in our last newsletter, Wandering is a big issue with >children with MDS. > Are there other specific behaviors that you are dealing with or have >dealt with? And, what age is or has your child exhibited this behavior? > > Thanks > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Aidan doesn't do the hand flapping, but he'll do this funny laughing/screaming thing when he gets excited that is really hard to tone down because it's so loud. Gets us a lot of irritating looks. but Let's see, he wanders off and has ever since he learned how to walk. Lately, now that his sister is 2 we can sometimes distract him by holding her hand and being the big brother (he LOVES to take charge and take care of her). He throws tantrums, mostly when he gets tired, which is still more often than most kids his age, or he acts like he can't hear you when he doesn't want to do something. He goes to school 4 days out of the week and doesn't get a nap those days, which completely wears him out. I think all the school activities, thinking, interacting, etc. makes him tire easily. His tantrums are more like a 2-year old where he throws himself down on the ground and screams. One of the behavior things that I'm curious about lately is a lack of inhibitions when it comes to personal space. He often touches people he doesn't know - he'll go up to strangers and " spank " them and laugh, which makes for a lot of uncomfortable and annoyed responses. Or he'll reach out and stroke their arm (the way you'd do if you were trying to give someone sympathy). He also likes to take his clothes off and run around naked, but we can't figure out how to get through to him that these kind of behaviors are generally considered inappropriate. I get frustrated, not wanting people to think he's " weird " because he's my sweet little Aidan, but I have no idea how to deal with this one. I have no idea where it even comes from! I understand kids at this age and exploring their bodies (he's almost 4), but there has to be a line for them to function in society. Any thoughts? Aidan 3 1/2 (MDS), a 2, 1 month Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I forgot to mention that Aidan also sings much better than he talks. He can memorize whole songs and I understand them much better than when he's telling me something. I always found this interesting, and even more so now that I've read someone else has a child that does that. There must be something to music. Aidan 3 1/2 (MDS), a 2, 1 month --------------------------------- Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Craig does " something " with his hands also though not really flapping. He puts his hands near his face under his chin and with a couple of the fingers folded in wiggles the remainder of them rapidly with his face slightly bent. We currently have aggression behavior (some yelling and swearing and some foot kicking or fist or elbow pounding) whenever he doesn't want instruction/guidance or is transitioning from one activity to another even when its something he wants to do. Terry, mom to Craig 17mds Concerning Behaviors >> >> >> Hi Everyone, >> I was wondering if you could characterize some specific behaviors in >>your child with MDS. I know that frustration builds when there is a delay >>in communication, and that often causes the child to lash out by hitting, >>biting, or thowing a fit. (perhaps you can include your input on that) >> Also, as I wrote in our last newsletter, Wandering is a big issue >> with >>children with MDS. >> Are there other specific behaviors that you are dealing with or have >>dealt with? And, what age is or has your child exhibited this behavior? >> >> Thanks >> Kristy >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Terry, Has Craig been diagnosed with Autism or does he have " Autistic Tendencies " ? Tim has Asperger syndrome, so I was wondering about Craig. Before he transitions, does he get warnings? I have always had to warn Tim before he has to change to something else. (15 min...10 min..5 min) This has always helped him to transition to other things. Also, he tends to get real upset if I ask him to do something and then when he is through I ask him to do something else! He thinks I am trying to trick him I guess. He always asks me why I didn't tell him that at first. So...this is something new with him. I have always been used to having to tell him things step by step and now he wants all the details at once! LOL Time for me to change some I guess! Kristy Terry Van Evera wrote: Craig does " something " with his hands also though not really flapping. He puts his hands near his face under his chin and with a couple of the fingers folded in wiggles the remainder of them rapidly with his face slightly bent. We currently have aggression behavior (some yelling and swearing and some foot kicking or fist or elbow pounding) whenever he doesn't want instruction/guidance or is transitioning from one activity to another even when its something he wants to do. Terry, mom to Craig 17mds Concerning Behaviors >> >> >> Hi Everyone, >> I was wondering if you could characterize some specific behaviors in >>your child with MDS. I know that frustration builds when there is a delay >>in communication, and that often causes the child to lash out by hitting, >>biting, or thowing a fit. (perhaps you can include your input on that) >> Also, as I wrote in our last newsletter, Wandering is a big issue >> with >>children with MDS. >> Are there other specific behaviors that you are dealing with or have >>dealt with? And, what age is or has your child exhibited this behavior? >> >> Thanks >> Kristy >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi, I just had to mention that who is three has been doing the arm and hand flapping since he was one. And he only does this when he gets excited too! Concerning Behaviors >> >> >> Hi Everyone, >> I was wondering if you could characterize some specific behaviors in >>your child with MDS. I know that frustration builds when there is a delay >>in communication, and that often causes the child to lash out by hitting, >>biting, or thowing a fit. (perhaps you can include your input on that) >> Also, as I wrote in our last newsletter, Wandering is a big issue >> with >>children with MDS. >> Are there other specific behaviors that you are dealing with or have >>dealt with? And, what age is or has your child exhibited this behavior? >> >> Thanks >> Kristy >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Luanne, It's funny because the more I read everyone's descriptions the more it sounds like my son. Aidan's only 3 1/2 and took us a whole year for the potty training to finally catch on, then another 6 months or so for it to be consistent. Then he was doing great, sleeping through the night dry and everything. About a month ago he started wetting his pants again during the day and then when we put him to bed at night he would wake up wet several times. I told my husband I wonder if there's something that would cause a person to suddenly lose the ability to hold it in - because he used to hold it for a very long time until we had to remind him to go. Anyway, he also used to bite and hit - A LOT - when he'd get frustrated with people, but most of it was because of his lack of communication. Now that he's in preschool and they focus a lot on repetitive reminders (like using signs for " my turn " and holding out his hand) he no longer bites. He does still hit his sister a LOT when he gets annoyed with her and has to be reminded CONSTANTLY to use his words. He definitely shows frustration with his body actions and screaming a lot more than pouting or tattling I see from his cousins. Kristy, I love these kind of comparisons because it gives a lot more insight on what kinds of behaviors are to be expected and for me, reminds me to be more patient with him as I see that other people are going through the same things. Plus, with all the unknowns about MDS, it's nice to have so many norms that we can still find through communicating with one another! Aidan 3 1/2 mds, a 2, 1 month Luanne Eckert wrote: Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 , I agree that this is a GREAT discussion! We always wonder what is " normal " and what isn't! I know that I wondered it all the time that Tim was growing up. One thing that I did discover in raising him though is no matter the reason for the behavior, if it was unacceptable, it was unacceptable! It may take longer for children with MDS to learn what is and is not acceptable behavior, but in order for them to get along with the general population they still have to learn it! As for the potty accidents it looks to me as he is regressing because of new baby . I would make a big deal about what a big boy he is, but also make sure he gets extra cuddling. I know your hands must be really full with 3 babies in the house! Kristy and wrote: Luanne, It's funny because the more I read everyone's descriptions the more it sounds like my son. Aidan's only 3 1/2 and took us a whole year for the potty training to finally catch on, then another 6 months or so for it to be consistent. Then he was doing great, sleeping through the night dry and everything. About a month ago he started wetting his pants again during the day and then when we put him to bed at night he would wake up wet several times. I told my husband I wonder if there's something that would cause a person to suddenly lose the ability to hold it in - because he used to hold it for a very long time until we had to remind him to go. Anyway, he also used to bite and hit - A LOT - when he'd get frustrated with people, but most of it was because of his lack of communication. Now that he's in preschool and they focus a lot on repetitive reminders (like using signs for " my turn " and holding out his hand) he no longer bites. He does still hit his sister a LOT when he gets annoyed with her and has to be reminded CONSTANTLY to use his words. He definitely shows frustration with his body actions and screaming a lot more than pouting or tattling I see from his cousins. Kristy, I love these kind of comparisons because it gives a lot more insight on what kinds of behaviors are to be expected and for me, reminds me to be more patient with him as I see that other people are going through the same things. Plus, with all the unknowns about MDS, it's nice to have so many norms that we can still find through communicating with one another! Aidan 3 1/2 mds, a 2, 1 month Luanne Eckert wrote: Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Luanne, It seems that I used to have the same problem with Tim when he was younger. I would always warn him when he had to wrap up his play time and I would ask him to invite his " friends " along if we needed to go somewhere. This reminds me of a really funny story that happened to us last year with Garrett (non-MDS). During a baseball game he was in the outfield talking to himself and not really paying attention. I finally walked out there and told him that he was going to get hit by a ball if he didn't pay attention. He said, " It isn't my fault! Bob keeps distracting me! " LOL " Bob " is his imaginary friend! He realizes that Bob isn't real, but he likes to pretend that he is. Kristy Luanne Eckert wrote: Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 does not flap hands, but she has always loved any toy that flaps. She has one major imaginary friend who is usually responsible for getting her in trouble. She engages in alot of fantasy play. is also a runner, which is a big concern at school this year. I think the running has alot to do with anxiety. She has many aggressive behaviors - hitting, swearing, spitting, which usually happen in a rage or at least when she's edgy. For some children having an additional diagnosis makes addressing these behaviors rather difficult. has excellent communication skills. But, although she talks like a 12 year old she doesn't process or reason like a 12 year old - and that is a huge problem when the people who are dealing with her don't understand that. Up until the last year was still having regular accidents and was in pull-ups at night. Compared to everything else we deal with I was content for her to be in pull-ups as long as they made ones big enough for her. Patience paid off. Sue (Norah 17, 12 MDS & ADHD) Re: Concerning Behaviors Luanne, It seems that I used to have the same problem with Tim when he was younger. I would always warn him when he had to wrap up his play time and I would ask him to invite his " friends " along if we needed to go somewhere. This reminds me of a really funny story that happened to us last year with Garrett (non-MDS). During a baseball game he was in the outfield talking to himself and not really paying attention. I finally walked out there and told him that he was going to get hit by a ball if he didn't pay attention. He said, " It isn't my fault! Bob keeps distracting me! " LOL " Bob " is his imaginary friend! He realizes that Bob isn't real, but he likes to pretend that he is. Kristy Luanne Eckert wrote: Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Sue, With the pull up thing, did you just wait for her to grow out of it, or did you get her up at night to go? So far we have been taking the attitude of letting her grow out of it, and making sure she goes before bed. Luanne Caregar@... wrote: does not flap hands, but she has always loved any toy that flaps. She has one major imaginary friend who is usually responsible for getting her in trouble. She engages in alot of fantasy play. is also a runner, which is a big concern at school this year. I think the running has alot to do with anxiety. She has many aggressive behaviors - hitting, swearing, spitting, which usually happen in a rage or at least when she's edgy. For some children having an additional diagnosis makes addressing these behaviors rather difficult. has excellent communication skills. But, although she talks like a 12 year old she doesn't process or reason like a 12 year old - and that is a huge problem when the people who are dealing with her don't understand that. Up until the last year was still having regular accidents and was in pull-ups at night. Compared to everything else we deal with I was content for her to be in pull-ups as long as they made ones big enough for her. Patience paid off. Sue (Norah 17, 12 MDS & ADHD) Re: Concerning Behaviors Luanne, It seems that I used to have the same problem with Tim when he was younger. I would always warn him when he had to wrap up his play time and I would ask him to invite his " friends " along if we needed to go somewhere. This reminds me of a really funny story that happened to us last year with Garrett (non-MDS). During a baseball game he was in the outfield talking to himself and not really paying attention. I finally walked out there and told him that he was going to get hit by a ball if he didn't pay attention. He said, " It isn't my fault! Bob keeps distracting me! " LOL " Bob " is his imaginary friend! He realizes that Bob isn't real, but he likes to pretend that he is. Kristy Luanne Eckert wrote: Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Luanne, We did just let her grow out of it. I figured that when her body was ready she'd stay dry and she has - it just took longer than most kids. good luck! Sue Re: Concerning Behaviors Luanne, It seems that I used to have the same problem with Tim when he was younger. I would always warn him when he had to wrap up his play time and I would ask him to invite his " friends " along if we needed to go somewhere. This reminds me of a really funny story that happened to us last year with Garrett (non-MDS). During a baseball game he was in the outfield talking to himself and not really paying attention. I finally walked out there and told him that he was going to get hit by a ball if he didn't pay attention. He said, " It isn't my fault! Bob keeps distracting me! " LOL " Bob " is his imaginary friend! He realizes that Bob isn't real, but he likes to pretend that he is. Kristy Luanne Eckert wrote: Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Sue, I totally understand the processing issue! That was our biggest problem when Tim was in school. Because he spoke very intelligently, the school expected him to understand everything. He, too, has ADHD, so that was a BIG issue with us. In hind site, I think I should have written out a letter to be included in his IEP. In the letter, I could have put things about his processing issues and his attention issues. The school knew about these problems, but I think they were ignored. Kristy Caregar@... wrote: does not flap hands, but she has always loved any toy that flaps. She has one major imaginary friend who is usually responsible for getting her in trouble. She engages in alot of fantasy play. is also a runner, which is a big concern at school this year. I think the running has alot to do with anxiety. She has many aggressive behaviors - hitting, swearing, spitting, which usually happen in a rage or at least when she's edgy. For some children having an additional diagnosis makes addressing these behaviors rather difficult. has excellent communication skills. But, although she talks like a 12 year old she doesn't process or reason like a 12 year old - and that is a huge problem when the people who are dealing with her don't understand that. Up until the last year was still having regular accidents and was in pull-ups at night. Compared to everything else we deal with I was content for her to be in pull-ups as long as they made ones big enough for her. Patience paid off. Sue (Norah 17, 12 MDS & ADHD) Re: Concerning Behaviors Luanne, It seems that I used to have the same problem with Tim when he was younger. I would always warn him when he had to wrap up his play time and I would ask him to invite his " friends " along if we needed to go somewhere. This reminds me of a really funny story that happened to us last year with Garrett (non-MDS). During a baseball game he was in the outfield talking to himself and not really paying attention. I finally walked out there and told him that he was going to get hit by a ball if he didn't pay attention. He said, " It isn't my fault! Bob keeps distracting me! " LOL " Bob " is his imaginary friend! He realizes that Bob isn't real, but he likes to pretend that he is. Kristy Luanne Eckert wrote: Mahrya pretends all the time and has a hard time transitioning to " real life " when she is in the middle of role playing something. She seems to need to finish with the pretend or she gets really put out. She doesn't do the hand or arm flapping that has been mentioned. She doesn't seem to have rpoblems with hitting or biting, but she has pretty good communtication skills, so that probably helps. One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? Luanne Kristy Colvin wrote: Hi Everyone, I was wondering if you could characterize some specific behaviors in your child with MDS. I know that frustration builds when there is a delay in communication, and that often causes the child to lash out by hitting, biting, or thowing a fit. (perhaps you can include your input on that) Also, as I wrote in our last newsletter, Wandering is a big issue with children with MDS. Are there other specific behaviors that you are dealing with or have dealt with? And, what age is or has your child exhibited this behavior? Thanks Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 In a message dated 3/8/2006 7:13:11 PM Eastern Standard Time, luannee@... writes: One of the main things we are having issues with right now (Mahrya is 9) is wetting her pants. She had been very reliable, but all of the sudden she is having a few accidents a week. She has yet to stay dry at night....ever. Anyone else have these issues? LUANNE: Just wanted you to know that Karlee too has been reliable. She has been potty trained since two and the only time she has an accident is when she is really tickled!!!! So, when she laughs we hold our breath! LOL! But, I too do that, so it's probably a girl thing. But, back to why I emailed at the beginning of the school year Karlee had came home two days with damp panties and had two accidents after coming home, so my sister (who is an R.N.) said take her to the dr. for a urine test to see if she had a urinary tract infection. SHE DID! I was so glad she told me! From now on, if I feel she is having more that a " laughing pee pee " we will go the ped. TTYS! Beets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 - is very immature for her age - she is 7 but prefers to be with 5 year old boys (mainly because they don't talk much and don't expect her too either). But she is very social and tries to hang out with the older girls but they don't include her because she doesn't act like them and talk or whisper. She will follow them around like a puppy but they don't include her and it hurts me to see that. Darlene - mom to (9) and (7) > > Hi All! > > .I was interested to see the questions here regarding our children's > behaviors...Now we all know that for our children Down Syndrome is somewhat > of a Spectrum Disorder...some our children look typically DS and some do > not...some fall right in the middle...Some have average or above average IQs > and some do not etc....I would like to know how everyone elses children are > socially...do they have a lot of friends? Do you think that they act > immature?...Do they tend to talk out of context?...Im asking this because > Ariel, who some of you may remember was diagnosed with as High Functioning > Autistic a few years back, is definitely socially immature...I have seen > many posts over the years concerning children that had the same issues. As > our children get older, Ariel is 12, how are their friendships, how do they > relate to their peers? For Ariel friendships have gotten harder as she has > gotten older...how about for anyone else? > > Sincerely, > Mom to Ariel 12 MDS, and the twins 7 > > > Become a member of IMDSA today at http://www.imdsa.com > ************************************************* > Contact IMDSA Today at: > IMDSA~PO Box 1052~lin,TX~77856~USA~1- > ************************************************* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Hi , This has always been the biggest issue that we have faced with Tim. Although he has never been officially diagnosed with Asperger syndrome, I know without a doubt that is what he has. He meets every single criteria except 3 and those 3 things he used to do! Tim is socially immature and as he grew older he had a terrible time making friends. I can say that he did finally make good friends with 3 other teens his age several years back and they were inseperable until graduation. The other boys have moved off to persue carreers, so that is kinda sad now that he doesn't have those boys now. Tim does talk out of context sometimes and it drives me crazy! LOL I think he has trouble processing information spoken to him. Sometimes, when I am talking with him all of the sudden he will ask a question about what I am saying and it has NOTHING to do with what I am saying! And, he does have trouble talking to peers that he is not close to. He starts acting silly or he will just say nothing at all. Now, the good news is, he is working really hard at improving these problems in his life and I think he is doing a wonderful job. I think that when he was in school, those around him made him very nervous and that made him act the way he did. Since he has been out of school and just home with me, he has acted totally different. While in school, he would peel his skin and make sores, he would make noises with his mouth, and he couldn't interact with his peers appropriately. Now, he has NO sores at all! He rarely makes the noises with his mouth, in fact, I haven't heard those noises in a long time! (lol watch him do it today!) and when he goes to his karate class he seems to be acting much better. He talks with the kids there and rarely acts out. So, my thought is, yes, too many people make him nervous. Plus, the kids at school picked on him and that made matters worse. But, in the past few years, I have seen a tremendous difference in his behavior and he is maturing a lot. Kristy ajaaj@... wrote: Hi All! ..I was interested to see the questions here regarding our children's behaviors...Now we all know that for our children Down Syndrome is somewhat of a Spectrum Disorder...some our children look typically DS and some do not...some fall right in the middle...Some have average or above average IQs and some do not etc....I would like to know how everyone elses children are socially...do they have a lot of friends? Do you think that they act immature?...Do they tend to talk out of context?...Im asking this because Ariel, who some of you may remember was diagnosed with as High Functioning Autistic a few years back, is definitely socially immature...I have seen many posts over the years concerning children that had the same issues. As our children get older, Ariel is 12, how are their friendships, how do they relate to their peers? For Ariel friendships have gotten harder as she has gotten older...how about for anyone else? Sincerely, Mom to Ariel 12 MDS, and the twins 7 Become a member of IMDSA today at http://www.imdsa.com ************************************************* Contact IMDSA Today at: IMDSA~PO Box 1052~lin,TX~77856~USA~1- ************************************************* Quote Link to comment Share on other sites More sharing options...
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