UK POLICY CHANGE NOW campaign.

[Guest guest]

- Worldwide participation encouraged!

We've updated the campaign instructions and are now requesting people to Bcc:

the campaign email address (instead of Cc:) This should reduce the risk of

emails being picked up by spam filters, we also suggest people include their own

subject title in the emails as many messages with the same subject line are more

likely to end up in spam filters.

The ME/CFS patient community, sufferers, family members and friends; it's time

to join together once again and demand policy change in the UK!

The " POLICY CHANGE NOW " campaign has just four simple steps or AIMs and taking

part in our campaign is easy. For two weeks, 30th October - 12th November, send

a daily email as follows:

1. Address your email

2. Inform the campaign Bcc: ukpolicychange@...

3. Message, copy and paste our message

4. Start over; repeat these actions once each day.

Sample message: (adjust as necessary)

To: lansleya@..., dhmail@...

Dear Rt Hon. Lansley MP,

Stop allowing policy to support the refuted psychiatric model of ME/CFS, which

presumes that ME/CFS has no organic basis and is therefore contradictory to

current science and research on XMRV and other viruses. Pledge to make a

definitive policy change now. Patients and their families are waiting.

Jane , NewcastleHousebound and bed-bound since 1999

Send to:

1) Rt Hon. Lansley, Secretary of State for Health

Email: lansleya@..., dhmail@...

2) Dame Sally Davies, Chief Medical Officer at the Department of Health

Email: CMOweb@..., sally.davies@...

3) Sir Savill, Chief Executive of the Medical Research Council

Email: .Willmott@... (personal assistant's name)

Full contact info:

1) Rt Hon. Lansley MP, Secretary of State for Health

Email: lansleya@..., dhmail@...

Telephone: +44 (0)20 7210 4850

Textphone: +44 (0)20 7210 5025 (Mon to Fri 8:30am – 5:00pm)

Fax: +44 (0)20 7210 5952

2) Dame Sally Davies, Chief Medical Officer, Department of Health

Email: CMOweb@...

Telephone: +44 (0)20 7210 4850

Textphone: +44 (0)20 7210 5025 (Mon to Fri 8:30am – 5:00pm)

Fax: +44 (0)20 7210 5952

3) Sir Savill, Chief Executive of the Medical Research council

Email: .Willmott@... (personal assistant's name)

Telephone: +44 (0)20 7670 5155

Fax: +44 (0)20 7580 4369