new member

[Guest guest]

Extraneous Text deleted by Moderator

Hi Marge:

Welcome to the group and I hope you find the information and support you need

here. I also have fibromyalgia but my main disease is panhypopituitarism

(pituitary failure). I also have osteoporosis and heart valve disease. I am

married 19 years and have two grown kids from my first marriage and also have

five grandkids.

Do you have a doctor who is helping to treat your pain? Do you take meds for

pain? I take hydrocodone but after two years of taking it, I no longer feel

like this medication is working very well and so I have quite a lot of pain each

day. It's hard to know how to be creative about living with pain because I

really don't believe it's right for people to have to cope with pain while

trying to deal with their illness and all of life's responsibilities. I know

lots of people think that grinning and bearing pain is a very character-building

thing to do, but I'm not one of them. I've been reading and learning as much

about pain as I can and found that one's health is made worse if pain is

present.

I see from your signature that you enjoy needlework. I love to quilt and

embroider when I have time and don't have too much pain to deal with. Hope you

enjoy the group!

[Guest guest]

Extraneous Text deleted by Moderator

Hi Marge,

My name is Norma. I am fairly new to this group also, and wanted to say welcome!

I also have arthritis in my back, and all the happy stuff that goes along with

it! I moved to Florida two years ago (from Massachusetts) hoping the warmer

climate would alleviate some of my chronic pain....it hasn't worked!! I've

discovered the pain follows the body everywhere!! I choose not to take narcotic

pain meds because in the earlier years of living with my condition, I got, " in a

bad way with them. " I have discovered that faith, and talking to other people

who are suffering chronically, helps make my life bearable every day. I try not

to get too far ahead of myself, ( take one day at a time,) and I pray allot!!

But a good sense of humor, warped or not, never hurts anybody!! Take Care, Norma

[Guest guest]

Hello Everyone,

I was holiday shopping with my sweet wife yesterday and noticed a product that

may be of great use to those of us with Arthritis in our hands. It is an

electric tool that washes dishes. It is put out by Dawn, I guess the same makers

of the diswashing soap, anyway you hold it in your hand and the end of it turns

and cleans the dishes. It is in the perfect shape to wash glasses.

Thought I would pass this on as I am always looking for products to make my life

a little easier and thus less painful.

Wishing everyone happy and pain free holidays.

Huber@...

[Guest guest]

Hi, Becky and welcome! Sounds like you've sure

had your share of maladies, I'm so sorry. You are

correct that Hashi's is just a disease that causes

an autoimmune response to the thyroid.. if you've

been hypo for 7 years, it's likely you've had it all

along and never been checked for it? Very odd

that your PCP doesn't know how common it is.

I had to ask my doc to test for the antibodies,

most docs don't consider it important to know.

In truth, I'm not sure how different we are from

hypo folks without Hashi's, but I think our

symptoms can be more dramatic and more

difficult to diagnose whether we're hypo or hyper.

For instance, MVP is very common as is anxiety

and general palpitations even when you're just

hypo -- I've read this is the case with Hashi's

and not really with just hypothyroidism..

Main thing for you to be aware of is to not take

supplements that boost your immune system

like echinacea, plus most cold medicines are out

(they will tell you on the package). You may find

some vitamins will give you trouble too although

sounds like you found a mineral regimen to work

for you. See the Links section for foods you don't

want to consume too much of (like soy).

We're all different in how we respond to

this disease.. some people have very few problems

at all... hope this board is helpful to you!

~

>

> Hello to all. I'm Becky, 45, and have had hyopthyroidism for over 7

> years. Just the week before Christmas I was diagnosed with autoimmune

> thyroid disease. I'm assuming Hashi's, and had to ask for info over

> the phone when I got my results. (Was sent a tiny pamphlet, not much

> info at all...!)

> I'm scheduled to return for recheck Feb. 14th. All I know about this

> is what I've learned from the web. I learned we have a tendency to

> develop painful tendonitis and bursitis in our shoulders ... I have

> that as well as a torn rotator cuff. I'm 3 years post-op from gastric

> bypass surgery. I know how to take my 150mcg. Synthroid, as I've been

> on it for 7 years, but I pay attention to it more due to the calcium,

> iron and protien I must take daily for my malabsorption due to my

> bypass. I received the autoimmune news the day before I was diagnosed

> with osteoporosis, and just last thursday found the rotator cuff tear

> by MRI. So many things all at once! I'm awaiting my 3-year blood

> workup results. So far I've been good, so the osteoporosis was a

> great surprise. (Had a DEXA scan...)

>

> Basically I'm totally clueless as to what to expect. I had to change

> nothing as far as my synthroid. Having to wait until Feb. 14 is

> killing me, just as is waiting to see the Orthopedic on Jan. 24. I do

> have MVP, and am going to see cardio doc in Feb, as I had severe chest

> pains from taking Actonel for my osteoporosis. I was switched to

> liquid Fosamax, and I've been okay with that form for three weeks

> (once a week doses).

>

> I don't really have any questions, except - What the heck is this and

> how will it affect me? Being hypo before may make this not a big

> deal, but I wouldn't know. My PCP has only seen one case of it, back

> in med school, and he's in his 70's, I'd guess. *sigh*

>

> I'll start reading back posts to see if anything sounds like me. Oh,

> I have also been told by my rheumatologist that he thinks I have

> Fibromyalgia, as the symptoms supposedly cross.

>

> Thanks for letting me join, and hopefully learn about my new Hashi's!

>

> Becky

[Guest guest]

Hi everyone,

I couldn't write for a long time but have been reading the discussions. Since the last time I wrote I have lost 7 kg and reached my ideal weight. I also continue the Pilates lessons. So everything was going well really. 3 weeks ago I started feeling really bad and suddenly had heavy bleeding (not a period) , in the end I had to go to the hospital because my blood pressure was so low. I also had palpitations, tingling at one side of my head and difficulty in breathing and started having panic attacks. My gynaecologist said there was nothing wrong and no reason for this bleeding. I just wondered if anyone with Hashimoto's has experienced something like this. Thank god the bleeding has stopped (I am 33 and never had any bleeding as bad as this even after giving birth!). This week I feel so much better and hope this wont happen again. I have never felt so bad in my life! I also had a thryoid test that week the T4 is 1.62, T3 is 3.7 and TSH İS 1.33. The antibodies are 1430. I have also became anemic and was given iron supplements. Any comments will be appreciated...

Thanks,

Yonca

-----Original Message-----From: suuzin Sent: Friday, January 14, 2005 8:30 PMTo: Thyroiditis Subject: Re: New memberHi, Becky and welcome! Sounds like you've sure had your share of maladies, I'm so sorry. You arecorrect that Hashi's is just a disease that causesan autoimmune response to the thyroid.. if you'vebeen hypo for 7 years, it's likely you've had it allalong and never been checked for it? Very odd that your PCP doesn't know how common it is.I had to ask my doc to test for the antibodies, most docs don't consider it important to know.In truth, I'm not sure how different we are from hypo folks without Hashi's, but I think our symptoms can be more dramatic and moredifficult to diagnose whether we're hypo or hyper. For instance, MVP is very common as is anxiety and general palpitations even when you're just hypo -- I've read this is the case with Hashi's and not really with just hypothyroidism..Main thing for you to be aware of is to not takesupplements that boost your immune systemlike echinacea, plus most cold medicines are out(they will tell you on the package). You may findsome vitamins will give you trouble too althoughsounds like you found a mineral regimen to workfor you. See the Links section for foods you don'twant to consume too much of (like soy). We're all different in how we respond to this disease.. some people have very few problemsat all... hope this board is helpful to you!~ > > Hello to all. I'm Becky, 45, and have had hyopthyroidism for over 7> years. Just the week before Christmas I was diagnosed with autoimmune> thyroid disease. I'm assuming Hashi's, and had to ask for info over> the phone when I got my results. (Was sent a tiny pamphlet, not much> info at all...!)> I'm scheduled to return for recheck Feb. 14th. All I know about this> is what I've learned from the web. I learned we have a tendency to> develop painful tendonitis and bursitis in our shoulders ... I have> that as well as a torn rotator cuff. I'm 3 years post-op from gastric> bypass surgery. I know how to take my 150mcg. Synthroid, as I've been> on it for 7 years, but I pay attention to it more due to the calcium,> iron and protien I must take daily for my malabsorption due to my> bypass. I received the autoimmune news the day before I was diagnosed> with osteoporosis, and just last thursday found the rotator cuff tear> by MRI. So many things all at once! I'm awaiting my 3-year blood> workup results. So far I've been good, so the osteoporosis was a> great surprise. (Had a DEXA scan...) > > Basically I'm totally clueless as to what to expect. I had to change> nothing as far as my synthroid. Having to wait until Feb. 14 is> killing me, just as is waiting to see the Orthopedic on Jan. 24. I do> have MVP, and am going to see cardio doc in Feb, as I had severe chest> pains from taking Actonel for my osteoporosis. I was switched to> liquid Fosamax, and I've been okay with that form for three weeks> (once a week doses). > > I don't really have any questions, except - What the heck is this and> how will it affect me? Being hypo before may make this not a big> deal, but I wouldn't know. My PCP has only seen one case of it, back> in med school, and he's in his 70's, I'd guess. *sigh*> > I'll start reading back posts to see if anything sounds like me. Oh,> I have also been told by my rheumatologist that he thinks I have> Fibromyalgia, as the symptoms supposedly cross. > > Thanks for letting me join, and hopefully learn about my new Hashi's!> > Becky*Note: Information is freely exchanged on this board based on patient experiences, and should not be considered a medical recommendation.

[Guest guest]

> I also had palpitations, tingling at one side of my head and

> difficulty in breathing and started having panic attacks.

I have also had those, and they were so bad that my blood pressure

went UP - 172/112. My ACE inhibitor was doubled, and then added

calcium channel blocker, which was tweaked up as well. This was in

late Nov, early Dec, before I was diagnosed so I had no Idea what was

happening. I ended up quitting my job because the anxiety was so bad.

I am mostly over the panic attacks, thank goodness, but not working

makes things lean around here financially. I hope you get some

answers for yours, Yonca. (((HUG)))

Right now I don't know if the tingling was from hashi's or due to the

rotator cuff, as my tinglng went up my left side of my face, all the

way down into my left hand and fingers. I'd had EEG's last year

saying that I had no impingement, so there's a good chance this may be

due to hashi's, but I'm only guessing.

Hope you feel better soon!

Becky

[Guest guest]

> >

> > Hello to all. I'm Becky, 45, and have had hyopthyroidism for

over 7

> > years. Just the week before Christmas I was diagnosed with

autoimmune

> > thyroid disease. I'm assuming Hashi's, and had to ask for info

over

> > the phone when I got my results. (Was sent a tiny pamphlet, not

much

> > info at all...!)

> > I'm scheduled to return for recheck Feb. 14th. All I know about

this

> > is what I've learned from the web. I learned we have a tendency

to

> > develop painful tendonitis and bursitis in our shoulders ... I

have

> > that as well as a torn rotator cuff. I'm 3 years post-op from

gastric

> > bypass surgery. I know how to take my 150mcg. Synthroid, as I've

been

> > on it for 7 years, but I pay attention to it more due to the

calcium,

> > iron and protien I must take daily for my malabsorption due to my

> > bypass. I received the autoimmune news the day before I was

diagnosed

> > with osteoporosis, and just last thursday found the rotator cuff

tear

> > by MRI. So many things all at once! I'm awaiting my 3-year blood

> > workup results. So far I've been good, so the osteoporosis was a

> > great surprise. (Had a DEXA scan...)

> >

> > Basically I'm totally clueless as to what to expect. I had to

change

> > nothing as far as my synthroid. Having to wait until Feb. 14 is

> > killing me, just as is waiting to see the Orthopedic on Jan. 24.

I do

> > have MVP, and am going to see cardio doc in Feb, as I had severe

chest

> > pains from taking Actonel for my osteoporosis. I was switched to

> > liquid Fosamax, and I've been okay with that form for three weeks

> > (once a week doses).

> >

> > I don't really have any questions, except - What the heck is this

and

> > how will it affect me? Being hypo before may make this not a big

> > deal, but I wouldn't know. My PCP has only seen one case of it,

back

> > in med school, and he's in his 70's, I'd guess. *sigh*

> >

> > I'll start reading back posts to see if anything sounds like me.

Oh,

> > I have also been told by my rheumatologist that he thinks I have

> > Fibromyalgia, as the symptoms supposedly cross.

> >

> > Thanks for letting me join, and hopefully learn about my new

Hashi's!

> >

> > Becky

[Guest guest]

Welcome, Sandi. I never felt any improvement

with Cytomel, but when I tried to stop it (cold

turkey, albeit), I felt REALLY bad. Adding a little

Armour helped me more with some nagging

symptoms of weight gain and flagging energy.

Others here have had success with Cytomel.

~

>

> Hi to all,

> I am a new member, and belong to several other on line forums

> regarding Thryoid and Diabetes.

>

> Recently diagnosed with Hashi's and taking Cytomel 5 mcg (for only 3

> days).

> Would like to hear from others re Cytomel's affect on them.

>

> Sandi

[Guest guest]

By the way, is that all you are taking?

It's unusual to get a prescription just

for that. It's a very low dose too.

~

>

> Hi to all,

> I am a new member, and belong to several other on line forums

> regarding Thryoid and Diabetes.

>

> Recently diagnosed with Hashi's and taking Cytomel 5 mcg (for only 3

> days).

> Would like to hear from others re Cytomel's affect on them.

>

> Sandi

[Guest guest]

,

thanks for the welcome!

Yes its now been 4 days on 5 mcg of Cytomel. I really dont feel any

better - yet. I have high hopes.

, how long were you on Cytomel and what dose?

Sandi

> >

> > Hi to all,

> > I am a new member, and belong to several other on line forums

> > regarding Thryoid and Diabetes.

> >

> > Recently diagnosed with Hashi's and taking Cytomel 5 mcg (for only 3

> > days).

> > Would like to hear from others re Cytomel's affect on them.

> >

> > Sandi

[Guest guest]

,

Yes, all I am taking is Cytomel. I have an awesome Endo, she is ready

to do anything to help me feel better regarding fatigue, hair loss,

etc. Its been a long road for me finding help (almost 2 years).

Sandi

> >

> > Hi to all,

> > I am a new member, and belong to several other on line forums

> > regarding Thryoid and Diabetes.

> >

> > Recently diagnosed with Hashi's and taking Cytomel 5 mcg (for only 3

> > days).

> > Would like to hear from others re Cytomel's affect on them.

> >

> > Sandi

[Guest guest]

I think I took 5-10 mcg a day too, but that was in

addition to 75 mcg Levoxyl. Why does your doc want

you on Cytomel only? Glad you found a good endo

though.

> >

> > By the way, is that all you are taking?

> > It's unusual to get a prescription just

> > for that. It's a very low dose too.

> >

> > ~

[Guest guest]

Actually, I asked for Cytomel. I am so fatigued. I have mild case of

Hashi's - and she initially told me I am not in need of thyroids meds,

just yet. so,I am just happy she gave me a script for T3.

> > >

> > > By the way, is that all you are taking?

> > > It's unusual to get a prescription just

> > > for that. It's a very low dose too.

> > >

> > > ~

[Guest guest]

Jeez, if I had a buck for every time I've heard of an endo.

saying that. A friend of mine was told that and wound up

in the hospital 2 weeks later. Go by your symptoms, not

the labs. You'll hear that in here a lot. Anyway, see what

happens. If you don't feel any improvement in a few days,

you'll know you need more meds, or maybe to add T4.

>

>

>

> Actually, I asked for Cytomel. I am so fatigued. I have mild case of

> Hashi's - and she initially told me I am not in need of thyroids meds,

> just yet. so,I am just happy she gave me a script for T3.

>

>

[Guest guest]

Not to mention what is going on with you won't be going on with you

in two weeks anyway..........aaaaaaaaaagggghhhh!!!! Those wonder

Hashi's swings!!!

P

> >

> >

> >

> > Actually, I asked for Cytomel. I am so fatigued. I have mild

case of

> > Hashi's - and she initially told me I am not in need of thyroids

meds,

> > just yet. so,I am just happy she gave me a script for T3.

> >

> >

[Guest guest]

Yeah right, its all a game of hide n seek re thyroid treatments, no?

Well, I like my Endo and I aint changing doc anytime soon. I feel she

is a keeper (for the time being, anyway).

She is the only one that has listened to me, and worked with me. My

PCP said there was nothing wrong with me - so he will be the one I

will probably replace!

Sandi

> > >

> > >

> > >

> > > Actually, I asked for Cytomel. I am so fatigued. I have mild

> case of

> > > Hashi's - and she initially told me I am not in need of thyroids

> meds,

> > > just yet. so,I am just happy she gave me a script for T3.

> > >

> > >

[Guest guest]

Great questions. I have similar symptoms and cannot get answers from my doctors ... I don't really know what hashi's is. Has not been described.

The only information I have is TSH is 6 and Fr T4 is 0.76. Have had a biopsy on the nodule and it is benign .. I don't know where to go nor what to do as I can't get answers from my primary care and unsatisfactory from the endo .. They make me feel like it is not a concern of mine ...

I have headaches something terrible and no answers ... I have a business.

I have bee lurking and trying to learn, also.

Eva

We "ARE" What We Think And We "SHOW" What We Eat

New Member

Hello,

I just joined the group and thought I would dive right in with some questions. I have a thyroid nodule that has been growing at the rate of 1mm a year for over 10 years. It's now about 3cm. I had it biopsied at a major medical center and they said it was definitely noncancerous. I also have Hashimoto's thyroiditis. For about two years I actually feel something in my throat. The feeling is hard to describe. Sometimes it feels like a solid thing in my throat. Sometimes it just feels like a tightness. My questions are:

1. For those of you who have Hashimoto's thyroiditis what are your symptoms?

2. For those of you who have a thyroid nodule - can you feel it?

3. What nutritional regimen has worked for you with Hashimoto's? Has anyone followed a nutritional regimen that has caused their nodule to shrink?

4. What alternative medicine regimens have you found to be effective with Hashimoto's? With shrinking a thyroid nodule?

5. I am thinking about surgery. The mortality rates in teaching hospitals seem to be the lowest, but you would have a resident etc. on the team operating on you. For this reason is it better to not have thyroid surgery at a teaching hospital?

6. If you have Hashimoto's, would you take a multivitamin with iodine? How about taking a multivitamin that has iodine with a thyroid nodule?

Please don't be intimidated by the 6 questions. Pick your favorite to answer. Sincere thanks for the information.

Bonnie

[Guest guest]

Welcome, ! If you don't follow everything here, feel free to

ask direct questions... you'll pick it up soon. And we are all still

learning from each other, as this disease is deceivingly complex,

despite what docs may say.

And we are learning from you too. I actually have never heard of that

book, sounds interesting. I just looked up glandular fever, wasn't

sure what that was either, and I don't remember having it but I

suppose it's possible. I'll have to ask my mom. I hope the diet and

supplements work for you -- all sounds like good stuff, I'm sure your

naturopath told you no soy either. Starting with a diet-only approach

first might be a good idea if you are swinging hyper to hypo, but keep

in mind that many people experience hyper-like symptoms while hypo.

It's always good to get a copy of your blood tests, including free T3

and free T4.

Keep us posted and I hope you're feeling better soon.

>

> Hi All,

>

> My name is , I am 32 years old and I have just been diagnosed

> with Hashimotos Thyroiditis... I live in Queensland, Australia. I was

> diagnosed a month ago. My doctor told me that I have it and to just

> keep in mind that I will have to have a Thyroid fuction test once a

> year, end of story. Well, I wasn't going to stand for that so I drove

> 1000 kilometres to a Naturopath.

[Guest guest]

we sound quite similar. I'm in the UK. I will read that book,

it sounds good. I too really want to get better. But it feels

sometimes as if no-one cares and justs expects us to sit quietly until

our immune systems have destroyed us enough to medicate us.

Lucy X

[Guest guest]

Hi Lucy,

We do sound quite similar don't we? How long have you known that you

have anti-bodies?

>

> we sound quite similar. I'm in the UK. I will read that

book,

> it sounds good. I too really want to get better. But it feels

> sometimes as if no-one cares and justs expects us to sit quietly

until

> our immune systems have destroyed us enough to medicate us.

>

> Lucy X

>

[Guest guest]

I was told in August. It wasn't a huge surprise -as it runs in our

family and my Mum was 32 when she was diagnosed and put on thyroxine.

I was told more as an afterthought though, I don't know how many I

have but will ask for a copy of the blood tests when I go back in

November for monitoring.

[Guest guest]

Hello,

I am a new member. I am leaving a woman's treatment program and found this

group. I am so glad I did. Because of issues in my past, my self-confidence is

at an all time low. I'm trying to reprogram my thoughts and my " brain " . The

daily affirmations are great.

Thank you,

Cheryl

Massachusetts

[Guest guest]

Welcome to the group.

In light and love,

>

> Hello,

>

> I am a new member. I am leaving a woman's treatment program and found this

group. I am so glad I did. Because of issues in my past, my self-confidence is

at an all time low. I'm trying to reprogram my thoughts and my " brain " . The

daily affirmations are great.

>

> Thank you,

> Cheryl

> Massachusetts

>

[Guest guest]

Of course, sorry it has taken so long for me to get back to reading this

list. The site is www.drugs.com , specifically

https://www.drugs.com/mednotes.html to get to the site where you can start

putting in all of your diagnoses and meds. It is really quite

comprehensive!

Hugs, Michele - Nana to Twins is and , 3 yrs.,

Zachary, 5 yrs., Ethan, 9 yrs., and Tony, 13 yrs.

> -----Original Message-----

> From: Kara Hanna

> Sent: Monday, September 14, 2009 3:59 PM

>

> Would you be willing to share the site?

>