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Re: Re: New poll for Hepatitis_C_Central

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why does nt anyone understand that i am newly dianoised and i am scared to

death . i am angry not at this group i am goingthrough alot of emotions and i

am cut off from everyhting .i dont want to die i am 28 found out i am

pregnant today

bernice

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why does nt anyone understand that i am newly dianoised and i am scared to

death . i am angry not at this group i am goingthrough alot of emotions and i

am cut off from everyhting .i dont want to die i am 28 found out i am

pregnant today

bernice

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Dear Janet,

As always, your advice is on the money. Although I do appreciate a little

drama now and then, it gets old quick for all of us who have plenty of personal

drama in our lives. What is appreciated more is identification, compassion,

understanding, education, everyday fellowship and, yes, a good deal of humor is

REALLY called for! I have found all of those and much more here (ah, we won't

mention the occasional debate over religion and politics) And I thank God for

it and for every one of us!

Bob Drury

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Bernice,

You are going to be with us for a long time ... that is pretty much a

statistical certainty. Almost all of us here, at some point, in some manner,

have

turned things over to God in some form. I will pray that you will be also

willing

to do so. Only God can do the things that God can do. That's why He is God!

He is waiting to hear from you.

Bob Drury

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Doug,

I'll have you know that I won the Tear Gas Canister Toss contest of 1969 in

Berkeley, CA.! ... Against fierce competition, I might add God works in

mysterious ways, indeed

Bob Drury

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Dear Doug,

Thank you for knowing how to tell the truth, in love as it is the essence of

true compassion. Bernice? Please allow yourself to hear it as you are in much

better shape than the majority of us here.

Bob Drury

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THE EMAIL WENT TO THEN GROUP INSTAED OF THE PERSON THAT HAS BEEN HARRSSING ME

.. SO I APOLIGIZE IF ANYONE TOOK OFFENSE TO THAT

I AM A VERY KINDHEARTED PERSON. AND I ODNT LIKE THATY

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Jeanne,

Yea, The Height had already seen the best of the " Peace and Love " days by

1969, too much speed and heroin was starting to flow in. I can't imagine what it

must look like now! I was on telegraph Ave. in Berkeley in 1984 ... it just

looked like a " normal " college town, commercialized a tad too much. It was a

much different world then in many respects. I have come to a more gentle

understanding of Shaw's " Youth is wasted on the young " admonition. I'm still

glad to

say I have much to learn before I die and also can recall with some fondness

the days when I had nothing to learn because I knew everything!

Bob Drury

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A hippie even! Will the world never fail to surprise?

Doug

> LOL!

> Well, I am a Hippie and I am stupid! And darn proud of it!(And of my humility

> as well)

>

> Bob Drury

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> i have if only i had not been scik in the hospital a month i would hve gotten

> my mail. if you cant help or offer kind words dont eail

> why does nt anyone understand that i am newly dianoised and i am scared to

> death . i am angry not at this group i am goingthrough alot of emotions and

i

> am cut off from everyhting .i dont want to die i am 28 found out i am

> pregnant today

>

> bernice

Everyone here understands what you are going through. We try to help.

We offer kind words. When you say, " If you can't help or offer kind

words don't email, " some of us may take offense. If some of us have

been matter-of-fact, well, we are not going to lie. Sometimes telling

the facts of life is part of being compassionate.

I surveyed your recent postings. You say you have genotype 2.

Treatment for genotype 2 lasts six months. It is very often

successful. Most of us have genotype 1. Treatment for genotype 1 lasts

one year. It is often not successful. Also, you are only 28. You

likely have not sustained a lot of liver damage. Hepatitis C is a

silent disease. Most of us don't find it until we are around 50 when we

have sustained significant liver damage or even have cirrhosis. You are

a lucky person. Time to start counting those blessings.

You say you are pregnant. You must address this issue with your doctor

and any other counselors you have immediately. You will not be treated

while you are pregnant or nursing. Also, there is a small risk

hepatitis C will be transmitted to the baby.

Doug

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Bernice:

At 11:41 PM 6/4/2004 -0400, you wrote:

>why does nt anyone understand that i am newly dianoised and i am scared to

>death . i am angry not at this group i am goingthrough alot of emotions

>and i

>am cut off from everyhting .i dont want to die i am 28 found out i am

>pregnant today

Here's the deal. We were all newly diagnosed at some time. We were all in

shock, if not complete panic, when the reality of the diagnosis started to

set in. Actually, I suspect that is one of the reasons the founders of

this group set it up: to help people get through that very scarey first few

months--as well as support for all the rest of the months through treatment

(or non-treatment, as the case may be). No one wants to die, whether

they're 18 or 28 or 88. The virus cuts a swathe through not only our

physical health, but for many, our entire lives. Yes, most of us have

probably (or will probably) come across some tactless boob who makes snide

comments about hcv being a disease of " lowlifes " --you just have to get over

the immediate hurt, then get past it, and then laugh about it. (What can

be more low-life than saying something like that to someone who's already

in distress about the diagnosis??)

It doesn't matter how you, or anyone got it. (I wanted to know for my own

edification--but ultimately, it didn't matter one bit. Knowing didn't

change things.) As far as I'm concerned, it doesn't matter whether or not

someone did something " bad " --NO ONE deserves this virus, not one person,

nobody, zip.

In my own experience, the best way to benefit from this wonderful group is

to read the messages, take heart in others' successes, laugh with us when

someone posts a good joke, watch for the often excellent articles on the

ongoing research and other newsy tidbits about the virus, and then be sure

to mine the files area for the basics on how to deal with hcv. Sometimes

there are things in there our doctors didn't mention--or perhaps didn't

even know. LEARN as much as you can about hcv. Knowledge is power in our

case, and it just might help prolong your life.

This group is not a substitute for a good doctor, but at least for me, it's

been a wonderful adjunct. I've even printed out a few things to carry in

to the doctor. Sometimes, you know, doctors are so busy doctoring that

they're not spending time on the internet digging up obscure research papers.

Bernice, if you take good care of yourself, eat well, and avoid ALL

alcohol--plus follow your doctors' orders especially as regards the wee one

you carry--you will, in all probability, watch your new baby grow up,

graduate from university, marry, and have babies of his/her own. Don't let

yourself get too wrapped up in depression, self-pity, anger, or other

negativity. It will take a toll on your physical health and on your

relationships with friends and family. If these emotions are

uncontrollable, please find a therapist to help with them.

Take heart, Bernice. This is a very supporting group of people, because

these people have gone through so much. They're not here to give handouts,

mind you, but something more valuable--collective wisdom, compassion, and

understanding.

Jeanne

===--* My stars!

http://users.eaokonline.com/~vcl20001/

http://groups.yahoo.com/group/healingcircle2/

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At 07:22 AM 6/5/2004 -0400, you wrote:

>Doug,

>

>I'll have you know that I won the Tear Gas Canister Toss contest of 1969 in

>Berkeley, CA.! ... Against fierce competition, I might add God works in

>mysterious ways, indeed

Hah, this is really funny, Bob! I was in San Francisco in 69--cursing

under my breath at the flippin' hippies panhandling me on my way to work,

LOL!! My neighborhood (MINE, darnit, MINE) became the hub more or

less--once a nice blue-collar kinda neighborhood, " the Haight " got all

psychedelicized. Oh, yeah, I enjoyed the music and even wore the fashions

of the day--say, can anyone put on a pair of flowered bell bottoms,

platform shoes, and pink sunglasses, and still take themselves

seriously? Hippie or not, we were all very funny!

But ah, the family home, just blocks from the hospital where I was born,

had to be given up--it wasn't all " love and peace " unfortunately, and most

of the neighbors, as my family, fled to San Mateo or elsewhere to avoid the

more violent aspects of those years. I have only returned once, and had no

desire to live there again. I pretty much love where I am, I guess.

Jeanne

===--* My stars!

http://users.eaokonline.com/~vcl20001/

http://groups.yahoo.com/group/healingcircle2/

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At 07:57 AM 6/5/2004 -0400, you wrote:

>I AM AFRAID OF A

>LIVER BIOPSY. HOW NESSACARY IS IT REALY

If your doctor orders one, I'd go ahead and get it. Most people say it

doesn't bother them at all. Usually you go home that same afternoon. DO

ask for pain management of some sort if they don't offer it, but usually

they will offer it.

Jeanne

===--* My stars!

http://users.eaokonline.com/~vcl20001/

http://groups.yahoo.com/group/healingcircle2/

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This is something you should probably consult with a lawyer on. And

yes, it is off topic.

Doug

> matter of fact this may be a little off subject but i was wondering ig if

> because i am legally married still,can my husband still be hled to pay me

> allomoney or support .he is incarserated ad will be for five years but,he

> deserted me and that gave me grounds

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Nuffin wrong with us hippies!!!! LOL! ;-)

anne

(snuggling up in her poncho, lighting her incense and contemplating her navel!)

Re: Re: New poll for Hepatitis_C_Central

A hippie even! Will the world never fail to surprise?

Doug

> LOL!

> Well, I am a Hippie and I am stupid! And darn proud of it!(And of my

humility

> as well)

>

> Bob Drury

It's a pleasure having you join in our conversations. We hope you have found

the support you need with us.

If you are using email for your posts, for easy access to our group, just

click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/

Happy Posting

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That's really coooool sister!

Peace!

anne

(who would love to wear bell bottoms again but they don't make them in her size.

Kaftans on the other hand are an essential in my wardrobe! *giggle*)

Re: New poll for Hepatitis_C_Central

Hee Hee, you guys crack me up.

I too am a aging flower child. I still have some of the old believe

systems that I had back when I was a hippie chick.

LOL

Like man, take care of the bod,because it is the only thing you got.

Only now I say it in a more professional manner.

I still eat the vegatables that I grow in my garden and they are

organic grown. (no pestcides,no commerial fertizliers, natural pest

control.)

I make my own juices,drink green tea,chamomille tea,mint tea,peach

tea made from my own peach tree leaves. Did you know that dried

peach tree leaves have a calming effect on the body?

I eat greens that I find in the woods behind my house. I could tell

you what plants are good to eat and what plants are good for incest

bites,and what plants that would make you sick as a dog.

Although I don't wear flowers in my hair or bell bottom jeans

anymore. Or those long flowing dresses. Now days you will find me in

a pair of hanes her way shorts and blouse. Cause they are

comfortable. LOL

I wear sandales till it gets too cold to wear them. LOL

Then I put on my Nikes. I never wear heels unless I have too.

Yup just call me a Old hippie chick, I can take it.

Love and Peace,

Janet

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