Re: What haappens when there is not pain

[Guest guest]

> Has anyone else experienced the sensation where one cannot find their " norm " ?

That is I have been dealing with pain for such a long time at this point I feel

strange when I actually am not feeling the massive pain of FM/ME. I feel out of

sorts and while I am hurting in a way I just don't feel right and it is actually

very unsettling...

Yes, no pain is my status most of the time by not doing, resting with feet up,

head back most of the time, and avoiding wheat-gluten and milk protein. Very

hard to maintain if working but I retired on disability 12-1/2 years ago.

Yet, last night, while stacking butter on chicken and veggies to microwave,

terrible pain overcame me, beginning in neck and shoulders, making me feel sick

to my stomach as well.

Soon as I rested again, pain went away.

Reclining with feet up and head back provides the relief from most symptoms most

days.

Pain, for me, is the result of behaviours: bread or pizza-eating, foods with

milk in them like milk chocolate, being upright and still for too long at one

time, many physical activities.

My condition underlying CFS and FMS is called Orthostatic Intolerance which

means my body has trouble maintaining an upright position, sitting or standing.

Read more about how symptoms overlap between OI, FMS, CFS here:

http://www.cfsnova.com/qnaOI.html

toni

cf-alliance.tripod.com/

from iPodTouch

[Guest guest]

All I can suggest is to monitor it very closely over a period of time and then

talk to the dr who is treating it and see what they say....

----- Original Message -----

From:

Has anyone else experienced the sensation where one cannot find their " norm " ?

That is I have been dealing with pain for such a long time at this point I feel

strange when I actually am not feeling the massive pain of FM/ME. I feel out of

sorts and while I am hurting in a way I just don't feel right and it is actually

very unsettling...

[Guest guest]

That's a very interesting perspective. I very rarely feel 'good'. Most days are

full of pain and fatigue, extreme brain dysfunction etc. I probably only get

about one 'good day' every 6 months or so. Its totally random and don't know how

it happens. However, when I do get one, it actually does seem weird to feel that

good! I like it make no mistake, but I do feel strange.. almost like I don't

know what to do with myself! So I think I know what you mean.

>

> Has anyone else experienced the sensation where one cannot find their " norm " ?

That is I have been dealing with pain for such a long time at this point I feel

strange when I actually am not feeling the massive pain of FM/ME. I feel out of

sorts and while I am hurting in a way I just don't feel right and it is actually

very unsettling...

>