Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 So sorry to hear your bad news! I hope the very best for you. My ex-husband got a liver transplant and he was telling me there are a few things they like to see in a candidate. They want to know you have a good attitude and no problem with depression; they want to know that you are financially able to afford all the medicines that you will have to take; that you will be obedient in following the doctor's instructions to the letter and that you will not do anything that is bad for the liver, including smoking (anything) and drinking. Please update your situation with us as you go along. Look forward to hearing more from you. ~ Ray wrote: Checked into the hospital yesterday because my doctors were unable to determine the cause of my fevers for the last 2+ weeks. They hooked my up to an IV for antibiotics, and ran a cat scan and a chest xray. The xray was to check for TB, which I do not have. The cat scan checked my liver and all nearby organs, abdomen, etc. To make a long story short I have liver cancer. Foci (tumors) " too numerous to count. " So, no TX but (I hope) a transplant. I have read though, in my Hep C book by Harriet Washington, that if you have more than 2 or 3 tumors they will not do a transplant. Also, if you have had previous abdominal surgery (which I have, colon removal) you also are not a suitable candadate for a transplant. I see my GI Dr at 9:15am tomorrow (yes, Saturday). Hopefully I will learn more then. If anyhow has knowledge that would address my suitability as a liver transplant candidate, please share it with me. Thanks, Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 , I am curious, given what you friend told you about what transplant doctors want to see in a patient, Where does that leave the many (including myself) recovering alcoholics/drug addicts who are prone to depression even before Hep C induced depression and also prone to relapse? I mean do we go right down to the bottom of the transplant list? Bob Drury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 , thanks Bob Drury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Ray, First of all let me say how sorry I am to hear this news. I will contact one of my friends in my support group that I go to here in town. We have several members of that support group that are awaiting transplants. One of the fellows has had his colon removed like you had. He recieved his liver transplant 6 months ago and is doing well. Although he has some scars that make interesting conversation. *smile* I know he had his done in Texas, I think at Baylor Uni. Hospital but I will get all the information I can for you. Keep your chin up, and in the mean time we are keeping you in our thoughts and hearts. Love Janet > Checked into the hospital yesterday because my doctors were unable to determine the cause of my fevers for the last 2+ weeks. They hooked my up to an IV for antibiotics, and ran a cat scan and a chest xray. The xray was to check for TB, which I do not have. The cat scan checked my liver and all nearby organs, abdomen, etc. > > To make a long story short I have liver cancer. Foci (tumors) " too numerous to count. " > > So, no TX but (I hope) a transplant. I have read though, in my Hep C book by Harriet Washington, that if you have more than 2 or 3 tumors they will not do a transplant. Also, if you have had previous abdominal surgery (which I have, colon removal) you also are not a suitable candadate for a transplant. > > I see my GI Dr at 9:15am tomorrow (yes, Saturday). Hopefully I will learn more then. > > If anyhow has knowledge that would address my suitability as a liver transplant candidate, please share it with me. > > Thanks, > > Ray > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Ray, First of all let me say how sorry I am to hear this news. I will contact one of my friends in my support group that I go to here in town. We have several members of that support group that are awaiting transplants. One of the fellows has had his colon removed like you had. He recieved his liver transplant 6 months ago and is doing well. Although he has some scars that make interesting conversation. *smile* I know he had his done in Texas, I think at Baylor Uni. Hospital but I will get all the information I can for you. Keep your chin up, and in the mean time we are keeping you in our thoughts and hearts. Love Janet > Checked into the hospital yesterday because my doctors were unable to determine the cause of my fevers for the last 2+ weeks. They hooked my up to an IV for antibiotics, and ran a cat scan and a chest xray. The xray was to check for TB, which I do not have. The cat scan checked my liver and all nearby organs, abdomen, etc. > > To make a long story short I have liver cancer. Foci (tumors) " too numerous to count. " > > So, no TX but (I hope) a transplant. I have read though, in my Hep C book by Harriet Washington, that if you have more than 2 or 3 tumors they will not do a transplant. Also, if you have had previous abdominal surgery (which I have, colon removal) you also are not a suitable candadate for a transplant. > > I see my GI Dr at 9:15am tomorrow (yes, Saturday). Hopefully I will learn more then. > > If anyhow has knowledge that would address my suitability as a liver transplant candidate, please share it with me. > > Thanks, > > Ray > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Bob, you make it sound like I run a transplant team, he he. That is really a question you would have to ask a medical doctor. I was merely imparting what I was told by my ex. Mind you that was here in Canada too. Who knows, criteria may vary through regions and hospitals. ineamer@... wrote: , I am curious, given what you friend told you about what transplant doctors want to see in a patient, Where does that leave the many (including myself) recovering alcoholics/drug addicts who are prone to depression even before Hep C induced depression and also prone to relapse? I mean do we go right down to the bottom of the transplant list? Bob Drury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 I think I've gone from shock to heartbroken to angry all in a nanosecond. This is totally unfair. Ray, you are the nicest person I've met in a very long time and noone deserves this kind of diagnosis, especially not you. But we'll take on this illness together as your Hep-C family, one day at a time ok? I am so sorry this has happened to you my friend. We'll always be here for you, when ever you need us. Much love anne Re: Real Bad News. So sorry to hear your bad news! I hope the very best for you. My ex-husband got a liver transplant and he was telling me there are a few things they like to see in a candidate. They want to know you have a good attitude and no problem with depression; they want to know that you are financially able to afford all the medicines that you will have to take; that you will be obedient in following the doctor's instructions to the letter and that you will not do anything that is bad for the liver, including smoking (anything) and drinking. Please update your situation with us as you go along. Look forward to hearing more from you. ~ Ray wrote: Checked into the hospital yesterday because my doctors were unable to determine the cause of my fevers for the last 2+ weeks. They hooked my up to an IV for antibiotics, and ran a cat scan and a chest xray. The xray was to check for TB, which I do not have. The cat scan checked my liver and all nearby organs, abdomen, etc. To make a long story short I have liver cancer. Foci (tumors) " too numerous to count. " So, no TX but (I hope) a transplant. I have read though, in my Hep C book by Harriet Washington, that if you have more than 2 or 3 tumors they will not do a transplant. Also, if you have had previous abdominal surgery (which I have, colon removal) you also are not a suitable candadate for a transplant. I see my GI Dr at 9:15am tomorrow (yes, Saturday). Hopefully I will learn more then. If anyhow has knowledge that would address my suitability as a liver transplant candidate, please share it with me. Thanks, Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Hey there Ray, Sad news brother, and I'm sorry you got it. If I had an extra liver laying around, I'd ship it off to ya right now, but unfortunately, I'm using the only one I could find. Your in my thought man, stay strong! Peace, D Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.