Appeal to make closed information about M.E. and CFS freely available (Guardian, 22 November 2010)

[Guest guest]

To keep you all up to date,

The Times has chosen not to publish.

I have sent our letter to The Guardian with new co-signatories added.

I have done my very best but please excuse and let me know about any

errors and omissions.

Best wishes

drjohngreensmith@...

Dr H Greensmith

ME Free For All.org

_*Guardian Letters*_.

Sir,

Since a precedent has been established by declassifying information,

which had originally been intended to be kept secret for 70 years, in

the case of Dr , following a letter from nine experts to a

national newspaper, we ask for similar consideration for all material,

including correspondence relating to Myalgic Encephalomyelitis/Chronic

Fatigue Syndrome (ME/CFS) with the medical profession, embargoed for the

same period of time until 2072.

We, who represent as many as an estimated 250,000 sufferers in the UK,

some for as long as 55 years, believe that such a revelation might yield

up vital clues to an understanding of the disease process underlying

M.E. now affecting millions of sufferers worldwide, which the majority

of transfusion services treat sufficiently seriously to ban blood

donations from people with M.E.

Such increased knowledge may lead to the development of effective

treatments, which could put an end to this global suffering.

This appeal is in addition to a Freedom of Information Request submitted

by me and a worldwide petition, still open for signatures

(http://tinyurl.com/2wtp26d short link for

http://www.thepetitionsite.com/264/--if-gte-mso-9xml-wworddocument-wviewnormalwv\

iew-wzoom0wzoom-wpunctuationkerning/)

Yours sincerely

Dr H Greensmith

Founder, ME Free For All.org

Mrs Kathleen McCall

Chairman, Invest in ME

Sir Spencer

Chief Executive, Action for M.E.

Countess of Mar

Chairman, Forward-ME.

Founder, RiME

Dr Shepherd

Hon. Medical Advisor, ME Association

on

Chairperson BRAME (Blue Ribbon for the Awareness of Myalgic

Encephalomyelitis)

Rees

Chairman, Bristol ME Support Group

Cameron and Lyna Sassoon

Members, North London ME Network

s

Treasurer, Carlisle ME/CFS Support Group

Jan Limback

Chairman, Bourne and S.Lincs ME Support Group

Ruberry and Ms Daphne Caton

Secretary and Co-editor Newsletter, Shropshire ME Group

Nick Farar

Chairman, Hampshire Friends with ME

Simpson

Member, Herefordshire ME Group

Dr Meg Pollock

Founder of Lochaber ME Support Network

Jane Povey

Member, Blackpool ME Support

s

Director, Northern Ireland Campaign for ME

Mrs Webb

Chair, Richmond and Kingston ME Group

Mrs

Co-Founder, East Kent ME Group

Dr Norman E Booth

Member, Oxfordshire ME Group for Action (OMEGA)

Tomlinson

Chairman, York and District ME Group

Co-ordinator, Solihull and South Birmingham ME Support Group

Mrs Worrall

Committee Member, Walsall and West Midlands ME Link

Annette Barclay and Cath Ross

Group Leaders, London ME Group

Colin Briggs

Chairman, Central Lancs M.E/CFS Support Group

Connie

Chairperson, ScotME

on

MAME Inc.

Jill Pigott

Co-ordinator, Worcestershire M.E. Support Group

ine son

committee member, The Sunderland and South Tyneside ME/CFS Support group

Mrs Jo Calder

Administrator, Northern Ireland ME Association

Group Leader, ME Chat

Elliott.

Chief Executive, ME North East

Joan Crawford

Chair, Chester MESH

Moncrieff

Member, Perth ME Support Group, Scotland

Helen

ME sufferer, Inverkeithing, Fife, Scotland

The West Midlands ME Groups Consortium comprising:

Herefordshire ME/CFS/FMS Group;

Solihull & South Birmingham ME Support Group; Shropshire ME Group;

Walsall & West Midlands ME Link;

Warwickshire Network for ME;

Worcestershire ME Support Group)

--

drjohngreensmith@...

Dr H Greensmith

ME Free For All.org