ANDY- Protocol chelation Help

[Guest guest]

Andy,

I live in ND- and our 3 year old has these metals in him-

Arsenic, Cadmium, Lead, Mercury, Nickel, and Tin

Here is the catch, there are no Doctor's here that will help

with either conventional chelating or supplemental. HELP!

I did talk to a doctor today that luckily is on a hour and a half away

that has agreed to help us. Unfortunatley, he says he has never

chelated a person so small and is not sure what the proper way to do

it is.

He said that he would talk to some colleges and do a referral if

needed.

COuld you help with me- with what you consider proper protocol

He is three years old 53 pounds and approximately 45 inches tall ( if

not taller) Thank you

Barb Roth

[Guest guest]

Barb,

I wondered how you found out that your 3 yr old has those metals. Did

you do a certain test? Who did it? I am considering chelation for my 7 yr

old son.

Truly

[ ] ANDY- Protocol chelation Help

> Andy,

>

> I live in ND- and our 3 year old has these metals in him-

> Arsenic, Cadmium, Lead, Mercury, Nickel, and Tin

>

> Here is the catch, there are no Doctor's here that will help

> with either conventional chelating or supplemental. HELP!

>

> I did talk to a doctor today that luckily is on a hour and a half away

> that has agreed to help us. Unfortunatley, he says he has never

> chelated a person so small and is not sure what the proper way to do

> it is.

>

> He said that he would talk to some colleges and do a referral if

> needed.

>

> COuld you help with me- with what you consider proper protocol

>

> He is three years old 53 pounds and approximately 45 inches tall ( if

> not taller) Thank you

>

> Barb Roth

>

>

>

>

> =======================================================

>

[Guest guest]

Hi Barb,

I don't know if you are aware that the Autism Research Institute will

be issuing its consensus report on the detoxification of autistic

children very soon. Their website is at www.autism.com/ari and below

is a brief quote taken out of their Press Release dated February 12,

2001:

" Detoxification is not simple and there are many competing

detoxification protocols...In response to this situation, the Autism

Research Institute convened a Consensus Conference on the

Detoxification of Autistic Children in Dallas, Texas, February 9th

through 11th, 2001. The attendees were 25 carefully selected

physicians and scientists knowledgeable about mercury and mercury

detoxification. The 15 physicians present included 7 who were

parents of autistic children and who had detoxified their own

children with excellent results. The physician attendees present had

treated well over 3,000 patients for heavy metal poisoning, about

1,500 of them being autistic children. The chemists, toxicologists,

and other scientists present had a combined total of almost 90 years

of experience in studying the toxicology of mercury. "

" The purpose of the meeting was to arrive at a consensus document

which would delineate the safest and most effective methods of

detoxifying autistic children. Nine candidate detoxification

protocols, including 5 submitted by non-attendees, were considered in

detail by the conferees. "

" The Autism Research Institute will issue its consensus report on the

detoxification of autistic children at the earliest possible date--

most likely in mid-March--after the participants have had an

opportunity to review and approve the document. "

As you see, you and your doctor can have the benefit of the consensus

protocol to guide you through chelation very shortly. Check the ARI

website above and I believe that if you register your e-mail address

with them, they will automatically notify you when the protocol is

published.

Best of luck to you and your family.

Sincerely,

Mireille

> I live in ND- and our 3 year old has these metals in him-

> Arsenic, Cadmium, Lead, Mercury, Nickel, and Tin

>

> Here is the catch, there are no Doctor's here that will help

> with either conventional chelating or supplemental. HELP!

>

> I did talk to a doctor today that luckily is on a hour and a half

away

> that has agreed to help us. Unfortunatley, he says he has never

> chelated a person so small and is not sure what the proper way to do

> it is.

>

> He said that he would talk to some colleges and do a referral if

> needed.

>

> COuld you help with me- with what you consider proper protocol

>

> He is three years old 53 pounds and approximately 45 inches tall (

if

> not taller) Thank you

>

> Barb Roth

[Guest guest]

> Barb,

> I wondered how you found out that your 3 yr old has those

metals. Did

> you do a certain test? Who did it? I am considering chelation for

my 7 yr

> old son.

> Truly

We sent the sample to Great Plains lab in Kansas city- ND they sent

it on to Doctors data- (I would recommend sending your sample

directly to Doctor's data- as I have had a few problems with Great

Plains lab and some other parents have too.)

Just find a lab that will do Heavy Metal Toxicty Screening

(hair or urine is best)

Good luck to you......

barb

[Guest guest]

Thanks I had just been there the other day and I didn't see anything

new- But I never left my email address... better go back....

Thanks

barb

[Guest guest]

Dear Moira, Thanks for your reply. I HAD gotten some useful posts via

backchannel, so I'd left it there so as not to clog the list. But thanks,

anyway, Barbara

> I didn't see your post get answered so far.

> I'm pasting an email from Andy (below my name) which answers

> your question in detail. (I saved it because it seemed to really

> cover a lot of the details.)

[Guest guest]

Dear Barb,

I didn't see your post get answered so far.

I'm pasting an email from Andy (below my name) which answers

your question in detail. (I saved it because it seemed to really

cover a lot of the details.)

and Good luck!

Moria

Message: 11

Date: Tue, 26 Dec 2000 18:42:30 -0000

From: " Cutler " <AndyCutler@...>

Subject: Re: TO ANDY CUTLER-WHAT DO YOU THINK IS THE CORRECT CHELATION

PROTOCOL?

The correct chelation protocol is alpha lipoic acid (ALA) every 3

hours 'round the clock (If you have trouble getting up at night to

administer it then doing it every 4 hours at night only does seem to

be OK as long as you stick to every 3 during the day). DMSA may also

be administered with the ALA and seems to increase its effectiveness

and reduce behavioral side effects. You do this for several days in a

row, typically 3 or 4, then wait at least as many days before

repeating it again. You get to repeat it many times before the kid is

well, though you should see progress after a few cycles. Children

under 8 make the most noticeable progress.

A typical schedule would be to start at 9 AM one day, dose at noon, 3

PM, 6, 9, then 1 AM and 5 AM and 9 AM and continue on this schedule

until the 9 PM dose on the third day, then stop.

If you miss a dose and it is more than 4 and a half hours after the

last dose, stop that chelation cycle, wait several days, and re-start.

The harm comes from giving a series of doses that are more than 3 or 4

hours apart, but not all that much more. Unfortunately, the every 8

hour protocol is about optimum for making people really sick. I

realize that is not at all its intent, but the chemicals (DMSA and

ALA) you are feeding your kids are stupid - they do whatever they are

going to do once they get into your kid's bloodstream regardless of

what you or your doctor intended for them to do. You can lecture the

little pills all you want and it doesn't change their behavior ;-)

Some people find that if they are using DMSA with the ALA, and omit

the ALA from the last dose the day after side effects of generally

feeling icky and being in a bad mood are reduced. The day after

effect lessens as chelation progresses.

Dosage is individual, and is determined by side effects. The ALA dose

is varied a lot to find one that is OK. The DMSA seems to have less

side effects on its own - probably because it isn't actually moving

mercury around in the brain.

Typical starting doses are 1-2 mg DMSA per kg of kid, and the same for

the ALA. If the side effects are too much, halve the dose and try

again. It is preferable to use roughly equal amounts of ALA and DMSA,

though they can be in a 1:2 or 2:1 ratio and things will work fine.

It is important to get an accurate diagnosis (as opposed to the

opinion of some highly opinionated alternative medicine doctor) about

which metal is causing the problem since different metals respond to

different chelation regimes - I gave the one for mercury.

You should administer certain supplements all the time, regardless of

whether you are chelating your child or not. There is no chemical

reason to vary supplements depending on chelation. It is too

complicated to do so and you need to make things simple.

The most basic supplements are antioxidants: vitamins C, B complex, E,

mixed carotenes, magnesium, zinc and selenium as selenomethionine. It

is very important to give the B complex and C 4 times a day as they do

NOT last very long in the body. It is also helpful for most children

to give them a few tablespoonsful of flax seed oil each day.

Sulfury supplements should not be randomly admnistered. First figure

out if your child will respond well or poorly to them, then decide on

things like NAC. You can figure this out with a plasma cysteine test

through Great Smokies lab (part of the comprehensive liver

detoxification profile) or by experiment. Note that there is another

compound called cystine which is NOT what you want to measure. If you

do it by experiment it takes about a week of " sulfur exclusion "

followed by reintroducing it to tell what is happening.

This and much more is covered in my book AMALGAM ILLNESS: DIAGNOSIS

AND TREATMENT which is described in more detail at

http://hometown.aol.com/noamalgam.

Andy Cutler

=================================================================

At 10:36 PM 3/27/2001 -0000, you wrote:

>Andy,

>

>I live in ND- and our 3 year old has these metals in him-

>Arsenic, Cadmium, Lead, Mercury, Nickel, and Tin

>

>Here is the catch, there are no Doctor's here that will help

>with either conventional chelating or supplemental. HELP!

>

>I did talk to a doctor today that luckily is on a hour and a half away

>that has agreed to help us. Unfortunatley, he says he has never

>chelated a person so small and is not sure what the proper way to do

>it is.

>

>He said that he would talk to some colleges and do a referral if

>needed.

>

>COuld you help with me- with what you consider proper protocol

>

>He is three years old 53 pounds and approximately 45 inches tall ( if

>not taller) Thank you

>

>Barb Roth

>

>

>

>

>=======================================================

>

[Guest guest]

Moria,

Thank you so very much for the post- I appreciate it:o)

I will print it out and get it into my organizer to take with us!!

I will let you know how the chelating goes- and what are results

are....

If you want to know more about our story-

Join the (Just shy of normal-AutismPDD group)-

I just formed it and have posted our story there....

thanks

[Guest guest]

Moria,

Here is the link-

JSON-AutismPDD

Barb