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Re: The Mouse that Roared

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It seems our world has turned upside down I have encountered so many

people that no longer have personal values, their word means nothing. It

doesn't

bother them, their conscience has been seared. You see it everywhere now.

I'm so glad your daughter has you, no matter what goes on in the world

outside your home she can wrap her arms around you and you can hold her and

everything bad will disappear. You are blessed to have each other.

In a message dated 12/21/2010 8:23:41 A.M. Pacific Standard Time,

j.van.roijen@... writes:

_http://bit.ly/h5jbJy_ (http://bit.ly/h5jbJy)

CFS Patient Advocate

Monday, December 20, 2010

The Mouse that Roared*

Many of the participants of the Blood Study group

advisory committee meandered off to have a little

dinner and feel good about themselves.

Their self-assessment mirrors a comment overheard

recently in a NYC coffee shop: " I feel good about

myself and I think I do a good job. " The rest of us go

back to our life of illness or illness support. It is a

grim life, made more difficult by having to go back to

confront illness reality after a day with these FDA

losers.

It is this disconnect that is really irritating - the

disrespect for this illness that individuals like Coffin

and Stoye display publicly.

They are playing their little games, disguised as

science - and their successes in their careers come at

the expense of patients. They do not give a shit.

This is what I dislike. It is the contempt and the

disregard and the ignorance of the consequences of

their actions. It is in this way that they are modern

people - self-pleasurers.

On this December 20th, a story from November 2009

has taken center stage and has become a

" realization " .

A year ago a well-known cancer virologist was

approached in the halls of the NCI by another

virologist and advised to " distance himself from the

WPI " - that " they (unknown elements) were going to

take out the WPI " . Today this story resounds more

convincingly - and gives some credibility to the lies

that have been circulating over the last few months.

The news today was not good for ME/CFS patients -

not good for their health. For the moment the largest

exposure (what is most suspicious) of these " smoke

'em out " retro-virology papers is the timing.

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