Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Here I am again. I thank everyone again who responded and gave me such good suggestions and help when had her bad exacerbation on Sept. 2. She had lost the use of her right arm and a lot of control of her head and speech. She has come back a long way. But she now is just sort of " blah " . No energy and no ambition. she still does her exercises every day but not very well. We have an appointment booked next week for a total physical just to rule anything else (like an infection we don't notice or something) out but my questions now is this. Just before she had the attack she had tried going to 4.5mg for a few nights. I'm sure this didn't cause it because she has tried different doses in the past couple of years and I guess tried this because she was starting to feel weak and tired again, so something was already up. Anyway, she wants to stay with 3mg She takes it at 11 every night but doesn't go to bed until 1:00 usually. Anyone have any idea if it might help to change the time to 1:00 pm? Or maybe earlier, 9 pm or so? LDN has been so fantastic for her and I can't believe it has just stopped working - I know a change probably has to be made but we are unsure what to try. Our doctor's only sure statement is not to stop the LDN. If anyone has had similar experiences and can suggest something, it would be wonderful to hear from you. Quote Link to comment Share on other sites More sharing options...
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