Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Kim, Are you saying you've never taken IV steroids? If so, the advice I can give is that for my wife, who is relapsing remitting, they are nearly a complete cure of her symptoms. They are very harsh on her body, though. I always sit with her during the infusion and I can see the color drain from her face. She generally does it outpatient 3 times in 3 days. 7 days in hospital is the other option, which she tried once. It makes her very weak and physically very tired, but unable to sleep, making the fatigue worse. Within 2-3 days after the last infusion, she starts to feel better. Full effect takes 1-3 months. Allegedly it takes 6 months for full benefit, but after the first 3 months it's negligible. It causes rapid weight gain, which is what hates most. Last time she gained 30 pounds in 6 days! It's also very hard on a person's bones and teeth. 's teeth are soft genetically. Steroids have cost us considerable money in crowns and bridges. I also worry about her bones. She's done the treatment 6 times in 9 years. Beware that chemo is even more harsh (at least it sounds that way on paper). After we researched it, refused to do it and I agreed. It also has cumulative effects on the body and can only be taken a limited number of times lifetime, at least the one that was recommended to us, the name of which I don't remember. We saw chemo. as a last resort, desparation option. When does steroids, she's almost helplessly weak for about a week and not herself again for a month. Were contemplating doing steroids and chemo. at the same time, I would *emphatically* urge her to wait at least a month, preferably 2, after steroids to start chemo., both to get some strength back and to evaluate her improvements. We also relocated, arriving here for the last trip Sept. 14. was in a bad way starting about mid-August (stress of moving). Her stamina and coordination have improved considerably since we've been here, but her hands and mid section are still numb and the feeling in her legs is still poor. We have an appt. w/ a new neuro. this Thursday. As much as we both hate the steroids, she may be doing them again. It isn't a decision to take lightly. Btw, has been on 4.5 mg. LDN since July 2004. Good luck. kjwxau2004 wrote: >I am looking for some advice from all the old LDNers. Have been on >4mg since Jan compounded at " The compounder " One of the recommended >pharmacists. Moved to a new state and it was stress. Yes I know that >LDN does not work well with stress. Nothing does!! But but I have new >sensations in legs and fingertips are numb. I hada MRI and I have >ACTIVE lesions so it is not old symptoms returning. New Dr wants to do >steroids and discusss chemo. I would like to hear from anyone who has >had to do the steroid route. IF I am correct B husband had to do >steroids. All I am thinking is the longer I holf off on steroid my >nerve tissue is damaged and it is never coming back. I know streaa is >bad,i know where my LDN comes from and I know I Have ACTIVE lesions! >Any help as to what I should do would be appreciated. Kim > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Kim, Back in Sept. I had my chemo treatment along with the ldn.........It did NOT work well together. After you have the chemo you have to watch yourself for at least a week so as to not overdo and put more stress on yourself. Everyone has different reactions to everything so all I can say is to go slowly and do everything with minimum stress. If you haven't done chemo b4 then ask to go on a lower dosage so that you can know how you are going to feel (it can make you nauseas also). As far as steriods, I believe you are not supposed to take them with LDN. O, what state are you now in? maybe someone in her could let you know of a doc that could help > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Hi all, I was on a strong anti biotic, and know my ms seems like, when I started.(ldn) Any suggestions Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Are you taking chemo for cancer? How long? If it not too personal (it is only to help me) what kind of cancer do you have? You can reply to me personally. nardi71@... Re: [low dose naltrexone] having a flair > > Kim, > Back in Sept. I had my chemo treatment along with the > ldn.........It did NOT work well together. After you > have the chemo you have to watch yourself for at > least a week so as to not overdo and put more stress > on yourself. Everyone has different reactions to > everything so all I can say is to go slowly and do > everything with minimum stress. If you haven't done > chemo b4 then ask to go on a lower dosage so that you > can know how you are going to feel (it can make you > nauseas also). As far as steriods, I believe you are > not supposed to take them with LDN. O, what state > are you now in? maybe someone in her could let you > know of a doc that could help > > >> >> >> > > > > > > __________________________________ > - PC Magazine Editors' Choice 2005 > http://mail. > > > > > Quote Link to comment Share on other sites More sharing options...
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