Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Can you give us a bit of information: Is utilizing LDN for MS? Is she on a special diet? Is she taking other supplements? Was there any sort of change in the prescription for LDN when she had started having problems. Sometimes the pharmacies might change the filler that it used. Also make sure that the filler is not quick release (very important). If does not have high blood pressure or any form of cancer, you might want to consider giving her DL-Phenylalanine 500mg. Take one in AM and one around 3pm. Dr. Bihari recommends this if you do > not have high blood pressure. >My husband takes the Solaray brand which is recommended by Dr. Bihari at >500mg twice per > day(Solaray brand). You can get it at healthfood stores or order from the > internet, no Drs. script needed. Dr. Bihari says this will keep your > endorphins up throughout the day. DL-Phenylalanine 500mg by Solaray > http://www.affordablesolaray.com/4871.html >> > What is DL-Phenylalanine? Here are two great explanations. > DL-Phenylalanine > http://www.internalhealth.com/dl_phenylalanine.htm > DL-Phenylalanine > http://www.vrmed.com/dl-phenylalanine.htm Aletha [low dose naltrexone] Dosage > Here I am again. I thank everyone again who responded and gave me such > good suggestions and help when had her bad exacerbation on > Sept. 2. She had lost the use of her right arm and a lot of control of > her head and speech. She has come back a long way. But she now is > just sort of " blah " . No energy and no ambition. she still does her > exercises every day but not very well. We have an appointment booked > next week for a total physical just to rule anything else (like an > infection we don't notice or something) out but my questions now is > this. Just before she had the attack she had tried going to 4.5mg for > a few nights. I'm sure this didn't cause it because she has tried > different doses in the past couple of years and I guess tried this > because she was starting to feel weak and tired again, so something was > already up. Anyway, she wants to stay with 3mg She takes it at 11 > every night but doesn't go to bed until 1:00 usually. Anyone have any > idea if it might help to change the time to 1:00 pm? Or maybe earlier, > 9 pm or so? LDN has been so fantastic for her and I can't believe it > has just stopped working - I know a change probably has to be made but > we are unsure what to try. Our doctor's only sure statement is not to > stop the LDN. If anyone has had similar experiences and can suggest > something, it would be wonderful to hear from you. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 You mentioned to make sure that LDN is not quick release???? Why is this? I was told to make sure that it is not slow release otherwise it won't work at all. Did you mean to say to make sure it is quick release?? [low dose naltrexone] Dosage> Here I am again. I thank everyone again who responded and gave me such> good suggestions and help when had her bad exacerbation on> Sept. 2. She had lost the use of her right arm and a lot of control of> her head and speech. She has come back a long way. But she now is> just sort of "blah". No energy and no ambition. she still does her> exercises every day but not very well. We have an appointment booked> next week for a total physical just to rule anything else (like an> infection we don't notice or something) out but my questions now is> this. Just before she had the attack she had tried going to 4.5mg for> a few nights. I'm sure this didn't cause it because she has tried> different doses in the past couple of years and I guess tried this> because she was starting to feel weak and tired again, so something was> already up. Anyway, she wants to stay with 3mg She takes it at 11> every night but doesn't go to bed until 1:00 usually. Anyone have any> idea if it might help to change the time to 1:00 pm? Or maybe earlier,> 9 pm or so? LDN has been so fantastic for her and I can't believe it> has just stopped working - I know a change probably has to be made but> we are unsure what to try. Our doctor's only sure statement is not to> stop the LDN. If anyone has had similar experiences and can suggest> something, it would be wonderful to hear from you.>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Wordo? typo? mistake? Good catch Also make sure that the filler is not SLOW release (very important). Re: [low dose naltrexone] Dosage/ Can you give us a bit of information:Is utilizing LDN for MS?Is she on a special diet?Is she taking other supplements?Was there any sort of change in the prescription for LDN when she had started having problems. Sometimes the pharmacies might change the filler that it used. Also make sure that the filler is not SLOW release (very important).If does not have high blood pressure or any form of cancer, you might want to consider giving her DL-Phenylalanine 500mg. Take one in AM and one around 3pm. Dr. Bihari recommends this if you do> not have high blood pressure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Something I have learned from my compounding pharmacy is that naltrexone that is crushed from the 50mg tablets becomes unstable and will only be good for about 14 days. I think this is very important to know. Re: [low dose naltrexone] Dosage/ Can you give us a bit of information:Is utilizing LDN for MS?Is she on a special diet?Is she taking other supplements?Was there any sort of change in the prescription for LDN when she had started having problems. Sometimes the pharmacies might change the filler that it used. Also make sure that the filler is not SLOW release (very important).If does not have high blood pressure or any form of cancer, you might want to consider giving her DL-Phenylalanine 500mg. Take one in AM and one around 3pm. Dr. Bihari recommends this if you do> not have high blood pressure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Ooooopppps, Sorry about the mistake, you are right, please make sure the it is not slow release for LDN. Better get some sleep Good night Aletha Re: [low dose naltrexone] Dosage/ Can you give us a bit of information:Is utilizing LDN for MS?Is she on a special diet?Is she taking other supplements?Was there any sort of change in the prescription for LDN when she had started having problems. Sometimes the pharmacies might change the filler that it used. Also make sure that the filler is not SLOW release (very important).If does not have high blood pressure or any form of cancer, you might want to consider giving her DL-Phenylalanine 500mg. Take one in AM and one around 3pm. Dr. Bihari recommends this if you do> not have high blood pressure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 easy mistake to make hope you rest well. Re: [low dose naltrexone] Dosage/ Can you give us a bit of information:Is utilizing LDN for MS?Is she on a special diet?Is she taking other supplements?Was there any sort of change in the prescription for LDN when she had started having problems. Sometimes the pharmacies might change the filler that it used. Also make sure that the filler is not SLOW release (very important).If does not have high blood pressure or any form of cancer, you might want to consider giving her DL-Phenylalanine 500mg. Take one in AM and one around 3pm. Dr. Bihari recommends this if you do> not have high blood pressure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 That was an interesting read. Thank you Aletha, Cris [low dose naltrexone] Dosage> Here I am again. I thank everyone again who responded and gave me such> good suggestions and help when had her bad exacerbation on> Sept. 2. She had lost the use of her right arm and a lot of control of> her head and speech. She has come back a long way. But she now is> just sort of "blah". No energy and no ambition. she still does her> exercises every day but not very well. We have an appointment booked> next week for a total physical just to rule anything else (like an> infection we don't notice or something) out but my questions now is> this. Just before she had the attack she had tried going to 4.5mg for> a few nights. I'm sure this didn't cause it because she has tried> different doses in the past couple of years and I guess tried this> because she was starting to feel weak and tired again, so something was> already up. Anyway, she wants to stay with 3mg She takes it at 11> every night but doesn't go to bed until 1:00 usually. Anyone have any> idea if it might help to change the time to 1:00 pm? Or maybe earlier,> 9 pm or so? LDN has been so fantastic for her and I can't believe it> has just stopped working - I know a change probably has to be made but> we are unsure what to try. Our doctor's only sure statement is not to> stop the LDN. If anyone has had similar experiences and can suggest> something, it would be wonderful to hear from you.>>>>>>>> Quote Link to comment Share on other sites More sharing options...
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