side-effect driven symptoms

[Guest guest]

Good afternoon all!

I have been treating MS with LDN for about 10 months now. The side

effects seemed almost non existent to me for the majority of this

time, however about 2 months ago I went up to 4.5 mg's just to boost

things a little bit. I started to get a cramp in my right foot when

I would awake in the mornings, but I did not correlate this with the

LDN until numbness set into the same leg a month later. I thought I

was experiencing another exacerbation until I remembered that

dosages that were too high can cause stiffness like I was

experiencing. I also read that it can result in exacerbation-like

symptoms. The numbness has been transient at best, sometimes

getting intense, sometimes disappearing altogether. So it

definitely does not possess the unwavering quality that all of my

other attacks have had.

Does this experience coincide with any of your experiences? I

REALLY do not want to take steroids, and have been avoiding them for

about a month while this numbness has waxed and waned. I thought it

might have to do with fillers, but I am pretty sure now that 3.0 is

as high a dose as I should take, and have actually dropped down to

1.5 for the time being. I have also elected to take a night off

each week which I had not done before.

Any advice would be much appreciated!

Jon

[Guest guest]

>

> Good afternoon all!

>

> I have been treating MS with LDN for about 10 months now. The side

> effects seemed almost non existent to me for the majority of this

> time, however about 2 months ago I went up to 4.5 mg's just to boost

> things a little bit. I started to get a cramp in my right foot when

> I would awake in the mornings, but I did not correlate this with the

> LDN until numbness set into the same leg a month later. I thought I

> was experiencing another exacerbation until I remembered that

> dosages that were too high can cause stiffness like I was

> experiencing. I also read that it can result in exacerbation-like

> symptoms. The numbness has been transient at best, sometimes

> getting intense, sometimes disappearing altogether. So it

> definitely does not possess the unwavering quality that all of my

> other attacks have had.

>

> Does this experience coincide with any of your experiences? I

> REALLY do not want to take steroids, and have been avoiding them for

> about a month while this numbness has waxed and waned. I thought it

> might have to do with fillers, but I am pretty sure now that 3.0 is

> as high a dose as I should take, and have actually dropped down to

> 1.5 for the time being. I have also elected to take a night off

> each week which I had not done before.

>

> Any advice would be much appreciated!

>

> Jon

>

=========

Most males, not all males but many tend to do best at 3.0mg, possibly a hormonal

thing. Dr. Bihari would not suggest that you drop as low as 1.5mg since 3.0mg

was working just fine for you and Bihari discourages taking breaks from LDN

unless you need a narcotic or surgery.

[Guest guest]

Jon,

I too, also went to 4.5 mg in September. I was stiff

and was falling a lot which really irritated me. I

thought I was going to have to do something at the

doc's office about this, but and Althea

suggested I drop back down to 3.0 mg LDN. I gave the

4.5 a try for a month and it didn't work went to 4.0

for a week and that still didn't work so I went back

down to 3.0 mg 1 week ago and I am already feeling a

ton better. They gave good advice and I am thankfull

for it. That is my experience with the situation.

--- kloetus <kloetus@...> wrote:

> Good afternoon all!

>

> I have been treating MS with LDN for about 10 months

> now. The side

> effects seemed almost non existent to me for the

> majority of this

> time, however about 2 months ago I went up to 4.5

> mg's just to boost

> things a little bit. I started to get a cramp in my

> right foot when

> I would awake in the mornings, but I did not

> correlate this with the

> LDN until numbness set into the same leg a month

> later. I thought I

> was experiencing another exacerbation until I

> remembered that

> dosages that were too high can cause stiffness like

> I was

> experiencing. I also read that it can result in

> exacerbation-like

> symptoms. The numbness has been transient at best,

> sometimes

> getting intense, sometimes disappearing altogether.

> So it

> definitely does not possess the unwavering quality

> that all of my

> other attacks have had.

>

> Does this experience coincide with any of your

> experiences? I

> REALLY do not want to take steroids, and have been

> avoiding them for

> about a month while this numbness has waxed and

> waned. I thought it

> might have to do with fillers, but I am pretty sure

> now that 3.0 is

> as high a dose as I should take, and have actually

> dropped down to

> 1.5 for the time being. I have also elected to take

> a night off

> each week which I had not done before.

>

> Any advice would be much appreciated!

>

> Jon

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

I started to get a cramp in my right foot when

I would awake in the mornings

I had the same, exactly the problem in my left calf. After a week on

Magneseun + Cuprum compount it dissapeart, and it was not related to

LDN because I had it before I start taking LDN.

[Guest guest]

Awesome, thanks ! I actually dropped down to 1.5 for about a week, and am now back on 3's as of last nite. I woke up feeluing better this morning than I have in a long time. Glad you are feeling better, thanks for the input!

Jonwensu baki <wensubar@...> wrote:

Jon,I too, also went to 4.5 mg in September. I was stiffand was falling a lot which really irritated me. Ithought I was going to have to do something at thedoc's office about this, but and Altheasuggested I drop back down to 3.0 mg LDN. I gave the4.5 a try for a month and it didn't work went to 4.0for a week and that still didn't work so I went backdown to 3.0 mg 1 week ago and I am already feeling aton better. They gave good advice and I am thankfullfor it. That is my experience with the situation.--- kloetus <kloetus@...> wrote:> Good afternoon all! > > I have been treating MS with LDN for about 10 months> now. The side > effects seemed almost non existent to me for the> majority of this > time, however about 2 months ago I went

up to 4.5> mg's just to boost > things a little bit. I started to get a cramp in my> right foot when > I would awake in the mornings, but I did not> correlate this with the > LDN until numbness set into the same leg a month> later. I thought I > was experiencing another exacerbation until I> remembered that > dosages that were too high can cause stiffness like> I was > experiencing. I also read that it can result in> exacerbation-like > symptoms. The numbness has been transient at best,> sometimes > getting intense, sometimes disappearing altogether. > So it > definitely does not possess the unwavering quality> that all of my > other attacks have had. > > Does this experience coincide with any of your> experiences? I > REALLY do not want to take steroids, and have been> avoiding

them for > about a month while this numbness has waxed and> waned. I thought it > might have to do with fillers, but I am pretty sure> now that 3.0 is > as high a dose as I should take, and have actually> dropped down to > 1.5 for the time being. I have also elected to take> a night off > each week which I had not done before.> > Any advice would be much appreciated!> > Jon > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail.

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[Guest guest]

Personally, I don't think anyone should take LDN without first looking

at the official LDN website: www.low dose naltrexone.org. It

specifically says that people with MS who have experienced

stiffness/spasticity before or on LDN, should only take 3 mg. Dr.

Bihari added this piece of information about six months ago.