Re: Re: Re Stopping the progression of MS

[Guest guest]

I basically only take LDN. Been taking B1 since July 2nd. Also 800 MG of Magnesium, periodically, 3 days in a row. That's pretty much it.

[low dose naltrexone] Re: Re Stopping the progression of MS

I suggest that the dose of LDN that is effective on a specific person is a function of the other drugs and supplements being taken by that person. IOW, every drug and supplement can interact with each other; sometimes the effect can be negative. I have had personal experience in this regard and it is an eye opener. The problem is likely to be resolved by the "trial-and-error" approach.Arnold

[Guest guest]

Hi,

B1 is excellent to take. My understanding is that you should also take B12 with that to help it do its thing. My husband takes B12 under his tongue where it dissolves and apparently gets into the blood stream much faster. The B1 that my husband takes is Benfotiamine (none toxic form). See below for earlier messages regarding B12, B1 and from one of the B1 distributors:

Thanks

Aletha

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The relationship between B12 def. and MS is complex, without adding LDN into it.Some may find it news that SEVERE B12 deficiency is associated with oligoclonal bands in the CSF!!. This fact is unknown to 99 % of neurologists or physicians. Furthermore, B12 def. can cause white matter lesions not only in the spinal cord but also in the white matter of the brain. The combined result of these 2 observations is that early stages of MS cannot be distinguished from B12 deficiency.A***********************

Hi & Althea!

I am presently taking one 150mg of Benfotiamine / day.

When I started with it, around 10 months ago, I believe that I commenced with either two or three of the 100mg capsules / day.

Some do start (- & stay!) on 150 mg, four times a day, -600mg/day in all.

My experience was that the beneficial effect was clearly most dramatic initially: -Presumably because of the contrast with the body`s previous sub-optimal B1 level. It seems as though it`s probably a good idea to start at a fairly generous level: -say 300- 600mg/day in order to benefit the body ASAP. Once the body has , as it were, stabilized at an improved level of functioning, my own experience has been that any effect of dosage variations wasn`t apparent to me ( providing I am taking it once a day, at either 100 or 150mg). -When my first order ran out & I tried doing without for a bit, my energy level/sense of wellbeing did fade, but came back again when I recommenced taking it.

If one is taking more than one cap. a day, it`s probably better to spread them through the day.

Regarding the question of which cap:

"........I notice there the company sells 3 different types, one is 100mg, one is 150 and the other is 150 but with veggie caps.......?"

I most recently settled on the 150mg as it was presented as the most economical: -I would have gone for the veggie cap except that I don`t consume the cap anyway, -just the contents! ( I have been taking MANY, MANY supplements for years & recently I have been experiencing more difficulty in swallowing tabs & caps, so now I empty all caps directly into my mouth & discard the empty caps. (- except the LDN ones, which I use to help me divide up my LDN doses accurately!.....)

Re. dosage, on www.benfotiamine.org (- a very extensive source of info-) there is talk of a range of dosage approaches:

".......HOW MUCH SHOULD I USE? One approach is to begin with a relatively high daily usage which one then steps down to a maintenance level after 6-12 weeks. E.G., 300-450mg. daily for four weeks, then stepping down to 200-300mg. daily for four to six weeks, then beginning a maintenance usage of 100-150 mg. daily.

Another approach is to begin with a relatively lower daily use amount, then step it up every two weeks until a maximum perceived beneficial effect is achieved. A typical regime would begin with 200-300mg. daily for two weeks, then increase to 300-450mg. daily, then possibly move to 400-600mg. daily. A common median dosage is 600mg. per day. Some use half that amount and others use twice that amount per day. The point here is that benfotiamine is safe at any reasonable daily usage level, an individual should merely find the level that produces the maximum beneficial effect without reaching a point of diminishing return beyond which the excess amount is wasted........"

-Seems that the exact dosage isn`t necessarily that critical & that it`s up to us to go figure what suits us best.

Good Luck!

Gerald

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Dear Benfotiamine.Net Customers:

I have recently introduced two new products you may be interested in.

1) Benfo-150 Multi-B Neuropathy Support Formula, a 150mg. benfotiamine capsule which also supplies vitamins B-2, B-5, B-6, B-12 and Folic Acid. Benfotiamine appears to be enhanced by the other B vitamins, so if you are not already taking a B-complex vitamin, this product may be for you.

2) BenfoCreme, a 1% solution of benfotiamine in a soothing body butter for topical application. This product is the results of customer requests for such a product and I am pleased to offer it.

You may read more about both of these new products at: http://www.benfotiamine.net.

Comprehensive information about benfotiamine may be viewed here: http://www.benfotiamine.org/FAQ.htm.

Thank you for your patronage. I hope to continue to provide you with the purest pharmaceutical-grade benfotiamine products at the lowest possible prices.

Best regards,Louis MontgomeryBenfotiamine.Net, Inc.6542 Hypoluxo Road, Suite 114Lake Worth, FL 33467(888) 493-8014http://www.benfotiamine.net

[low dose naltrexone] Re: Re Stopping the progression of MS

I suggest that the dose of LDN that is effective on a specific person is a function of the other drugs and supplements being taken by that person. IOW, every drug and supplement can interact with each other; sometimes the effect can be negative. I have had personal experience in this regard and it is an eye opener. The problem is likely to be resolved by the "trial-and-error" approach.Arnold

[Guest guest]

In a message dated 10/23/2005 3:27:03 PM Central Daylight Time, how2missyou@... writes:

I hope that the "overdose" MS progression is only tempory. My husband was still getting worse on 4.5. We dropped the dosage to 3.0 just last week. We decided to get the compounders to give us 3.0 capsules and 1.5 capsules (instead of 4.5) just so we can experiment.

Does anyone know if the worsened symptoms are tempory?

PS. Thanks for the comment on the placebo--one more thing to ask--

Why is there increased leg stiffness at the beginning for so many people if LDN is just a placebo?

Thanks.

Louise

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Louise,

LDN is not a placebo. If it was, why would so many people see improvements? There is no way to know for sure if the worsened symptoms will subside. Chances are, the LDN didn't cause the symptoms. Too many people take LDN thinking it's a miracle. It's main purpose is to halt or slow progression. If one gets symptom relief, that's a plus.

Go to www.low dose naltrexone.org. Read up on LDN.

Marcie

[Guest guest]

Hi Louise,

Most men do best on 3.0mg, while women do best on 4.5mg. My husband started

on 4.5 and had some new areas of tingling and numbness which scared us both.

Luckily someone on the chat site told me to have him take it down to 3.0 and

that did the trick. Also, it is good that you are having the pills made in

that dosage as you don't want to just dump out some of the pill. The active

ingredient is not always necessarily evenly distributed in each capsule.

Hang in there, my husband is doing great, but it took some playing around to

get things right. He is now doing sports everyday. He has been on LND for

almost 11 months.

If you would like me to send you our welcome package for LDN, with various

sites listed and the protocols for LDN from Dr. ce, just let me know.

Also we have some info on diets and supplements listed.

Aletha

[low dose naltrexone] Re Stopping the progression of MS

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>> So far as I can see from our experience of LDN and reading others

> experiences the issue is setting the correct dose for the individual.

> My wife does well on 2.8MG but taking 4.5 made her much worse, worse

> than doing nothing. If you do not use the maximum dose that benefits

> you then you do run the risk of LDN not stopping MS progress, but if

> you go over the maximum dose that benefits you then you will do harm.

> Some can not cope with more than 1.5MG but those for whom that is the

> right dose they do fine, my wife started to get worse on 1.5Mg not as

> bad as 4.5Mg but 1.5Mg was not sufficient in her case to stop MS

> progress. A lot of debate has taken place on how to set the dose

> based on sex, height weight etc. and no rational method seems

> possible.

>>

>> When you come across those that dismiss LDN as a placebo asking

> why the dose has to be so accurately defined before the placebo

> effect happens does seem to end the discussion.

>>

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[Guest guest]

Aletha, I would appreciate anything you could send me - LDN is brand new to

me - 5th day... Barry

> If you would like me to send you our welcome package for LDN,

> with various sites listed and the protocols for LDN from Dr.

ce, just let me know.

> Also we have some info on diets and supplements listed.

[low dose naltrexone] Re Stopping the progression of MS

>>>

>>>

>>> So far as I can see from our experience of LDN and reading others

>> experiences the issue is setting the correct dose for the individual.

>> My wife does well on 2.8MG but taking 4.5 made her much worse, worse

>> than doing nothing. If you do not use the maximum dose that benefits

>> you then you do run the risk of LDN not stopping MS progress, but if

>> you go over the maximum dose that benefits you then you will do harm.

>> Some can not cope with more than 1.5MG but those for whom that is the

>> right dose they do fine, my wife started to get worse on 1.5Mg not as

>> bad as 4.5Mg but 1.5Mg was not sufficient in her case to stop MS

>> progress. A lot of debate has taken place on how to set the dose

>> based on sex, height weight etc. and no rational method seems

>> possible.

>>>

>>> When you come across those that dismiss LDN as a placebo asking

>> why the dose has to be so accurately defined before the placebo

>> effect happens does seem to end the discussion.

>>>

>>

>>

>>

>>

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