Re: LDN Research Trust Newsletter

[Guest guest]

dear friend,

i am emailing you as a matter of urgency.

my nephew aged 7 was just diagnosed with ald

(adrenoleucodystrophy) and is already blind. i need to

know if you have info in the database wrt ldn as

treatment for ald. i have had a undiagnosed

progressive disability for the last 15 years which may

be the adult form. i have joined the lnn group at

, so please email. thank you.

yours deo

--- linda_ms_friends <_east_anglia@...>

wrote:

> Hi Everyone,

>

> I would like to ask for your help, if you have read

> our newsletter

> (www.ldnresearchtrust.org on the homepage)you will

> have noticed we

> write articles about people using LDN as a treatment

> for MS. We are

> getting more and more people asking about LDN as a

> treatment for

> other conditions. We would like to address this

> issue with your

> help and support.

>

> Does anyone have experience of LDN that they would

> like to share? We

> can write the article, if we were sent the facts. We

> could add your

> name and a photograph with your permission or just

> initials if you

> preferred.

>

> We have almost 2,000 on our database and that figure

> is growing

> daily.

>

> Please can you help us inform others about LDN as a

> treatment for

> all the conditions Dr Bihari suggests LDN to work

> for.

>

> You can email me on elsegood@...

>

> Many Thanks,

>

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hi Deo,

I'm so sorry that I am unable to help either you or your nephew. I

don't know of anyone with ald, but you're asking in the right place.

I'm sure people here will help you if they are able.

Good Luck to all your family,

>

> > Hi Everyone,

> >

> > I would like to ask for your help, if you have read

> > our newsletter

> > (www.ldnresearchtrust.org on the homepage)you will

> > have noticed we

> > write articles about people using LDN as a treatment

> > for MS. We are

> > getting more and more people asking about LDN as a

> > treatment for

> > other conditions. We would like to address this

> > issue with your

> > help and support.

> >

> > Does anyone have experience of LDN that they would

> > like to share? We

> > can write the article, if we were sent the facts. We

> > could add your

> > name and a photograph with your permission or just

> > initials if you

> > preferred.

> >

> > We have almost 2,000 on our database and that figure

> > is growing

> > daily.

> >

> > Please can you help us inform others about LDN as a

> > treatment for

> > all the conditions Dr Bihari suggests LDN to work

> > for.

> >

> > You can email me on elsegood@b...

> >

> > Many Thanks,

> >

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

[Guest guest]

re ' ... We have almost 2,000 (stories) on our database and that figure is growing daily. ... '

Hi , New members to the LDN group would probably love to read the stories. Where can they access them?

re ' ... LDN as a treatment for other conditions. ... '

There is indication LDN benefits other disease conditions, however; the segregation of success stories into isolated groups (eg 's low dose naltrexone group) means the sharing of information is limited to the group. The information, whilst very helpful to the group is slow to leak out to others it may help.

This is why I created one central database which overcomes this problem and makes the information accessible to all. Also, stories are uploaded to the Case Health website with keywords (symptom, condition, and treatment) relevant to each health success story. Keywords create links that provide clues for researchers, medical professionals, or other interested parties. Modern medicine does not have all the answers. Keywords are an aid to discovery.

re ' ... We can write the article, if we were sent the facts. ... '

There are very sound reasons why those who've overcome or tamed their illness (regardless of modality - LDN or otherwise) should write and share their success story (in sufficient detail to be helpful to others). If someone doesn't feel comfortable writing their story, assistance is available.

Regards,

Cris

Cris KerrAdministrator'Case Health - Health Success Stories' websiteURL: www.casehealth.com.au & www.casehealth.comWebsite Email: Online formatAustralia

About Case Health ...

'Case Health - Health Success Stories' is a non-income-earning community website providing a free health information-sharing service based on visitor's anecdotal stories of health success. The online database also contains a selection of successful research results. Any visitor can submit their own non-identifying health success story, or; search the database for other health success stories of WHAT WORKS then discuss this information with their doctor. Free searches by condition, symptom, or treatment. Don't have time to enter a story via the online submission form? Submit via the email contact form. We'll do the rest. We can also notify you of new stories. Case Health is a safe surfing site and does not ... sell anything, generate SPAM, spy, or conduct any other intrusions.

HONcode accredited website.

[low dose naltrexone] LDN Research Trust Newsletter

Hi Everyone,I would like to ask for your help, if you have read our newsletter (www.ldnresearchtrust.org on the homepage)you will have noticed we write articles about people using LDN as a treatment for MS. We are getting more and more people asking about LDN as a treatment for other conditions. We would like to address this issue with your help and support.Does anyone have experience of LDN that they would like to share? We can write the article, if we were sent the facts. We could add your name and a photograph with your permission or just initials if you preferred.We have almost 2,000 on our database and that figure is growing daily.Please can you help us inform others about LDN as a treatment for all the conditions Dr Bihari suggests LDN to work for.You can email me on elsegood@...Many Thanks,

[Guest guest]

Thanks

I have emailed you

>

> re ' ... We have almost 2,000 (stories) on our database and that

figure is growing daily. ... '

>

> Hi , New members to the LDN group would probably love to read

the stories. Where can they access them?

>

> re ' ... LDN as a treatment for other conditions. ... '

>

> There is indication LDN benefits other disease conditions,

however; the segregation of success stories into isolated groups (eg

's low dose naltrexone group) means the sharing of information is

limited to the group. The information, whilst very helpful to the

group is slow to leak out to others it may help.

>

> This is why I created one central database which overcomes this

problem and makes the information accessible to all. Also, stories

are uploaded to the Case Health website with keywords (symptom,

condition, and treatment) relevant to each health success story.

Keywords create links that provide clues for researchers, medical

professionals, or other interested parties. Modern medicine does not

have all the answers. Keywords are an aid to discovery.

>

> re ' ... We can write the article, if we were sent the facts. ... '

>

> There are very sound reasons why those who've overcome or tamed

their illness (regardless of modality - LDN or otherwise) should

write and share their success story (in sufficient detail to be

helpful to others). If someone doesn't feel comfortable writing

their story, assistance is available.

>

> Regards,

> Cris

>

> Cris Kerr

> Administrator

> 'Case Health - Health Success Stories' website

> URL: www.casehealth.com.au & www.casehealth.com

> Website Email: Online format

> Australia

>

> About Case Health ...

>

> 'Case Health - Health Success Stories' is a non-income-earning

community website providing a free health information-sharing

service based on visitor's anecdotal stories of health success. The

online database also contains a selection of successful research

results.

>

> Any visitor can submit their own non-identifying health success

story, or; search the database for other health success stories of

WHAT WORKS then discuss this information with their doctor. Free

searches by condition, symptom, or treatment. Don't have time to

enter a story via the online submission form? Submit via the email

contact form. We'll do the rest. We can also notify you of new

stories. Case Health is a safe surfing site and does not ... sell

anything, generate SPAM, spy, or conduct any other intrusions.

>

> HONcode accredited website.

> [low dose naltrexone] LDN Research Trust Newsletter

>

>

> Hi Everyone,

>

> I would like to ask for your help, if you have read our

newsletter

> (www.ldnresearchtrust.org on the homepage)you will have noticed

we

> write articles about people using LDN as a treatment for MS. We

are

> getting more and more people asking about LDN as a treatment for

> other conditions. We would like to address this issue with your

> help and support.

>

> Does anyone have experience of LDN that they would like to

share? We

> can write the article, if we were sent the facts. We could add

your

> name and a photograph with your permission or just initials if

you

> preferred.

>

> We have almost 2,000 on our database and that figure is growing

> daily.

>

> Please can you help us inform others about LDN as a treatment

for

> all the conditions Dr Bihari suggests LDN to work for.

>

> You can email me on elsegood@b...

>

> Many Thanks,

>

>

>

>

>

>

>

>

>

>