Re: UK press release LDN-----some WORSENED by LDN ???

[Guest guest]

How frightening to be told some are harmed by LDN!! I

had a phone consult and had taken LDN for a year

starting June 20, 2004 when I suffered great pain

diagnosd as a heat flare (my first despite living in

Indiana and Texas with MS.) The Oregon coast had

unusually high temps in the summer of 2004. I did an

overnight in the Lincoln City, OR hospital July 3-4,

2004. I have regained bladder control and no longer

fall without regaining upright stance w/o 911

ambulance help. I'm lately feeling the " crawling "

facial sensations of shingles between my eyes at age

19 years, 2 months after 10 months of a marriage that

ended in divorce. The pain and tingling in foot and

ankle resulted in the end of swelling and puffiness

after more than two years. I now welcome every ache

and pain as healing of old injuries. The Australian

News article says some have been damaged by LDN.

WHO?? All best, Shirley

Please inform me of all those with permanent

worsening after taking LDN. Thanks, Shirley

--- healthyseed <p.thomson@...> wrote:

> http://www.sundayherald.com/52279

>

>

>

>

__________________________________

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[Guest guest]

Hi Everyone,

It's been awhile since I posted, but I've been taking LDN for almost 2 years now..I started out with 4.5mg the recommended dose, and that was making me very dizzy so my doctor reduced it to 2.5mg and it seemed like that wasn't doing any good, so now I'm on 3mg and it is making me very very stiff I could hardly stand it and when I take the baclofen that relaxed my muscles too much that I can hardly walk...I went to my doctor last week and I told him what was happening he put me back on 2.5mg. The good thing about LDN is since I've been on it I haven't had any major relapses..just a little fatigue and off balance here and there...I read about the Kalawalla and I'm thinking about taking that to see what will happen. From what I've read it seem like it is going to do wonders for me.

Shirley Lotz <shylotz@...> wrote:

How frightening to be told some are harmed by LDN!! Ihad a phone consult and had taken LDN for a yearstarting June 20, 2004 when I suffered great paindiagnosd as a heat flare (my first despite living inIndiana and Texas with MS.) The Oregon coast hadunusually high temps in the summer of 2004. I did anovernight in the Lincoln City, OR hospital July 3-4,2004. I have regained bladder control and no longerfall without regaining upright stance w/o 911ambulance help. I'm lately feeling the "crawling"facial sensations of shingles between my eyes at age19 years, 2 months after 10 months of a marriage thatended in divorce. The pain and tingling in foot andankle resulted in the end of swelling and puffinessafter more than two years. I now welcome every acheand pain as healing of old injuries. The

AustralianNews article says some have been damaged by LDN. WHO?? All best, Shirley Please inform me of all those with permanentworsening after taking LDN. Thanks, Shirley--- healthyseed <p.thomson@...> wrote:> http://www.sundayherald.com/52279> > > > __________________________________ Music Unlimited Access over 1 million songs. Try it free.http://music./unlimited/

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

>

> How frightening to be told some are harmed by LDN!! I

> had a phone consult and had taken LDN for a year

> starting June 20, 2004 when I suffered great pain

> diagnosd as a heat flare (my first despite living in

> Indiana and Texas with MS.) The Oregon coast had

> unusually high temps in the summer of 2004. I did an

> overnight in the Lincoln City, OR hospital July 3-4,

> 2004. I have regained bladder control and no longer

> fall without regaining upright stance w/o 911

> ambulance help. I'm lately feeling the " crawling "

> facial sensations of shingles between my eyes at age

> 19 years, 2 months after 10 months of a marriage that

> ended in divorce. The pain and tingling in foot and

> ankle resulted in the end of swelling and puffiness

> after more than two years. I now welcome every ache

> and pain as healing of old injuries. The Australian

> News article says some have been damaged by LDN.

> WHO?? All best, Shirley

>

>

>

>

>

>

> Please inform me of all those with permanent

> worsening after taking LDN. Thanks, Shirley

===========

I think that those who thought they got worse on LDN were those who were afraid

to ride out some of the initial symptoms that can occur in the beginning of LDN

treatment. Those who have been misdiagnosed and actually have Lyme have not

done all that well with LDN but upon stopping LDN the worsening stopped and they

returned back to previous state before taking LDN.

I've never heard of anyone having permanent damage from LDN. LDN may not halt

the disease progression but it will not cause permanent damage at 3.0mg or 4.5mg

taken 1 time per night. Dr. Bihari and Dr. Gluck have done over 20 years of

research on LDN for many types of diseases and nobody has had damage from LDN.

[Guest guest]

I felt, overall, it was a positive story.

This is the extract:

' ... "There have been people who have got worse on it, there have been people it has done nothing for," he said. "But it is a very interesting, variable response and I think this is where we really need trials, as there is something happening for quite a lot of people." ... '

The term 'something happening' infers something good is happening.

Everyone is different, hence the need for clinical trials to answer questions.

Regards,

Cris

Re: [low dose naltrexone] UK press release LDN-----some WORSENED by LDN ???

Hi Everyone,

It's been awhile since I posted, but I've been taking LDN for almost 2 years now..I started out with 4.5mg the recommended dose, and that was making me very dizzy so my doctor reduced it to 2.5mg and it seemed like that wasn't doing any good, so now I'm on 3mg and it is making me very very stiff I could hardly stand it and when I take the baclofen that relaxed my muscles too much that I can hardly walk...I went to my doctor last week and I told him what was happening he put me back on 2.5mg. The good thing about LDN is since I've been on it I haven't had any major relapses..just a little fatigue and off balance here and there...I read about the Kalawalla and I'm thinking about taking that to see what will happen. From what I've read it seem like it is going to do wonders for me.

Shirley Lotz <shylotz@...> wrote:

How frightening to be told some are harmed by LDN!! Ihad a phone consult and had taken LDN for a yearstarting June 20, 2004 when I suffered great paindiagnosd as a heat flare (my first despite living inIndiana and Texas with MS.) The Oregon coast hadunusually high temps in the summer of 2004. I did anovernight in the Lincoln City, OR hospital July 3-4,2004. I have regained bladder control and no longerfall without regaining upright stance w/o 911ambulance help. I'm lately feeling the "crawling"facial sensations of shingles between my eyes at age19 years, 2 months after 10 months of a marriage thatended in divorce. The pain and tingling in foot andankle resulted in the end of swelling and puffinessafter more than two years. I now welcome every acheand pain as healing of old injuries. The AustralianNews article says some have been damaged by LDN. WHO?? All best, Shirley Please inform me of all those with permanentworsening after taking LDN. Thanks, Shirley--- healthyseed <p.thomson@...> wrote:> http://www.sundayherald.com/52279> > > > __________________________________ Music Unlimited Access over 1 million songs. Try it free.http://music./unlimited/

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

what is kalawalla? Re: [low dose naltrexone] UK press release LDN-----some WORSENED by LDN ???

Hi Everyone,

It's been awhile since I posted, but I've been taking LDN for almost 2 years now..I started out with 4.5mg the recommended dose, and that was making me very dizzy so my doctor reduced it to 2.5mg and it seemed like that wasn't doing any good, so now I'm on 3mg and it is making me very very stiff I could hardly stand it and when I take the baclofen that relaxed my muscles too much that I can hardly walk...I went to my doctor last week and I told him what was happening he put me back on 2.5mg. The good thing about LDN is since I've been on it I haven't had any major relapses..just a little fatigue and off balance here and there...I read about the Kalawalla and I'm thinking about taking that to see what will happen. From what I've read it seem like it is going to do wonders for me.

Shirley Lotz <shylotz@...> wrote:

How frightening to be told some are harmed by LDN!! Ihad a phone consult and had taken LDN for a yearstarting June 20, 2004 when I suffered great paindiagnosd as a heat flare (my first despite living inIndiana and Texas with MS.) The Oregon coast hadunusually high temps in the summer of 2004. I did anovernight in the Lincoln City, OR hospital July 3-4,2004. I have regained bladder control and no longerfall without regaining upright stance w/o 911ambulance help. I'm lately feeling the "crawling"facial sensations of shingles between my eyes at age19 years, 2 months after 10 months of a marriage thatended in divorce. The pain and tingling in foot andankle resulted in the end of swelling and puffinessafter more than two years. I now welcome every acheand pain as healing of old injuries. The AustralianNews article says some have been damaged by LDN. WHO?? All best, Shirley Please inform me of all those with permanentworsening after taking LDN. Thanks, Shirley--- healthyseed <p.thomson@...> wrote:> http://www.sundayherald.com/52279> > > > __________________________________ Music Unlimited Access over 1 million songs. Try it free.http://music./unlimited/

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

The plant polypodium leucotomos is a fern native to Honduras.

Kalawalla and Rapuani are brand names for food supplements derived from the plant.

Here's a link to an interesting study on the possible dermatological benefits of polypodium leucotomos: 'The Journal of Investigative Dermatology - How to Prevent Photoaging?'; Polypodium leucotomos (PL) - http://www.blackwell-synergy.com/doi/full/10.1111/j.0022-202X.2005.23810.x

Regards,

Cris

Re: [low dose naltrexone] UK press release LDN-----some WORSENED by LDN ???

Hi Everyone,

It's been awhile since I posted, but I've been taking LDN for almost 2 years now..I started out with 4.5mg the recommended dose, and that was making me very dizzy so my doctor reduced it to 2.5mg and it seemed like that wasn't doing any good, so now I'm on 3mg and it is making me very very stiff I could hardly stand it and when I take the baclofen that relaxed my muscles too much that I can hardly walk...I went to my doctor last week and I told him what was happening he put me back on 2.5mg. The good thing about LDN is since I've been on it I haven't had any major relapses..just a little fatigue and off balance here and there...I read about the Kalawalla and I'm thinking about taking that to see what will happen. From what I've read it seem like it is going to do wonders for me.

Shirley Lotz <shylotz@...> wrote:

How frightening to be told some are harmed by LDN!! Ihad a phone consult and had taken LDN for a yearstarting June 20, 2004 when I suffered great paindiagnosd as a heat flare (my first despite living inIndiana and Texas with MS.) The Oregon coast hadunusually high temps in the summer of 2004. I did anovernight in the Lincoln City, OR hospital July 3-4,2004. I have regained bladder control and no longerfall without regaining upright stance w/o 911ambulance help. I'm lately feeling the "crawling"facial sensations of shingles between my eyes at age19 years, 2 months after 10 months of a marriage thatended in divorce. The pain and tingling in foot andankle resulted in the end of swelling and puffinessafter more than two years. I now welcome every acheand pain as healing of old injuries. The AustralianNews article says some have been damaged by LDN. WHO?? All best, Shirley Please inform me of all those with permanentworsening after taking LDN. Thanks, Shirley--- healthyseed <p.thomson@...> wrote:> http://www.sundayherald.com/52279> > > > __________________________________ Music Unlimited Access over 1 million songs. Try it free.http://music./unlimited/

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Shirley,

I would interpret " There have been people who have got worse on it " not

as meaning the LDN has made them worse but just that it hasn't actually

helped them to stop progressing.

>

> */Shirley Lotz <shylotz@...>/* wrote:

>

> How frightening to be told some are harmed by LDN!!

>

[Guest guest]

I don't believe it. Correlation doesn't imply causation and this sounds like a ploy to scare others. It sounds like something the ms society would write. God forbid someone find an inexpensive solution and those who profit from the pharmaceutical companies have to take a paycut or some other benefit which they receive at the chronically ill persons expense.

Re: [low dose naltrexone] UK press release LDN-----some WORSENED by LDN ???

How frightening to be told some are harmed by LDN!! Ihad a phone consult and had taken LDN for a yearstarting June 20, 2004 when I suffered great paindiagnosd as a heat flare (my first despite living inIndiana and Texas with MS.) The Oregon coast hadunusually high temps in the summer of 2004. I did anovernight in the Lincoln City, OR hospital July 3-4,2004. I have regained bladder control and no longerfall without regaining upright stance w/o 911ambulance help. I'm lately feeling the "crawling"facial sensations of shingles between my eyes at age19 years, 2 months after 10 months of a marriage thatended in divorce. The pain and tingling in foot andankle resulted in the end of swelling and puffinessafter more than two years. I now welcome every acheand pain as healing of old injuries. The AustralianNews article says some have been damaged by LDN. WHO?? All best, Shirley Please inform me of all those with permanentworsening after taking LDN. Thanks, Shirley--- healthyseed <p.thomson@...> wrote:> http://www.sundayherald.com/52279> > > > __________________________________ Music Unlimited Access over 1 million songs. Try it free.http://music./unlimited/

[Guest guest]

I agree . That is a better way of articulating what I really felt. Thank you for expressing it so well!!!!! Kathy

Re: [low dose naltrexone] UK press release LDN-----some WORSENED by LDN ???

Shirley,I would interpret "There have been people who have got worse on it" not as meaning the LDN has made them worse but just that it hasn't actually helped them to stop progressing.>> */Shirley Lotz <shylotz@...>/* wrote:>> How frightening to be told some are harmed by LDN!!>