Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 My advice would be to get your nephew on ldn ASAP .. again it is not known medically if ald is autoimmune but EQUALLY it is not known that it is not. It is also highly debated whether or not MS is autoimmune .. so .. we know ldn works for MS .. so if I had a family member .. especially a young one like you whereby onset is brutal .. ldn is most certainly worth a shot .. This clip even links ald to MS .. so there is hope .. myelin breakdown could well be autoimmune in origin ..(Lay persons opinion) Adrenoleukodystrophy (ALD) is a rare, genetic disorder characterized by the breakdown or loss of the myelin sheath surrounding nerve cells in the brain and progressive dysfunction of the adrenal gland. ALD is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, the fatty covering -- which acts as an insulator -- on nerve fibers in the brain. All the Best > > dear group, > my nephew, age 7, was just diagnosed with > adrenoleukodystrophy. i am 42 male and have been suffering from a > mysterious disability for the last 15 years. so the disability was > most probably caused by adult onset ald. my question to you is. have > any members with adult onset ald or with children with juvenile ald > used ldn? my nephew who was positively diagnosed with the disease > three weeks ago is now totally blind and is going down fast. i need > help for myself and nephew. please email. thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 One more thing .. If I were you I would also start LDN asap .. but the urgency remains for your nephew .. this is the link I forgot to add to previous email .. http://healthlink.mcw.edu/article/921176192.html All the best > > > > > My advice would be to get your nephew on ldn ASAP .. again it is not > known medically if ald is autoimmune but EQUALLY it is not known that > it is not. It is also highly debated whether or not MS is > autoimmune .. so .. we know ldn works for MS .. so if I had a family > member .. especially a young one like you whereby onset is brutal .. > ldn is most certainly worth a shot .. This clip even links ald to > MS .. so there is hope .. myelin breakdown could well be autoimmune in > origin ..(Lay persons opinion) > > > Adrenoleukodystrophy (ALD) is a rare, genetic disorder characterized > by the breakdown or loss of the myelin sheath surrounding nerve cells > in the brain and progressive dysfunction of the adrenal gland. ALD is > one of a group of genetic disorders called the leukodystrophies that > cause damage to the myelin sheath, the fatty covering -- which acts as > an insulator -- on nerve fibers in the brain. > > All the Best > > > --- In low dose naltrexone , " deosee " <deosee@y...> wrote: > > > > dear group, > > my nephew, age 7, was just diagnosed with > > adrenoleukodystrophy. i am 42 male and have been suffering from a > > mysterious disability for the last 15 years. so the disability was > > most probably caused by adult onset ald. my question to you is. have > > any members with adult onset ald or with children with juvenile ald > > used ldn? my nephew who was positively diagnosed with the disease > > three weeks ago is now totally blind and is going down fast. i need > > help for myself and nephew. please email. thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 I don't have any experience with this, but wanted to offer my sympathy and prayers for you, your nephew, and your whole family. I hope you get a miracle soon. Marilyn [low dose naltrexone] ldn and ald > dear group, > my nephew, age 7, was just diagnosed with > adrenoleukodystrophy. i am 42 male and have been suffering from a > mysterious disability for the last 15 years. so the disability was > most probably caused by adult onset ald. my question to you is. have > any members with adult onset ald or with children with juvenile ald > used ldn? my nephew who was positively diagnosed with the disease > three weeks ago is now totally blind and is going down fast. i need > help for myself and nephew. please email. thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 --- In low dose naltrexone , " mboylebradley " <mboylebradley@v...> wrote: > > > > > My advice would be to get your nephew on ldn ASAP .. again it is not > known medically if ald is autoimmune but EQUALLY it is not known that > it is not. It is also highly debated whether or not MS is > autoimmune .. so .. we know ldn works for MS .. so if I had a family > member .. especially a young one like you whereby onset is brutal .. > ldn is most certainly worth a shot .. This clip even links ald to > MS .. so there is hope .. myelin breakdown could well be autoimmune in > origin ..(Lay persons opinion) > > > Adrenoleukodystrophy (ALD) is a rare, genetic disorder characterized > by the breakdown or loss of the myelin sheath surrounding nerve cells > in the brain and progressive dysfunction of the adrenal gland. ALD is > one of a group of genetic disorders called the leukodystrophies that > cause damage to the myelin sheath, the fatty covering -- which acts as > an insulator -- on nerve fibers in the brain. > > All the Best > ======== Well said what I as going to say. She just saved me alot of typing. ALD does appear to possibly be autoimmune and if it is then LDN should help. LDN website http://www.low dose naltrexone.org Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.