Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Thank you for this post.....I started 4.5 on 9/12 and for a week it made me miserable...of course I had cheno at the same time and that did not help.....upon advice from the group I stuck with this dose and I am doing ok but my walking is getting worse....My knees are both locking up. I take 1 DLPA in the morning about 7-8 am....I am fine until about noon/1 pm. then I start going downhill. It is frustrating me.....I will try taking this at a different time but if someone has more advise I would most greatly appriciate it... Thanx in advance --- A T <antaurus24478@...> wrote: > dear group members. > i thought i woould like to shae this with you all. > i am using 4.5 mg liquid ldn for my problems. > after a while like 6 weeks it looked like the ldn > stopped working - i user to take it at 9 pm . > hen i just chose to experiment around a little bit > i stated taking ldn between 10 and 10:30 pm and > it's > effect kicked right back in. > if some one felt the effect wear off - try this it > might help. > luv - a t > > > > > __________________________________ > - PC Magazine Editors' Choice 2005 > http://mail. > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 , then don't take 4.5 mg! Dr. Bihari would tell you to cut down to 3. I also had locking legs and stiffness at the higher dosage. Also, the LDN website (www.lowdosenaltexone.org) says that people who are or who have experienced stiffness/spasticity should take 3 mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 , Thank you for your note. I had cut the dose back to 4.0 mg and that seems to be helping until around 6 pm. That is when my legs start getting stiff again. I was told by my doc that I may have to experiment with which dose would be best for me. I am going to stay with this until I find it may not work. As far as 3mg and 4.5mg being the only doses Dt. Bihari prescribes, I don't think is correct. My friend who suggested this to me, is a patient of his and he has her on 3.5 mg. Thank you for your advice...if you or anyone think I should go back to 3.mg instead of 4 or even 3.5. Then I would appriciate hearing so. I have only been taking this since June. Is the point of LDN use to just stop progression or are we supposed to be able to build up to the higher dosage also? Thank you __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Hi , You are right. The optimal dose would be 4.5mg if possible, but everyone's body is different. Dr. Bihari suggests 4.5 if it works. He has my husband down to 3mg because he was feeling tingling and numbness in new areas after starting 4.5mg. That did the trick and he has just stayed on 3mg since then. You just have to pay attention to how your body is doing and alter the dosage to where you feel best. Aletha Re: [low dose naltrexone] Re: time change helped > , > Thank you for your note. I had cut the dose back to > 4.0 mg and that seems to be helping until around 6 pm. > That is when my legs start getting stiff again. I was > told by my doc that I may have to experiment with > which dose would be best for me. I am going to stay > with this until I find it may not work. > As far as 3mg and 4.5mg being the only doses Dt. > Bihari prescribes, I don't think is correct. My > friend who suggested this to me, is a patient of his > and he has her on 3.5 mg. > > Thank you for your advice...if you or anyone think I > should go back to 3.mg instead of 4 or even 3.5. Then > I would appriciate hearing so. I have only been > taking this since June. Is the point of LDN use to > just stop progression or are we supposed to be able to > build up to the higher dosage also? > > Thank you > > > > > > __________________________________ > Start your day with - Make it your home page! > http://www./r/hs > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Hi , You are right. The optimal dose would be 4.5mg if possible, but everyone's body is different. Dr. Bihari suggests 4.5 if it works. He has my husband down to 3mg because he was feeling tingling and numbness in new areas after starting 4.5mg. That did the trick and he has just stayed on 3mg since then. You just have to pay attention to how your body is doing and alter the dosage to where you feel best. Aletha Re: [low dose naltrexone] Re: time change helped > , > Thank you for your note. I had cut the dose back to > 4.0 mg and that seems to be helping until around 6 pm. > That is when my legs start getting stiff again. I was > told by my doc that I may have to experiment with > which dose would be best for me. I am going to stay > with this until I find it may not work. > As far as 3mg and 4.5mg being the only doses Dt. > Bihari prescribes, I don't think is correct. My > friend who suggested this to me, is a patient of his > and he has her on 3.5 mg. > > Thank you for your advice...if you or anyone think I > should go back to 3.mg instead of 4 or even 3.5. Then > I would appriciate hearing so. I have only been > taking this since June. Is the point of LDN use to > just stop progression or are we supposed to be able to > build up to the higher dosage also? > > Thank you > > > > > > __________________________________ > Start your day with - Make it your home page! > http://www./r/hs > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.