Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Hi Everyone .. Any advice for a new friend from Donegal, Ireland? Mine would be to try LDN and see .. without question .. All the Best My eldest child who is now 8 years old has a rare autoimmune disease called APECED . Her immune sytem attacks the different glands in her body starting with her parathyroid gland and will continue on to her pancreas ,liver and ovaries with a possibility of other ailments attached to these organs affecting her. I have approached her endocrinologist in Crumlin Childrens Hospital about LDN, but he dismissed any treatment on the basis that nothing has been published by Dr. Bihari or anyone else in the Medical Journal. He did not read up on it any further. a bit of a bummer.... Ive been trying to see if anyone else with APECED has tried it but to no avail. I havnt approached her GP yet... until i see if anyone with APECED has got it. Is there anyway that you could help me find out. Any other websites that i may not have seen. Any help would be very appreciative. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 AMEN! Absolutely harmless and a miracle for so many. Best wishes, Shirley --- mboylebradley <mboylebradley@...> wrote: > Hi Everyone .. Any advice for a new friend from > Donegal, Ireland? > Mine would be to try LDN and see .. without question > .. > All the Best > > > > My eldest child who is now 8 years old has a rare > autoimmune disease > called APECED . Her immune sytem attacks the > different glands in > her body starting with her parathyroid gland and > will continue on to > her pancreas ,liver and ovaries with a possibility > of other > ailments attached to these organs affecting her. I > have approached > her endocrinologist in Crumlin Childrens Hospital > about LDN, but he > dismissed any treatment on the basis that nothing > has been published > by Dr. Bihari or anyone else in the Medical Journal. > He did not > read up on it any further. a bit of a bummer.... > Ive been trying > to see if anyone else with APECED has tried it but > to no avail. I > havnt approached her GP yet... until i see if > anyone with APECED > has got it. Is there anyway that you could help me > find out. Any > other websites that i may not have seen. Any help > would be very > appreciative. > > > > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
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