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> >

> > Can anyone please help me. I've recently found out that I'm

> > pregnant. I'm in complete turmoil as to what to do. I have

RRMS and

> > was taking LDN, which of course I immediately stopped, but this

> > pregnancy wasn't planned, I'm not hugely maternal and neither is

my

> > partner and we are both so scared of what the pregancy will do

to me

> > and how we will cope after the birth. He struggles with my MS

> anyway,

> > let alone having an unplanned baby to look after as well.

> >

> > I have heard that some people go into remission while pregnant,

has

> > this happened to anyone, and how have you been after?

> >

> > Please help, I can't stop crying and don't know what to do.

> >

> > A very very scared Diane

> >

>

> --

>

> With all those problems you mention abort the pregnancy and use

birth

> control methods in the future.

>

We did use birth control, we're not stupid, but these things happen

nothing is 100%

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You have some time do talk to family, friends or a consuler and your

partner and think this over I hope before you decide on abortion or

not. Its a big decesion - dont want to do anything you regret. How

is your financial status? How old are you? Also being off the

naltrexone, do you have major terrible symptoms that will make going

through this very difficult? I believe naltrexone is secreted in

breast milk, so you wouldnt want to be on it. Yes there are reports

you may indeed go into a temp remission during pregnancy this

happens with CFS as well. The immune system stabalizes greatly

during pregnancy.

>

> Can anyone please help me. I've recently found out that I'm

> pregnant. I'm in complete turmoil as to what to do. I have RRMS

and

> was taking LDN, which of course I immediately stopped, but this

> pregnancy wasn't planned, I'm not hugely maternal and neither is

my

> partner and we are both so scared of what the pregancy will do to

me

> and how we will cope after the birth. He struggles with my MS

anyway,

> let alone having an unplanned baby to look after as well.

>

> I have heard that some people go into remission while pregnant,

has

> this happened to anyone, and how have you been after?

>

> Please help, I can't stop crying and don't know what to do.

>

> A very very scared Diane

>

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If it wasn't for the MS I would definitely go through with it

without thinking twice. I'm 34 and not getting any younger, it's

not as if I can rethink my decision in 5 years time.

We're just scared ahout how it will affect us and what will the poor

child think having a disabled Mum. I'm not that bad really I still

work and can walk, sometimes using a stick, but I'm just panicking

and being selfish I suppose.

I suppose I just want someone to say that they got through the

preganancy OK and survived bringing a child up.

> >

> > Can anyone please help me. I've recently found out that I'm

> > pregnant. I'm in complete turmoil as to what to do. I have

RRMS

> and

> > was taking LDN, which of course I immediately stopped, but this

> > pregnancy wasn't planned, I'm not hugely maternal and neither is

> my

> > partner and we are both so scared of what the pregancy will do

to

> me

> > and how we will cope after the birth. He struggles with my MS

> anyway,

> > let alone having an unplanned baby to look after as well.

> >

> > I have heard that some people go into remission while pregnant,

> has

> > this happened to anyone, and how have you been after?

> >

> > Please help, I can't stop crying and don't know what to do.

> >

> > A very very scared Diane

> >

>

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About 21 years ago, walking with a cane, knowing my MS was getting worse, my wife wanted to have a child. Knowing that I would eventually end up in a wheelchair, unable to work, I was totally against it. I did not want to have a child that I would not be able to take care of. My wife had said to me, "this disease has denied us so much, don't let it take away our only chance of having a child" I relented and I now have a 20-year-old daughter. She is my reason for living. Without her I would be lost!

No one knows what tomorrow will bring. If you decide to have this child, I don't think you will ever regret it. If you don't, you might!

Good luck on whatever you choose,Lee

[low dose naltrexone] Re: MS & Pregnancy

If it wasn't for the MS I would definitely go through with it without thinking twice. I'm 34 and not getting any younger, it's not as if I can rethink my decision in 5 years time. We're just scared ahout how it will affect us and what will the poor child think having a disabled Mum. I'm not that bad really I still work and can walk, sometimes using a stick, but I'm just panicking and being selfish I suppose. I suppose I just want someone to say that they got through the preganancy OK and survived bringing a child up.> >> > Can anyone please help me. I've recently found out that I'm > > pregnant. I'm in complete turmoil as to what to do. I have RRMS > and > > was taking LDN, which of course I immediately stopped, but this > > pregnancy wasn't planned, I'm not hugely maternal and neither is > my > > partner and we are both so scared of what the pregancy will do to > me > > and how we will cope after the birth. He struggles with my MS > anyway, > > let alone having an unplanned baby to look after as well.> > > > I have heard that some people go into remission while pregnant, > has > > this happened to anyone, and how have you been after?> > > > Please help, I can't stop crying and don't know what to do.> > > > A very very scared Diane> >>

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I think you should talk to your doctor about your pregnancy and see what he suggest!! I'm sure alot of females get pregnant even though they have MS. citybluecat <d.raphael@...> wrote: > >> > Can anyone please help me. I've recently found out that I'm > > pregnant. I'm in complete turmoil as to what to do. I have RRMS and > > was taking LDN, which of course I immediately stopped, but this > > pregnancy wasn't planned, I'm not hugely maternal and neither is my > > partner and we are both so scared of what the pregancy will do to me > > and how we will cope after the birth. He struggles with my MS > anyway, > > let alone having an unplanned baby to look after as well.> > > > I have heard that some people go into remission while

pregnant, has > > this happened to anyone, and how have you been after?> > > > Please help, I can't stop crying and don't know what to do.> > > > A very very scared Diane> >> > --> > With all those problems you mention abort the pregnancy and use birth > control methods in the future.>We did use birth control, we're not stupid, but these things happen nothing is 100%

for Good Click here to donate to the Hurricane Katrina relief effort.

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Diane,

I am 36 and was diagnosed last year. I already had two children

before my diagnoses. I probably have had it for at least ten years.

Would I have another know ,no I wouldn't but I didn't want children

in the first place. Was married and my husband is very paternal. We

married knowing that I didn't want children. I relented and had my

son and then didn't want a only child. Had a daughter in 2000. I

would not say that I was maternal but you become with your own kids.

It just kicks in. I don't run to pick up my friends children as a

lot of them are having babies now. I appreciated them from a

distance. As for your MS my old neighbor had 3 children and she is

still walking at 60 and doing fine. I have two friends that live in

IL who have kids after they knew they had MS. If you are interested

I could ask them if you could call them and talk to them as to what

there fears where. Having a good support systom is very important

when having child MS or not. If your partner is going to walk

because he can not deal with your MS a child would be even more

stress. If you need to talk email me in private and I can get you in

touch with my friends . One is 32 just had her second child and the

other is 35 with three. I love my children and am glad I have

them. I was very stressed when I was diagnoses as to how I would

care for them. I am rrms and doing okay. I have been on LDN since

Jan. Kim

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Diane,

Pregnancy helps those that have MS. The biggest problem that MS causes in

the beginning is fear. In most cases this fear can be much more crippling

than the ms.

MS is surely a problem at times but those times do pass. Ms is a very

manageable circumstance and most of those fears and imaginings never happen.

Go to www.copingandprevailing.com If you cannot afford to pay for the book

send me your mailing address and I will send it to you.

Just get on with your life. You state that you and your partner are not

materialistic....Good, have your baby and enjoy each other's lives. Don't

do anything that would cause you pain , stress and regret.

Regards,

Tom

[low dose naltrexone] MS & Pregnancy

> Can anyone please help me. I've recently found out that I'm

> pregnant. I'm in complete turmoil as to what to do. I have RRMS and

> was taking LDN, which of course I immediately stopped, but this

> pregnancy wasn't planned, I'm not hugely maternal and neither is my

> partner and we are both so scared of what the pregancy will do to me

> and how we will cope after the birth. He struggles with my MS anyway,

> let alone having an unplanned baby to look after as well.

>

> I have heard that some people go into remission while pregnant, has

> this happened to anyone, and how have you been after?

>

> Please help, I can't stop crying and don't know what to do.

>

> A very very scared Diane

>

>

>

>

>

>

>

>

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I never felt better than when I was pregnant. New research is showing that the estrogen produced in pregnancy keeps the MS in check. I can vow for that. I have 3 children, all teens, and now that I need help they are wonderful. My kids do not see me as any different than other moms...although I no longer snow ski!!! They have been my biggest blessing. Make the MS just a small part of your life, not your whole life.

take care,

Sue

[low dose naltrexone] Re: MS & Pregnancy

If it wasn't for the MS I would definitely go through with it without thinking twice. I'm 34 and not getting any younger, it's not as if I can rethink my decision in 5 years time. We're just scared ahout how it will affect us and what will the poor child think having a disabled Mum. I'm not that bad really I still work and can walk, sometimes using a stick, but I'm just panicking and being selfish I suppose. I suppose I just want someone to say that they got through the preganancy OK and survived bringing a child up.> >> > Can anyone please help me. I've recently found out that I'm > > pregnant. I'm in complete turmoil as to what to do. I have RRMS > and > > was taking LDN, which of course I immediately stopped, but this > > pregnancy wasn't planned, I'm not hugely maternal and neither is > my > > partner and we are both so scared of what the pregancy will do to > me > > and how we will cope after the birth. He struggles with my MS > anyway, > > let alone having an unplanned baby to look after as well.> > > > I have heard that some people go into remission while pregnant, > has > > this happened to anyone, and how have you been after?> > > > Please help, I can't stop crying and don't know what to do.> > > > A very very scared Diane> >>

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Diane,

I know a woman who became pregnant after her MS diagnosis. Her doctor discouraged her from going through with the pregnancy due to the possibility of a relapse post-pregnancy. To this day she is troubled by the decision. There is no way to know with any certainty how an individual will progress. Just make an informed decision, and either way, truly find a good counselor. Maybe a good immunotologist(sp?) could help with hormone questions. Listen to your inner voice.

Marcie

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Did the LDN work well for you? Then it should help you when ever you feel you can go back on it. Nobody has taken LDN through pregnancy so everyone fears it may cause a problem. Who wants to be the first guinea pig to continue to orchestrate their immune system properly while a fetus reaps that benefit?

If you have MS, you have to make some big decisions... an abortion may not be appreciated by the body even more so than 9 months of what it was built and designed for.

If one is doing well on LDN, they could decide to stay on it. Many smoke through pregnancy, many drink through pregnancy. As far as I know, smokables and alcohol have never been given to infants shortly after birth. However I have heard that naltrexone is given to certain newborns almost immediately following birth, um, where the mother could have used the regular doses herself a few months earlier, if you know what I mean. If it's safe for newborns...

but what do I know. Nobody wants to commit with opinions about pregnancy, the pregnant one has to make their own choice in that matter. What do you feel? LDN and pregnancy or LDN and abortion or risk giving up the LDN for 8 or so more months and hope for the best? Can always stop it any time you panic yourself.

Good luck in whatever you decide. JMHO's of course. "I know nothing, NOthing!" -Sgt S

[low dose naltrexone] Re: MS & Pregnancy

If it wasn't for the MS I would definitely go through with it without thinking twice. I'm 34 and not getting any younger, it's not as if I can rethink my decision in 5 years time. We're just scared ahout how it will affect us and what will the poor child think having a disabled Mum. I'm not that bad really I still work and can walk, sometimes using a stick, but I'm just panicking and being selfish I suppose. I suppose I just want someone to say that they got through the preganancy OK and survived bringing a child up.

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Hi Diane,

As far as the MS during pregnancy, you would be really pleasantly surprised how well that would most likely go. Everyone so far that I have heard of with MS and go through pregnancy have this amazing period of time where their symptoms are far less and they do better pregnant and nursing then they do while not pregnant and nursing. Last year we were all trying to figure out why this was. Most likely it is the amount of estrogen in your body during that time, or it could be something in the prenatal pills.

Obviously having a child is a major responsibility and takes up a large part of ones life. That is a lifestyle choice and only you and your partner can determine whether that will work. You might be very surprised at how your world opens up with the child. My husband was a confirmed bachelor and I was so worried about his participation in parenting. He would never get excited about children and when I was pregnant he would not even hold other peoples babies. He did not seem happy about having a child. When was born it was amazing, he said his life would never be the same and he was right. turns 18 this year and has been the best dad.

I hope that helps

Aletha

Re: [low dose naltrexone] Re: MS & Pregnancy

I think you should talk to your doctor about your pregnancy and see what he suggest!! I'm sure alot of females get pregnant even though they have MS. citybluecat <d.raphael@...> wrote: > >> > Can anyone please help me. I've recently found out that I'm > > pregnant. I'm in complete turmoil as to what to do. I have RRMS and > > was taking LDN, which of course I immediately stopped, but this > > pregnancy wasn't planned, I'm not hugely maternal and neither is my > > partner and we are both so scared of what the pregancy will do to me > > and how we will cope after the birth. He struggles with my MS > anyway, > > let alone having an unplanned baby to look after as well.> > > > I have heard that some people go into remission while pregnant, has > > this happened to anyone, and how have you been after?> > > > Please help, I can't stop crying and don't know what to do.> > > > A very very scared Diane> >> > --> > With all those problems you mention abort the pregnancy and use birth > control methods in the future.>We did use birth control, we're not stupid, but these things happen nothing is 100%

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Hi Diane - I was diagnosed with RRMS at 21, had my son at 26, my

daughter at 32 and never felt better than during those pregncies. (I

wanted to have 12 kids!! -- but my husband had other plans.) My two

kids are now productive, loving beautiful adults -- my son, an

accomplished musician--my daughter an animal rights advocate working

with a veternarian.

There has been a study at UCLA (I'm in L.A.) and it has to do

with estriol--the hormone produced during pregnancy and given to

people with MS, with great success.

Take heart - it could work out quite well for you.

Best wishes, Marcia

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Once you are done breast feeding there should be no problem going

back on LDN though.

> > >

> > > Can anyone please help me. I've recently found out that I'm

> > > pregnant. I'm in complete turmoil as to what to do. I have

> RRMS

> > and

> > > was taking LDN, which of course I immediately stopped, but

this

> > > pregnancy wasn't planned, I'm not hugely maternal and neither

is

> > my

> > > partner and we are both so scared of what the pregancy will do

> to

> > me

> > > and how we will cope after the birth. He struggles with my MS

> > anyway,

> > > let alone having an unplanned baby to look after as well.

> > >

> > > I have heard that some people go into remission while

pregnant,

> > has

> > > this happened to anyone, and how have you been after?

> > >

> > > Please help, I can't stop crying and don't know what to do.

> > >

> > > A very very scared Diane

> > >

> >

>

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Diane-

I hate to burst the bubble on the other mostly cheerful replies but I'm

sure you're looking for honesty from both ends of the spectrum. My wife

is relapsing remitting, diagnosed 1996. She has a son, 14, to whom I've

been the only real father figure since 1998. Husband/father was

worthless to begin with then fled post-MS. I have no biological

children and desparately wanted another last year, I think

primarily for me, though she wouldn't admit it. She started LDN July

2004 with as close to miraculous results as possible short of the real

thing. Mid-September, she spontaneously stopped all medicines cold

turkey, including LDN and soon after started hormone treatments to help

get pregnant. This was ahead of the planned schedule and not tapering

from some of her other drugs caused it's own set of problems. We found

out late November, and should have known much sooner I think, that she

has only half a uterus. I forget the name for the condition. It's rare

but not extremely so.

I was terrified not of her being pregnant, but post-partum. Our

neurologist explained that it's well known that for most women pregnancy

helps MS much, but for most women conditions worsen after birth. In

's case, she was taking human hormones for about 2 and a half

months. Her neuro said it was very much like being pregnant,

hormone-wise. When she stopped the hormones and restarted LDN, she had

her worst exacerbation yet. Most of the " miracle " improvements were

gone, not to return for several months, and we had to do the IV steroids

thing.

I would never discourage a woman from having a child if that's what she

wants. I've known many mothers, mostly through 's day care

business, and all said having a kid(s) was the best and most important

thing that ever happened to them. Just sharing our experience. My 2

cents is to follow your heart and instincts. They will never steer you

wrong as long as you're truly listening. Good luck.

citybluecat wrote:

>If it wasn't for the MS I would definitely go through with it

>without thinking twice. I'm 34 and not getting any younger, it's

>not as if I can rethink my decision in 5 years time.

>

>We're just scared ahout how it will affect us and what will the poor

>child think having a disabled Mum. I'm not that bad really I still

>work and can walk, sometimes using a stick, but I'm just panicking

>and being selfish I suppose.

>

>I suppose I just want someone to say that they got through the

>preganancy OK and survived bringing a child up.

>

>

>>

>>

>>>Can anyone please help me. I've recently found out that I'm

>>>pregnant. I'm in complete turmoil as to what to do. I have

>>>

>>>

>RRMS

>

>

>>and

>>

>>

>>>was taking LDN, which of course I immediately stopped, but this

>>>pregnancy wasn't planned, I'm not hugely maternal and neither is

>>>

>>>

>>my

>>

>>

>>>partner and we are both so scared of what the pregancy will do

>>>

>>>

>to

>

>

>>me

>>

>>

>>>and how we will cope after the birth. He struggles with my MS

>>>

>>>

>>anyway,

>>

>>

>>>let alone having an unplanned baby to look after as well.

>>>

>>>I have heard that some people go into remission while pregnant,

>>>

>>>

>>has

>>

>>

>>>this happened to anyone, and how have you been after?

>>>

>>>Please help, I can't stop crying and don't know what to do.

>>>

>>>A very very scared Diane

>>>

>>>

>>>

>

>

>

>

>

>

>

>

>

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Dear Diane,For what its worth, I am 45 y.o. and was only diagnosed 4 years ago and am using a wheelchair most of the time now.  I have three beautiful teenagers (not a word often used to describe this age group) and a wonderful husband.  Looking back on my health problems over the years, I most likely have had this disease (undiagnosed) since my mid to early twenties.  I had lots of back and muscle issues & fatigue that I now see were the RRMS at work.  My MRI in 2001 confirmed very old damage to the nerves.Had my daughter (now 18) in 1987 and 19 mos. later (1989)......twin boys!   Was a very happy emotionally and contented while pregnant (more than usual), afterwards did struggle a bit with post partum depression (not uncommon for healthy women).  My daughter was fairly collicky for the the first few months which did contribute to energy and strength issues.  The boys were also a bit collicky and I had several temporary health issues after they were born pre-maturely (again, not uncommon with twins).  When they were about 6mos old I developed optic neuritis in my left eye and again no doctor diagnosed this as MS (even though that is often the first obvious sign of the disease).  It did go away but appeared periodically over the years when under stress or in a bath of hot water.  Physically I did struggle (alot) after each pregnancy but was still walking and everything, just extremely low energy and some depression and anxiety and lots of back muscles aches.  My husband was very supportive and a big help though.  When the boys were 3, had numbness  up and down the outside of my left leg....again no one diagnosed MS even after much poking and prodding.As tough as the years have been, I wouldn't trade them for anything.  Even these teen years which can be challenging.  Sometimes ignorance is bliss; as Im not sure how I would have looked at life had I known this disease was lurking prior to having had 3 children.  They are a blessing though.  The first day holding my daughter, I thought, "Wow, I cant believe this wonderful little life came from me!" (and my husband of course).  May have planned differently but I believe life is sacred, I know this is a touchy issue for many people but it has been my moral beliefs and faith in God that has got me through all this and continues to everyday of my life.  I will take the risk of possible back-lash from this group.Personally, wouldn't have changed anything concerning my children and their conception and birth.  Please consider your decision carefully...your partner can make this easier for you but ultimately it is your decision.  It won't be easy if you choose life but then none of us can predict how this disease will progress (or not) for you.  Hopefully you do not see this as my judging you; I just feel strongly the rewards far outway the risks.  You are in my thoughts and prayers.Kathy HOn 7-Oct-05, at 4:48 AM, citybluecat wrote:Can anyone please help me.  I've recently found out that I'm pregnant.  I'm in complete turmoil as to what to do.  I have RRMS and was taking LDN, which of course I immediately stopped, but this pregnancy wasn't planned, I'm not hugely maternal and neither is my partner and we are both so scared of what the pregancy will do to me and how we will cope after the birth.  He struggles with my MS anyway, let alone having an unplanned baby to look after as well.I have heard that some people go into remission while pregnant, has this happened to anyone, and how have you been after?Please help, I can't stop crying and don't know what to do.A very very scared Diane

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>

> Can anyone please help me. I've recently found out that I'm

> pregnant. I'm in complete turmoil as to what to do. I have RRMS

and

> was taking LDN, which of course I immediately stopped, but this

> pregnancy wasn't planned, I'm not hugely maternal and neither is my

> partner and we are both so scared of what the pregancy will do to

me

> and how we will cope after the birth. He struggles with my MS

anyway,

> let alone having an unplanned baby to look after as well.

>

> I have heard that some people go into remission while pregnant, has

> this happened to anyone, and how have you been after?

>

> Please help, I can't stop crying and don't know what to do.

>

> A very very scared Diane

--

Diane,

I replied to your post to the way you wrote it. I did not mean to

come off as rude and uncaring.

Having a child is major responsibility. Once the baby's here there's

no sending it back so you must be sure you and your partner REALLY

want it. Plus you MUST consider your health, now and later.

Everything you said seems to point away from having a child.

Not being " maternal " is a problem, although this COULD come with

having a child. And your partner is not into being a father. Big

problem, but he COULD change afterwards. Scared of what the pregnacy

will do to you is understandable. Others here have spoken to that

point. Not sure what is right.

How your partner will cope with you and your MS after the birth tells

me perhaps your relationship is not a strong one? Being a single

mother isn't easy not to forget having MS too.

" He struggles with my MS anyway, let alone having an unplanned baby

to look after as well. " Big problem here, I'd say. What is HIS

struggle?

If I were a close friend of yours and knowing what I do now I'd

strongly advise you to work on my relationship first with

your " partner " before bringing a child into this world. I mean this

with all kindness so please do not misinterpet me. I am

NOT trying to hurt your feelings. I've been accused of being brutally

honest by my freinds so this is where I'm coming from.

Artie

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Please!!!!!!! get ahold of me in personal e-mail if

you would like. I had an unplanned pregnancy when I

was on Avonex. I stopped that right away and had a

perfect pregnabcy and my condition had improved. I

have RRMS also. My symptoms did not start to come

back until my daughter was almost 1 yr old. I am

doing fine and have heard of others who had become

pregnant and did well also. Please, don't feel so

distraught. My unplanned daughter is my third child

and my saving grace.

--- citybluecat <d.raphael@...> wrote:

> Can anyone please help me. I've recently found out

> that I'm

> pregnant. I'm in complete turmoil as to what to do.

> I have RRMS and

> was taking LDN, which of course I immediately

> stopped, but this

> pregnancy wasn't planned, I'm not hugely maternal

> and neither is my

> partner and we are both so scared of what the

> pregancy will do to me

> and how we will cope after the birth. He struggles

> with my MS anyway,

> let alone having an unplanned baby to look after as

> well.

>

> I have heard that some people go into remission

> while pregnant, has

> this happened to anyone, and how have you been

> after?

>

> Please help, I can't stop crying and don't know what

> to do.

>

> A very very scared Diane

>

>

>

>

__________________________________

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>

> Can anyone please help me. I've recently found out that I'm

> pregnant. I'm in complete turmoil as to what to do. I have RRMS ...

Diane,

I was very angry when I got my diagnosis as it was very clear to me

that all the peices were there and I should have been diagnosed years

ago. Now I realize that had I known about my having MS I may have made

the decision not to have kids, and this would have been a terrible

mistake. They are the best part of my life and each pregnancy left me

feeling full of energy and in the best physical shape. My only advice

would be to try to line up some support for those nights with little

sleep, or at least nap in the day whenever your child does. Other than

that, just go with the flow and enjoy!

With both children symptoms seemed to return when the kids were about

18months. Best of luck to you

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