Re: neuro for physical issues

[Guest guest]

Nan:Where are you, and what is your exact diagnosis? I'm tempted to guess at vertigo/dizziness, but suggestions are better when they're informed.

Reply-To: braintrainer To: braintrainer Subject: neuro for physical issuesDate: Sun, 10 Dec 2006 05:02:07 -0000

Hello,I'm looking to communicate with people who havephysical/neuro problems, who do neuro feedback eitheron their own equipment or by a practitioner. I haveneuro/vestibular issues related to unusual multiple conditions,underwent brain surgery, and am much worse post-op. Ihave not yet purchased the equipment, only having hadone neuro session, but the sessions are expensive andI'm wondering if I should take the plunge and learn totreat myself. I think my condition results fromneuro/nervous system overload.Thanks,Nan

[Guest guest]

,

You're are right on the money. Constant/disabling

dizziness, a sensation of movement in my head at all

times. Briefly, I got off a cruise, rough scuba dive

and plane trip and never regained my " land legs. "

They found a tumor in inner ear called acoustic

neuroma, did surgery, and balance nerve/hearing nerves

severed and removed in one ear. The brain/body is

supposed to compensate for the loss, but mine hasn't.

An expert in Chicago said I actually have/had two

conditions: a rare motion-sickness type of syndrome,

and now no balance function on right side. The

surgery made my condition worse. I have tried every

type of alternative therapy, with no success.

I've done the QEEG, am seeing a practitioner here in

Bellingham, WA, who doesn't do a lot of neuro but is

very methodical. I've only had one treatment.

Exhausting for me, in large part because I have

nystagmus from dizziness (involuntary eye movement).

Probably more than you wanted to know! But I'm

interested in anyone who had or knows of nervous

system issues for whom neuro has helped.

Thanks for your message.

Nan

--- gary martin wrote:

---------------------------------

Nan:

Where are you, and what is your exact diagnosis? I'm

tempted to guess at vertigo/dizziness, but suggestions

are better when they're informed.

---------------------------------

Reply-To: braintrainer

To: braintrainer

Subject: neuro for physical issues

Date: Sun, 10 Dec 2006 05:02:07 -0000

Hello,

I'm looking to communicate with people who have

physical/neuro problems, who do neuro feedback either

on their own equipment or by a practitioner. I have

neuro/vestibular issues related to unusual multiple

conditions,

underwent brain surgery, and am much worse post-op. I

have not yet purchased the equipment, only having had

one neuro session, but the sessions are expensive and

I'm wondering if I should take the plunge and learn to

treat myself. I think my condition results from

neuro/nervous system overload.

Thanks,

Nan

________________________________________________________________________________\

____

Have a burning question?

Go to www.Answers.yahoo.com and get answers from real people who know.

[Guest guest]

Hi Nan,

I have some bouts of vertigo that have been labeled idiopathic (no

known cause) that started off very disabling for the first couple of

months, and now usually remain sub-acute unless I get extremely

overtired, or do things that otherwise affect balance (like drinking

too much alcohol - i tend to not be drunk, but stagger around after 2

drinks). That being said, a few times a year the problem just

resurfaces for some reason.

I've had multiple MRIs, pivot chair tests, etc etc etc - nobody could

tell me why I had this except that it was 'very unusual', i.e. not

due to an acoustic neuroma. I was lucky enough to have my problem

subside on it's own after about 10 weeks, and it flares up a few

times a year. I found that rewarding 13-16hz, inhibiting 4-7 (or

2-6) and 14-30 at T5-T6 tends to arrest the flare-up and dramatically

stabilize the world when I get this way. Your mileage may vary, but

it's probably worth trying! Have you had a QEEG done, or a simpler

TLC assessment?

In terms of doing it yourself - why not? It's not rocket science

A couple of books and resources like this mailing list is really all

you need, with some good self-observation and record-keeping.

If you have a reasonably good computer you can get a bundle including

a Pendant EEG, electrodes, and BioExplorer software for around $1200

from pocket-neurobics.com. If your vertigo is anything like mine

was, even getting out of the house to go get trained is a major

trial. Good record keeping and motivated learning on your part will

probably be worth as much as a professional training you - and

perhaps with faster results since you can train every day.

You can probably also find a professional to remotely supervise if

you want, for less than the expensive office visits.

Good luck!

Best,

> ,

> You're are right on the money. Constant/disabling

> dizziness, a sensation of movement in my head at all

> times. Briefly, I got off a cruise, rough scuba dive

> and plane trip and never regained my " land legs. "

> They found a tumor in inner ear called acoustic

> neuroma, did surgery, and balance nerve/hearing nerves

> severed and removed in one ear. The brain/body is

> supposed to compensate for the loss, but mine hasn't.

> An expert in Chicago said I actually have/had two

> conditions: a rare motion-sickness type of syndrome,

> and now no balance function on right side. The

> surgery made my condition worse. I have tried every

> type of alternative therapy, with no success.

>

> I've done the QEEG, am seeing a practitioner here in

> Bellingham, WA, who doesn't do a lot of neuro but is

> very methodical. I've only had one treatment.

> Exhausting for me, in large part because I have

> nystagmus from dizziness (involuntary eye movement).

>

> Probably more than you wanted to know! But I'm

> interested in anyone who had or knows of nervous

> system issues for whom neuro has helped.

>

> Thanks for your message.

> Nan

>

> --- gary martin wrote:

>

>

> ---------------------------------

>

>

> Nan:

>

> Where are you, and what is your exact diagnosis? I'm

> tempted to guess at vertigo/dizziness, but suggestions

> are better when they're informed.

>

>

>

> ---------------------------------

>

> Reply-To: braintrainer

> To: braintrainer

> Subject: neuro for physical issues

> Date: Sun, 10 Dec 2006 05:02:07 -0000

>

>

> Hello,

> I'm looking to communicate with people who have

> physical/neuro problems, who do neuro feedback either

> on their own equipment or by a practitioner. I have

> neuro/vestibular issues related to unusual multiple

> conditions,

> underwent brain surgery, and am much worse post-op. I

> have not yet purchased the equipment, only having had

> one neuro session, but the sessions are expensive and

> I'm wondering if I should take the plunge and learn to

> treat myself. I think my condition results from

> neuro/nervous system overload.

>

> Thanks,

> Nan

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> ______________________________________________________________________

> ______________

> Have a burning question?

> Go to www.Answers.yahoo.com and get answers from real people who know.

>

>

>

>

[Guest guest]

Nan, so sorry to have guessed right. I'd've preferred to be wrong! I just had a sense you'd been over treated for something. I didn't realize they needed to cut the 8th nerve to remove an neuroma. I wonder which came first, flying too soon after diving and getting some cerebral nitrogen outgassing which caused some CNS problems, and then they discovered the neuroma. Or was the problem with the diving a result of the neuroma being there in the first place, and the "Bad dive" was just a harbinger of the neuroma? Sadly, you'll probably never know! The tumor must have enveloped the nerve, or why else would they cut it? Seems suspicious, but, again, academic at this point. Have you tried some Valium (epam 5-10 mg). Medically speaking, it seems to have a calming effect on signals coming from the 8th nerve.

As for NFB training, I'll leave that part to Pete et al. I started home training myself to help with a chronic pain problem, and it has been mildly helpful. I certainly think it could be helpful in hastening the natural accommodation brains make to screen out dizziness sensations, to the new informational changes it is having to contend with. Chronic dizziness is a terrible disorder--like pain, no one can tell that there's anything wrong with you. You look like your old self. You just happen to feel like shit constantly. Right. And it's hard for people who haven't experienced it to understand how disturbing and exhausting it can be.

I admire your efforts to help yourself. I will say that the brain has an enormous capacity to gradually screen out dizziness on its own. It might take several years, but that will happen. And perhaps there are NFB protocols now that can hasten that process. You might also look into websites on vertigo. There are many people who suffer from this disorder. Be very careful before you undertake any further invasive procedures that promise improvement.

Best of luck to you in your quest for some relief.

Reply-To: braintrainer To: braintrainer Subject: RE: neuro for physical issuesDate: Sun, 10 Dec 2006 13:19:42 -0800 (PST)

,You're are right on the money. Constant/disablingdizziness, a sensation of movement in my head at alltimes. Briefly, I got off a cruise, rough scuba diveand plane trip and never regained my "land legs." They found a tumor in inner ear called acousticneuroma, did surgery, and balance nerve/hearing nervessevered and removed in one ear. The brain/body issupposed to compensate for the loss, but mine hasn't. An expert in Chicago said I actually have/had twoconditions: a rare motion-sickness type of syndrome,and now no balance function on right side. Thesurgery made my condition worse. I have tried everytype of alternative therapy, with no success.I've done the QEEG, am seeing a practitioner here inBellingham, WA, who doesn't do a lot of neuro but isvery methodical. I've only had one treatment. Exhausting for me, in large part because I havenystagmus from dizziness (involuntary eye movement).Probably more than you wanted to know! But I'minterested in anyone who had or knows of nervoussystem issues for whom neuro has helped.Thanks for your message.Nan--- gary martin <gcmartinmdmsn> wrote:---------------------------------Nan:Where are you, and what is your exact diagnosis? I'mtempted to guess at vertigo/dizziness, but suggestionsare better when they're informed.---------------------------------From: "nannettesea3" <nannettesea3>Reply-To: braintrainer To: braintrainer Subject: neuro for physical issuesDate: Sun, 10 Dec 2006 05:02:07 -0000Hello,I'm looking to communicate with people who havephysical/neuro problems, who do neuro feedback eitheron their own equipment or by a practitioner. I haveneuro/vestibular issues related to unusual multipleconditions,underwent brain surgery, and am much worse post-op. Ihave not yet purchased the equipment, only having hadone neuro session, but the sessions are expensive andI'm wondering if I should take the plunge and learn totreat myself. I think my condition results fromneuro/nervous system overload.Thanks,Nan__________________________________________________________Have a burning question? Go to www.Answers.yahoo.com and get answers from real people who know.

[Guest guest]

,

You sound like an informed person with medical

background....either you do, or having chronic pain

has made you somewhat of a medical expert. I often

wonder which is worse--chronic pain or this condition.

You're so right about feeling like shit all the time

but having an invisible condition. I have a support

group of people who have/had acoustic neuromas, and we

were just talking about this tonite. After brain

surgery, when you look okay, people think you're the

same. Many are almost their " old " selves, others of

us have lives that changed forever. I had

near-perfect hearing, but sacrificed it in order to

" get " all the vestibular nerve fibers. Neuromas grow

out of the vestibular nerve and can cause

dizziness--hence the focus on the tumor. I was

suspicious from the start, but not one of the ENTs

mentioned Mal de Debarquement (the motion sickness

syndrome). It was not until post-op I got that

opinion. As you say, however, would I have gotten

MdDS without the tumor...I've done my share of " coulda

shoulda woulda. " The guy in Chicago said in over 100

cases of MdDS, none had had an AN. Lucky me. In his

most recent paper, he advised people to exercise GREAT

CAUTION before resorting to surgery, since tumors can

be " silent " and something else might be causing

AN-type symptoms. How do I know he was referring to

my case?

Actually, I do take Valium. I was on Klonepin, a

harder version of it, for 6 months but started to

develop a tolerance. Without it my life is hell

again, but when I'm on nervous system suppressants, I

prevent my body from compensating on its own. Damned

if I do, damned if I don't.

Thanks for your support in saying my body will

compensate. I'm at 1 year and 3 months post-op so

far. A bitter pill when the doc told me 4-6 weeks.

Believe me, never again will I jump into surgery.

I'm so sorry you have pain. I assume you've tried

everything, too? Hopefully it wasn't a result of an

invasive surgery. And you are brave to try neuro and

anything else for relief. If you want an opinion on

anything alternative--upper cervical, chiro, acu,

reflexology, cranial sacral...I'm happy to share!

Yes, chronic pain and my condition are exhausting.

Along with depression, anxiety, etc etc etc.

I've heard from Foxx and we're discussing my NF.

Appreciate your feedback (no pun intended), and my

best to you also. Here's to better health!

Nan

--- gary martin wrote:

---------------------------------

Nan, so sorry to have guessed right. I'd've preferred

to be wrong! I just had a sense you'd been over

treated for something. I didn't realize they needed to

cut the 8th nerve to remove an neuroma. I wonder which

came first, flying too soon after diving and getting

some cerebral nitrogen outgassing which caused some

CNS problems, and then they discovered the neuroma. Or

was the problem with the diving a result of the

neuroma being there in the first place, and the " Bad

dive " was just a harbinger of the neuroma? Sadly,

you'll probably never know! The tumor must have

enveloped the nerve, or why else would they cut it?

Seems suspicious, but, again, academic at this point.

Have you tried some Valium (epam 5-10 mg).

Medically speaking, it seems to have a calming effect

on signals coming from the 8th nerve.

As for NFB training, I'll leave that part to Pete et

al. I started home training myself to help with a

chronic pain problem, and it has been mildly helpful.

I certainly think it could be helpful in hastening the

natural accommodation brains make to screen out

dizziness sensations, to the new informational changes

it is having to contend with. Chronic dizziness is a

terrible disorder--like pain, no one can tell that

there's anything wrong with you. You look like your

old self. You just happen to feel like shit

constantly. Right. And it's hard for people who

haven't experienced it to understand how disturbing

and exhausting it can be.

I admire your efforts to help yourself. I will say

that the brain has an enormous capacity to gradually

screen out dizziness on its own. It might take several

years, but that will happen. And perhaps there are NFB

protocols now that can hasten that process. You might

also look into websites on vertigo. There are many

people who suffer from this disorder. Be very careful

before you undertake any further invasive procedures

that promise improvement.

Best of luck to you in your quest for some relief.

---------------------------------

Reply-To: braintrainer

To: braintrainer

Subject: RE: neuro for physical issues

Date: Sun, 10 Dec 2006 13:19:42 -0800 (PST)

,

You're are right on the money. Constant/disabling

dizziness, a sensation of movement in my head at all

times. Briefly, I got off a cruise, rough scuba dive

and plane trip and never regained my " land legs. "

They found a tumor in inner ear called acoustic

neuroma, did surgery, and balance nerve/hearing nerves

severed and removed in one ear. The brain/body is

supposed to compensate for the loss, but mine hasn't.

An expert in Chicago said I actually have/had two

conditions: a rare motion-sickness type of syndrome,

and now no balance function on right side. The

surgery made my condition worse. I have tried every

type of alternative therapy, with no success.

I've done the QEEG, am seeing a practitioner here in

Bellingham, WA, who doesn't do a lot of neuro but is

very methodical. I've only had one treatment.

Exhausting for me, in large part because I have

nystagmus from dizziness (involuntary eye movement).

Probably more than you wanted to know! But I'm

interested in anyone who had or knows of nervous

system issues for whom neuro has helped.

Thanks for your message.

Nan

--- gary martin wrote:

---------------------------------

Nan:

Where are you, and what is your exact diagnosis? I'm

tempted to guess at vertigo/dizziness, but suggestions

are better when they're informed.

---------------------------------

Reply-To: braintrainer

To: braintrainer

Subject: neuro for physical issues

Date: Sun, 10 Dec 2006 05:02:07 -0000

Hello,

I'm looking to communicate with people who have

physical/neuro problems, who do neuro feedback either

on their own equipment or by a practitioner. I have

neuro/vestibular issues related to unusual multiple

conditions,

underwent brain surgery, and am much worse post-op. I

have not yet purchased the equipment, only having had

one neuro session, but the sessions are expensive and

I'm wondering if I should take the plunge and learn to

treat myself. I think my condition results from

neuro/nervous system overload.

Thanks,

Nan

__________________________________________________________

Have a burning question?

Go to www.Answers.yahoo.com and get answers from real

people who know.

________________________________________________________________________________\

____

Any questions? Get answers on any topic at www.Answers.yahoo.com. Try it now.