Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Hello, I was on this group a while back, but stopped taking LDN so I signed off. In sheer desperation, I'm giving LDN one more shot, so I have a couple questions. First, let me start by saying I have *not* been diagnosed with MS, or anything else. Whatever I have ACTS just like MS and I fit the profile (female, from New Jersey, relapsing/remitting pattern of neurological problems, fatigue, drop foot, etc) My MRIs are normal as are my LP and VER tests.. and they have been for nearly 18 years. The LDN is more or less an experiment. I don't know what I'm treating so I don't know what to treat it WITH. So here's my question: How long does one " wait and see " if LDN is beneficial? I can't tell. I know I stay up later, sleep deeper, but seem to get more headaches, fatigue not improved, legs still hurt, still get muscle cramps, etc. Is this a drug that " builds up " (can't be, it's quick release).. or does it work daily, if you skip a couple days can you tell, etc? I've been on it before but it made me TERRIBLY stiff. I didn't get much stiffness this time, it's been about a month now, but I don't see much change at all. Of course I may not be dealing with an ailment that responds to LDN either. Thanks for your time. ee Quote Link to comment Share on other sites More sharing options...
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