Intro & request for advice

[Guest guest]

Hello everyone,

My name is and I've been following this forum for a few months now. I'm

a 53 year old woman who has been recently diagnosed with what appears to be late

onset MS. On April 2nd of this year I awoke to find my left arm to be numb and

spastic. My Primary Care Physician sent me to the local ER where a CAT scan

showed I may have had a stroke. A follow-up MRI indicated that it was instead an

area of demylination in the right posterior parietal area of my brain, just

superior to the level of the lateral ventricles. As we were now looking at a

likelihood of my having MS my PCP refered me to a neurologist. At my initial

consult with the neurologist he agreed that I likely had MS but that his sense

was that it would be benign and scheduled a follow-up appointment in 3 months.

After my initial attack the motor function of my left arm rapidly returned to

normal but numbness in my left hand persisted (and does to this day) and I

continue to feel to be in a mental fog. On my 3 month follow-up visit 2 weeks

ago he decided to have another MRI done, which I had done early last week. At

that time I also approached him on the subject of LDN. Surprisingly he had not

heard of it... surprising because he is chief of neurology at a major city

hospital. (Funny thing... my primary care doc HAD heard of it. Go figure!)

Yesterday I received a call from my neurologist. He had gotten my latest MRI in

and there were more areas of demylination,so he wanted to make an appointment to

discuss our options. I once again brought up the subject of LDN and gave him the

" 50 words or less " summary of what it was all about, mentioning that the

treatment was devised by a fellow neurologist, Dr. Bahari. As he had patients to

attend to he couldn't go into it over the phone but said he was open to

discussion and told me to bring any supporting literature to my next session

with him (which is Oct. 11). All of which brings me here. When I was told I

likely had MS I went about learning everything I could about the illness. Dr.

Weiner's " Curing MS " was probably the best book I found for understand's MS and

medicine's current state of the art in dealing with it. Searching the WWW also

led me to LDN. I have purchased and read Bradley's " Up the Creek with a PAddle " .

LDN consistantly leads the list of positive reviews on RemedyFind.com

andlow dose naltrexone.org seems to be the definitive resource for LDN news. And

of course this group is the place to go for Q & A on all things LDN. On Oct. 11

I need to sit down with my neurologist, quickly bring him up to speed on LDN,

and provide him with good supporting documentation that LDN works. In that the

CRAB therapies are not without serious side effects, are expensive, and for the

most part are injection-only, and given that LDN seems to be MORE effective than

any of the CRAB drugs, I have decided I want to try LDN first. I have printed

out the MS section of low dose naltrexone.com and Dr. Bahari's CV. I plan to take

those to my neurologist along with Bradley's book and web addresses to

RemedyFind, ldninfo and this group. My question to you good people: (1)

Can you recommend any other persuasive LDN supportive documentation (2) in that

Dr.Bahari includes his phone number and address in his CV, is it safe to assume

I can tell my neurologist to call Dr. Bahari to discuss LDN? In fact, should I

call Dr. Bahari first? I've read that some on this board have met or talked with

Dr. Bahari so thought I might ask here before calling him. Thanks in advance

for your input... I'll keep you all informed on how it goes. It's odd when we

find ourselves in the position of having to educate those we go to for help. I

do know I need to do this thing right.

Sincerely,