Re: Intro & request for advice

[Guest guest]

,

It would be best if your doc called Dr. Bihari first, it would save you

$500. No doubt after that call your doc would be up to date on LDN and

prescribe it for you. In the meantime go to www.copingandprevailing.com If

you cannot afford to pay for the book send me your mailing address and I

will send it to you.

Regards,

Tom

[low dose naltrexone] Intro & request for advice

> Hello everyone,

>

> My name is and I've been following this forum for a few months

> now. I'm a 53 year old woman who has been recently diagnosed with what

> appears to be late onset MS. On April 2nd of this year I awoke to find my

> left arm to be numb and spastic. My Primary Care Physician sent me to the

> local ER where a CAT scan showed I may have had a stroke. A follow-up MRI

> indicated that it was instead an area of demylination in the right

> posterior parietal area of my brain, just superior to the level of the

> lateral ventricles. As we were now looking at a likelihood of my having MS

> my PCP refered me to a neurologist. At my initial consult with the

> neurologist he agreed that I likely had MS but that his sense was that it

> would be benign and scheduled a follow-up appointment in 3 months. After

> my initial attack the motor function of my left arm rapidly returned to

> normal but numbness in my left hand persisted (and does to this day) and I

> continue to feel to be in a mental fog. On my 3 month follow-up visit 2

> weeks ago he decided to have another MRI done, which I had done early last

> week. At that time I also approached him on the subject of LDN.

> Surprisingly he had not heard of it... surprising because he is chief of

> neurology at a major city hospital. (Funny thing... my primary care doc

> HAD heard of it. Go figure!) Yesterday I received a call from my

> neurologist. He had gotten my latest MRI in and there were more areas of

> demylination,so he wanted to make an appointment to discuss our options. I

> once again brought up the subject of LDN and gave him the " 50 words or

> less " summary of what it was all about, mentioning that the treatment was

> devised by a fellow neurologist, Dr. Bahari. As he had patients to attend

> to he couldn't go into it over the phone but said he was open to

> discussion and told me to bring any supporting literature to my next

> session with him (which is Oct. 11). All of which brings me here. When I

> was told I likely had MS I went about learning everything I could about

> the illness. Dr. Weiner's " Curing MS " was probably the best book I found

> for understand's MS and medicine's current state of the art in dealing

> with it. Searching the WWW also led me to LDN. I have purchased and read

> Bradley's " Up the Creek with a PAddle " . LDN consistantly leads the list of

> positive reviews on RemedyFind.com andlow dose naltrexone.org seems to be

> the definitive resource for LDN news. And of course this group is the

> place to go for Q & A on all things LDN. On Oct. 11 I need to sit down

> with my neurologist, quickly bring him up to speed on LDN, and provide him

> with good supporting documentation that LDN works. In that the CRAB

> therapies are not without serious side effects, are expensive, and for the

> most part are injection-only, and given that LDN seems to be MORE

> effective than any of the CRAB drugs, I have decided I want to try LDN

> first. I have printed out the MS section of low dose naltrexone.com and Dr.

> Bahari's CV. I plan to take those to my neurologist along with Bradley's

> book and web addresses to RemedyFind, ldninfo and this group. My

> question to you good people: (1) Can you recommend any other persuasive

> LDN supportive documentation (2) in that Dr.Bahari includes his phone

> number and address in his CV, is it safe to assume I can tell my

> neurologist to call Dr. Bahari to discuss LDN? In fact, should I call Dr.

> Bahari first? I've read that some on this board have met or talked with

> Dr. Bahari so thought I might ask here before calling him. Thanks in

> advance for your input... I'll keep you all informed on how it goes. It's

> odd when we find ourselves in the position of having to educate those we

> go to for help. I do know I need to do this thing right.

>

> Sincerely,

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I am kind of in the same situation but I started on injectables and

then went to Ldn 8 months later. Started LDN Jan 05 have moved to a

new state and went to a new neuro and asked him for a script. He did

not want to give it to me unless I showed him some studies. I asked

him if he would discuss with another Dr and his staff said yes.

Actuallly his staff said Dr. Bihari could call the office. I was a

little annoyed with that because do they really expect a Dr who is

not mine to call my Dr to discuss a protical. I called Dr. B office

and his staff said he is always willing to discuss with another Dr.

I did not ask if Dr B would call my Dr I thought that was rude and

very over stepping. If I wanted Dr.Bihari to call my Dr I would

expect I would owe him $500 for a office call. I was just very

pleaed that the office said that he would talk to another physician

and I think that is above and beyond. Now I just have to get my Dr

to pick up the phone and call him which I think will be the hardest

thing to achieve. They tell you they will look at the info but will

they actually take the step and dial Dr. Biharis office???. I am

going to discuss with my GP also at the next appt. When I called

Dr. Biharis office they said he had hurt his neck and was going to be

out of the office for awhile. I would first find out if your Dr

would call him then call Dr B office to make sure he is back in the

office. Call Dr B office to confirm this if it makes you feel more

comfortable. I left a message and they called me back the same day

telling me that. Hope all goes well . Kim

[Guest guest]

Hi Tom,

I spoke with Dr. Bahari's office this morning and got approval for my

neurologist to contact him. Unfortunately the good doctor is still in rehab for

a neck injury and may not be able to get back to my neurologist for quite some

time.

I did check out your book site and must say it looks like you have written

some wonderful books. I will purchase one of them, and if I enjoy it will plan

on reading the rest. Which book do you recommend I start with? I assume the

logical choice would be the first one but will wait to hear from you before

ordering.

Thanks,

> ,

> It would be best if your doc called Dr. Bihari first, it would save you

> $500. No doubt after that call your doc would be up to date on LDN and

> prescribe it for you. In the meantime go to www.copingandprevailing.com If

> you cannot afford to pay for the book send me your mailing address and I

> will send it to you.

> Regards,

> Tom

>

> [low dose naltrexone] Intro & request for advice

>

>

> > Hello everyone,

> >

> > My name is and I've been following this forum for a few months

> > now. I'm a 53 year old woman who has been recently diagnosed with what

> > appears to be late onset MS. On April 2nd of this year I awoke to find my

> > left arm to be numb and spastic. My Primary Care Physician sent me to the

> > local ER where a CAT scan showed I may have had a stroke. A follow-up MRI

> > indicated that it was instead an area of demylination in the right

> > posterior parietal area of my brain, just superior to the level of the

> > lateral ventricles. As we were now looking at a likelihood of my having MS

> > my PCP refered me to a neurologist. At my initial consult with the

> > neurologist he agreed that I likely had MS but that his sense was that it

> > would be benign and scheduled a follow-up appointment in 3 months. After

> > my initial attack the motor function of my left arm rapidly returned to

> > normal but numbness in my left hand persisted (and does to this day) and I

> > continue to feel to be in a mental fog. On my 3 month follow-up visit 2

> > weeks ago he decided to have another MRI done, which I had done early last

> > week. At that time I also approached him on the subject of LDN.

> > Surprisingly he had not heard of it... surprising because he is chief of

> > neurology at a major city hospital. (Funny thing... my primary care doc

> > HAD heard of it. Go figure!) Yesterday I received a call from my

> > neurologist. He had gotten my latest MRI in and there were more areas of

> > demylination,so he wanted to make an appointment to discuss our options. I

> > once again brought up the subject of LDN and gave him the " 50 words or

> > less " summary of what it was all about, mentioning that the treatment was

> > devised by a fellow neurologist, Dr. Bahari. As he had patients to attend

> > to he couldn't go into it over the phone but said he was open to

> > discussion and told me to bring any supporting literature to my next

> > session with him (which is Oct. 11). All of which brings me here. When I

> > was told I likely had MS I went about learning everything I could about

> > the illness. Dr. Weiner's " Curing MS " was probably the best book I found

> > for understand's MS and medicine's current state of the art in dealing

> > with it. Searching the WWW also led me to LDN. I have purchased and read

> > Bradley's " Up the Creek with a PAddle " . LDN consistantly leads the list of

> > positive reviews on RemedyFind.com andlow dose naltrexone.org seems to be

> > the definitive resource for LDN news. And of course this group is the

> > place to go for Q & A on all things LDN. On Oct. 11 I need to sit down

> > with my neurologist, quickly bring him up to speed on LDN, and provide him

> > with good supporting documentation that LDN works. In that the CRAB

> > therapies are not without serious side effects, are expensive, and for the

> > most part are injection-only, and given that LDN seems to be MORE

> > effective than any of the CRAB drugs, I have decided I want to try LDN

> > first. I have printed out the MS section of low dose naltrexone.com and Dr.

> > Bahari's CV. I plan to take those to my neurologist along with Bradley's

> > book and web addresses to RemedyFind, ldninfo and this group. My

> > question to you good people: (1) Can you recommend any other persuasive

> > LDN supportive documentation (2) in that Dr.Bahari includes his phone

> > number and address in his CV, is it safe to assume I can tell my

> > neurologist to call Dr. Bahari to discuss LDN? In fact, should I call Dr.

> > Bahari first? I've read that some on this board have met or talked with

> > Dr. Bahari so thought I might ask here before calling him. Thanks in

> > advance for your input... I'll keep you all informed on how it goes. It's

> > odd when we find ourselves in the position of having to educate those we

> > go to for help. I do know I need to do this thing right.

> >

> > Sincerely,

> >

> >

> >

> >

> >

> >

> >

> >

> >