Hi ...

[Guest guest]

" Message: 2

Date: Wed, 28 Sep 2005 15:26:05 -0000

From: " " <tiltyhalo@...>

Subject: Intro & request for advice

Hello everyone,

My name is and I've been following this forum for a few months now.

I'm

a 53 year old woman who has been recently diagnosed with what appears to be

late

onset MS..... All of which brings me here. When I was told I

likely had MS I went about learning everything I could about the illness.

Dr.

Weiner's " Curing MS " was probably the best book I found for understand's MS

and

medicine's current state of the art in dealing with it. Searching the WWW

also

led me to LDN. I have purchased and read Bradley's " Up the Creek with a

PAddle " .

LDN consistantly leads the list of positive reviews on RemedyFind.com

andlow dose naltrexone.org seems to be the definitive resource for LDN news.

And

of course this group is the place to go for Q & A on all things LDN. On

Oct. 11

I need to sit down with my neurologist, quickly bring him up to speed on

LDN,

and provide him with good supporting documentation that LDN works. In that

the

CRAB therapies are not without serious side effects, are expensive, and for

the

most part are injection-only, and given that LDN seems to be MORE effective

than

any of the CRAB drugs, I have decided I want to try LDN first. I have

printed

out the MS section of low dose naltrexone.com and Dr. Bahari's CV. I plan to

take

those to my neurologist along with Bradley's book and web addresses to

RemedyFind, ldninfo and this group. My question to you good people:

(1)

Can you recommend any other persuasive LDN supportive documentation (2) in

that

Dr.Bahari includes his phone number and address in his CV, is it safe to

assume

I can tell my neurologist to call Dr. Bahari to discuss LDN? In fact, should

I

call Dr. Bahari first? I've read that some on this board have met or talked

with

Dr. Bahari so thought I might ask here before calling him. Thanks in

advance

for your input... I'll keep you all informed on how it goes. It's odd when

we

find ourselves in the position of having to educate those we go to for help.

I

do know I need to do this thing right.

Sincerely,

"

Hi , that was a very thoughtful and detailed post.... I shortened it

somewhat for space and I'll try to answer some of the questions as best I

can. First of all, it would be a great idea to have your neuro call Dr.

Bihari. I have heard that he is very receptive to calls from other doctors

that are interesting in learning more about LDN.

As far as treating your illness with LDN. If you feel that there is an

immune system component to it, then the LDN would be a great choice to try

and treat it. We are all one big experiment so I don't see any reason why

you shouldn't give it a go. I don't think it could hurt you and might

certainly help you so that is a win win situtation. I'm sure that none of

the group members here will be surprised that your neuro had not heard of it

cuz many have not. Bradley's book " Up the Creek " is an excellant one to

convince anyone who may be on the fence about this whole thing but unless

your doctor has time to read it, it will not help in your quest. Another

something that you might print out would be Dr. Agrawals interview with the

Boston Cure Project and or his abstract for LDN. You can find that over at

Sammy Jo website. www.ldners.org. Just click on the Research section. I do

suspect that doctors will listen to other doctors but I've been wrong

before..lol. We would all love to hear how you make out and also how you do

once you are on the LDN. Just keep in mind that if this particular doctor

will not listen to reason, there are several out there that will. Good luck.

JoyceF

[Guest guest]

, that should have been ( 2cups filtered

water every 2 hours instead of 4 hours or (1/2 your body wt. in ounces

ex: 140 pounds should drink 70 ounces water per day at least, more if

you have things that dehydrate you like coffee.)

healing and best wishes,

Ebony