Re: Returning with Question

[Guest guest]

Hi ee,

What is your diet like? Have you tried to remove dairy, high fats and wheat

for a while to see if that helps. Are you taking any supplements?

I can send you a list of what my husband is taking if you would like.

I met a woman today that says that she has been " juicing " and has lost her

hot spots for breast cancer, and her friend has been " juicing " also and all

signs of Lupus are gone after 4 months. Apparently the theory is that our

bodies are usually on the acid side when these illnesses come in. So you

change that by adding alkaline by either juicing or changing the alkaline

content in your body somehow. It might be worth a shot.

Aletha

[low dose naltrexone] Returning with Question

> Hello,

>

> I was on this group a while back, but stopped taking LDN so I signed

> off.

>

> In sheer desperation, I'm giving LDN one more shot, so I have a

> couple questions.

>

> First, let me start by saying I have *not* been diagnosed with MS, or

> anything else. Whatever I have ACTS just like MS and I fit the

> profile (female, from New Jersey, relapsing/remitting pattern of

> neurological problems, fatigue, drop foot, etc) My MRIs are normal

> as are my LP and VER tests.. and they have been for nearly 18 years.

>

> The LDN is more or less an experiment. I don't know what I'm

> treating so I don't know what to treat it WITH.

>

> So here's my question: How long does one " wait and see " if LDN is

> beneficial? I can't tell. I know I stay up later, sleep deeper, but

> seem to get more headaches, fatigue not improved, legs still hurt,

> still get muscle cramps, etc.

>

> Is this a drug that " builds up " (can't be, it's quick release).. or

> does it work daily, if you skip a couple days can you tell, etc?

>

> I've been on it before but it made me TERRIBLY stiff. I didn't get

> much stiffness this time, it's been about a month now, but I don't

> see much change at all. Of course I may not be dealing with an

> ailment that responds to LDN either.

>

> Thanks for your time.

>

> ee

>

>

>

>

>

[Guest guest]

> Hi ee,

>

> What is your diet like? Have you tried to remove dairy, high fats

and wheat

> for a while to see if that helps. Are you taking any supplements?

>

> I can send you a list of what my husband is taking if you would

like.

>

> I met a woman today that says that she has been " juicing " and has

lost her

> hot spots for breast cancer, and her friend has been " juicing "

also and all

> signs of Lupus are gone after 4 months. Apparently the theory is

that our

> bodies are usually on the acid side when these illnesses come in.

So you

> change that by adding alkaline by either juicing or changing the

alkaline

> content in your body somehow. It might be worth a shot.

>

> Aletha

>

>

> [low dose naltrexone] Returning with Question

>

>

> > Hello,

> >

> > I was on this group a while back, but stopped taking LDN so I

signed

> > off.

> >

> > In sheer desperation, I'm giving LDN one more shot, so I have a

> > couple questions.

> >

> > First, let me start by saying I have *not* been diagnosed with

MS, or

> > anything else. Whatever I have ACTS just like MS and I fit the

> > profile (female, from New Jersey, relapsing/remitting pattern of

> > neurological problems, fatigue, drop foot, etc) My MRIs are

normal

> > as are my LP and VER tests.. and they have been for nearly 18

years.

> >

> > The LDN is more or less an experiment. I don't know what I'm

> > treating so I don't know what to treat it WITH.

> >

> > So here's my question: How long does one " wait and see " if LDN

is

> > beneficial? I can't tell. I know I stay up later, sleep

deeper, but

> > seem to get more headaches, fatigue not improved, legs still

hurt,

> > still get muscle cramps, etc.

> >

> > Is this a drug that " builds up " (can't be, it's quick release)..

or

> > does it work daily, if you skip a couple days can you tell, etc?

> >

> > I've been on it before but it made me TERRIBLY stiff. I didn't

get

> > much stiffness this time, it's been about a month now, but I

don't

> > see much change at all. Of course I may not be dealing with an

> > ailment that responds to LDN either.

> >

> > Thanks for your time.

> >

> > ee

> >

> >

> >

> >

> >

[Guest guest]

Aletha,

Would you be able to share what your friends are using in their

juising to accomplish the alkaline balance? I've pulled my

Champion juicer out and would like to do some healthy combinations.

God Bless,

Sara

> Hi ee,

>

> What is your diet like? Have you tried to remove dairy, high fats

and wheat

> for a while to see if that helps. Are you taking any supplements?

>

> I can send you a list of what my husband is taking if you would

like.

>

> I met a woman today that says that she has been " juicing " and has

lost her

> hot spots for breast cancer, and her friend has been " juicing "

also and all

> signs of Lupus are gone after 4 months. Apparently the theory is

that our

> bodies are usually on the acid side when these illnesses come in.

So you

> change that by adding alkaline by either juicing or changing the

alkaline

> content in your body somehow. It might be worth a shot.

>

> Aletha

>

>

> [low dose naltrexone] Returning with Question

>

>

> > Hello,

> >

> > I was on this group a while back, but stopped taking LDN so I

signed

> > off.

> >

> > In sheer desperation, I'm giving LDN one more shot, so I have a

> > couple questions.

> >

> > First, let me start by saying I have *not* been diagnosed with

MS, or

> > anything else. Whatever I have ACTS just like MS and I fit the

> > profile (female, from New Jersey, relapsing/remitting pattern of

> > neurological problems, fatigue, drop foot, etc) My MRIs are

normal

> > as are my LP and VER tests.. and they have been for nearly 18

years.

> >

> > The LDN is more or less an experiment. I don't know what I'm

> > treating so I don't know what to treat it WITH.

> >

> > So here's my question: How long does one " wait and see " if LDN

is

> > beneficial? I can't tell. I know I stay up later, sleep

deeper, but

> > seem to get more headaches, fatigue not improved, legs still

hurt,

> > still get muscle cramps, etc.

> >

> > Is this a drug that " builds up " (can't be, it's quick release)..

or

> > does it work daily, if you skip a couple days can you tell, etc?

> >

> > I've been on it before but it made me TERRIBLY stiff. I didn't

get

> > much stiffness this time, it's been about a month now, but I

don't

> > see much change at all. Of course I may not be dealing with an

> > ailment that responds to LDN either.

> >

> > Thanks for your time.

> >

> > ee

> >

> >

> >

> >

> >

[Guest guest]

--- In low dose naltrexone , ee Cavnar-Brown <runnoft@a...>

wrote:

> Hello,

>

> I was on this group a while back, but stopped taking LDN so I signed

> off.

>

> In sheer desperation, I'm giving LDN one more shot, so I have a

> couple questions.

>

> First, let me start by saying I have *not* been diagnosed with MS, or

> anything else. Whatever I have ACTS just like MS and I fit the

> profile (female, from New Jersey, relapsing/remitting pattern of

> neurological problems, fatigue, drop foot, etc) My MRIs are normal

> as are my LP and VER tests.. and they have been for nearly 18 years.

>

> The LDN is more or less an experiment. I don't know what I'm

> treating so I don't know what to treat it WITH.

>

> So here's my question: How long does one " wait and see " if LDN is

> beneficial? I can't tell. I know I stay up later, sleep deeper, but

> seem to get more headaches, fatigue not improved, legs still hurt,

> still get muscle cramps, etc.

>

> Is this a drug that " builds up " (can't be, it's quick release).. or

> does it work daily, if you skip a couple days can you tell, etc?

>

> I've been on it before but it made me TERRIBLY stiff. I didn't get

> much stiffness this time, it's been about a month now, but I don't

> see much change at all. Of course I may not be dealing with an

> ailment that responds to LDN either.

>

> Thanks for your time.

>

> ee

=========

First of all, LDN's main purpose is to keep one's disease from getting any

worse, not improving symptoms. If one happens to get some symptom improvement

on LDN then that is just an added plus. So one may not see any symptom

improvements while on LDN but your disease may not be getting any worse on LDN

and that's a good thing. One needs to be on LDN at least a year to know if LDN

is going to help stop one's disease progression.

ee get yourself tested for Lyme by having a Western Blot test done. Do not

settle for your doctor running just the ELISA blood test...insist on Western

Blot. Though the Western Blot is not 100% in diagnosing Lyme and sometimes

misses Lyme it is better than the ELISA test that misses Lyme much of the time.

Lyme Disease mimics MS very closely. LDN does not help Lyme and some with Lyme

have felt worse taking LDN.

[Guest guest]

>

I haven't been dxed with MS or what either just one brain lesion. The

LDN did make the lesion inactive and I got symptom relief. I didn't

get the fatigue relieved until I took the LDN the Liquid method from

Revia. If you haven't tried the liquid method, try it and see if your

fatigue lets up or goes away. I did take generic for 3 weeks that sent

me back downhill so I ordered more Bristol Myers Revia from

medsmex.com. and I had to go from 4.5mgs to 5mgs. I'm still not

totally back to where I was before generic. I've been on LDN since Dec.

2004 and took the crushed method until June 2005 when I started the

liquid method which worked a lot better for me and still on liquid LDN.

I have had symptoms for 10 years which progressed last 2 years before

LDN and just got dxed with brain lesion in 2004.

Rhonda

> Been there, done that.

> A diagnosis, at this point, is a fantasy. I've been tested for

things they

> KNEW I didn't have, AIDS, lyme, lupus, tropical paraperisis(sp), MS,

cancer,

> allergies, etc.

>

> But thanks.

[Guest guest]

Are you taking any other medication for anything?

--- ee Cavnar-Brown <runnoft@...> wrote:

> Hello,

>

> I was on this group a while back, but stopped taking

> LDN so I signed

> off.

>

> In sheer desperation, I'm giving LDN one more shot,

> so I have a

> couple questions.

>

> First, let me start by saying I have *not* been

> diagnosed with MS, or

> anything else. Whatever I have ACTS just like MS

> and I fit the

> profile (female, from New Jersey,

> relapsing/remitting pattern of

> neurological problems, fatigue, drop foot, etc) My

> MRIs are normal

> as are my LP and VER tests.. and they have been for

> nearly 18 years.

>

> The LDN is more or less an experiment. I don't know

> what I'm

> treating so I don't know what to treat it WITH.

>

> So here's my question: How long does one " wait and

> see " if LDN is

> beneficial? I can't tell. I know I stay up later,

> sleep deeper, but

> seem to get more headaches, fatigue not improved,

> legs still hurt,

> still get muscle cramps, etc.

>

> Is this a drug that " builds up " (can't be, it's

> quick release).. or

> does it work daily, if you skip a couple days can

> you tell, etc?

>

> I've been on it before but it made me TERRIBLY

> stiff. I didn't get

> much stiffness this time, it's been about a month

> now, but I don't

> see much change at all. Of course I may not be

> dealing with an

> ailment that responds to LDN either.

>

> Thanks for your time.

>

> ee

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

---- wensu baki wrote:>>

>>>Are you taking any other medication for anything?

>>--- ee Cavnar-Brown <runnoft@...> wrote:

>>>Hello,>>>>I was on this group a while back, but stopped taking>>LDN so I signed

>>off.>>>>In sheer desperation, I'm giving LDN one more shot,>>so I have a >>couple questions.

>>>>First, let me start by saying I have *not* been

>>diagnosed with MS, or >>anything else. Whatever I have ACTS just like MS>>and I fit the

>>profile (female, from New Jersey,>>relapsing/remitting pattern of >>neurological problems, fatigue, drop foot, etc) My>>MRIs are normal >>as are my LP and VER tests.. and they have been for>>nearly 18 years.

>>>>The LDN is more or less an experiment. I don't know

>>what I'm >>treating so I don't know what to treat it WITH.

>>>>So here's my question: How long does one " wait and

>>see " if LDN is >>beneficial? I can't tell. I know I stay up later,>>sleep deeper, but >>seem to get more headaches, fatigue not improved,>>legs still hurt,

>>still get muscle cramps, etc.>>>>Is this a drug that " builds up " (can't be, it's>>quick release).. or >>does it work daily, if you skip a couple days can

>>you tell, etc?>>>>I've been on it before but it made me TERRIBLY>>stiff. I didn't get

>>much stiffness this time, it's been about a month

>>now, but I don't >>see much change at all. Of course I may not be>>dealing with an

>>ailment that responds to LDN either.>>

>>Thanks for your time.>>>>ee

>>>>>>

>__________________________________> - PC Magazine Editors' Choice 2005>

http://mail.> >>>

>

>>>>

>>>