Will the nightmare ever end?

[Guest guest]

Hello and hugs to all,

I haven't written in along time, but I am still her. I have

some news though. I don't know really whether to break down and cry or to just

be happy that my girls do get at least most of the services they need. As

most of you know Angel, my oldest child with autism. She can hear quite well

thank God! Well, now my youngest is needing the most care. She is now 7

and all of a sudden she has lost most of her hearing if that isn't hard enough

*gulp now the drs find that she has congenital glacoma. This story does not

end there. As soon as the school learned of her glacoma they decided to

evaluated her. The dr sent a statement predicting that Rebekah will begin to

loose her sight with in a year *cry. This child was born normal except that

she did share Rieger's syndrome with her sister. So, Rebekah's pupils are oval

like a cat's eyes (Rieger's anomaly) Rebekah is now registered with

commission for the blind, and the TEA and will be receiving vision services

based

on teacher consult once a month as well as changing and organizing things with

big letters and colors should she go blind. I am still in such shock. It's

tough when a child is born with a disability but even tougher to have a

normal child and then she ends up disabled.

On a good note though, Angel is going to Austin this week to the school for

the blind for a kitchen/cooking work shop. Angel is packed and all excited

and Rebekah is ready to get rid of her " giggle "

In spite of the news of Rebekah both girls continue to make straight A's in

school. Angel still does not receive any services under autism but she is

really getting the help for it at this time under vision services.

Tammy