Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 > > Hi all, > > > > My name is Jorn – I have been following this group for a little > > while. My son has Malignant Melanoma, metastasized to spine, brain > > and possibly liver and ribs (currently scheduled for a PET scan). > > > > I have been impressed by the good results of LDN in treating MS but I > > don't see many using it for cancer – particularly Melanoma. > > > > My son is considering trying LDN. It seems, at worst, it will do no > > harm and it just may help but we have a few questions that the group > > members might be able to help us with: > > > > * Any other Melanoma users out there? – if so, what are your > > experiences? > > > > * Should Dr. Bihari be consulted before starting or can we just go > > for it? > > > > * Is it adviseable to start with 3 mg, and for how long, before > > going to 4.5 mg? > > > > * How long before results can be expected? > > > > * Does LDN reduce cancer pain? > > > > * Does anyone know of a subscription Doctor in San Diego or > > Southern Calif.? > > > > Any advice you can provide will be very much appreciated > > > > Thank you > > jorn > ======== > > You can start LDN now. If possible try to reach 4.5mg unless your son is below 100 pounds and then do 3.0mg unless instructed otherwise by Bihari's office. Contacting Dr. Bihari's office would be in your son's best interest as they can give you more advice and make suggestions on other supplements that could be beneficial. You may have to speak to Bihari's assistant due to Bihari being in rehab for hip surgery. But Bihari's assistant has been researching LDN for years along with Bihari. Be sure to use one of the reputable compounding pharmacies from the LDN site for quality LDN. The best known fillers for the LDN capsules are Acidophilus(so far no complaints), Lactose(if allergic can cause stomach upset), Avicel(if allergic can cause nausea, headache & vomiting) and some use Gelatin(so far no complaints). With your son having cancer take no chances using calcium carbonate(CC) as a filler in his LDN capsules. CC has been found to be iffy by some of us. CC has made LDN release slow and LDN must release fast. The Compounder on the LDN website uses very little CC in with other fillers and the CC in that fashion so far hasn't caused a problem. If your son is lactose intolerant ask for Acidophilus as his filler. > > NOTE: The neurologist who prescribes LDN is Dr. Geleris. I put that statement in the wrong place in my first reply. > Dr. Jeoffrey B. Gordon M.D. MPH 619-223-7164 1947 Cable St. San Diego, CA Neurologist who has prescribed LDN. Dr. Geleris West Covina. CA 626-331-6411 Dr. Neal Rouzier, MD 760-322-9475 2825 Tahquitz Canyon Way, Suite B200 Palm Springs, CA 92262 He is familiar with LDN and has used it for MS and Cancer patients. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Dear , Thank you for your reference. I am familiar with that site, which led me to consult with Larry of Essence of Life, who has treated many cancer patients over the last few years. My son will probably choose his Cesium Chloride protocol but, for a few more days, we will still be trying to locate other alternatives. Thank you again for your reference. best regards, jorn > > > Hi all, > > > > > > My name is Jorn – I have been following this group for a little > > > while. My son has Malignant Melanoma, metastasized to spine, brain > > > and possibly liver and ribs (currently scheduled for a PET scan). > > > > > > I have been impressed by the good results of LDN in treating MS but I > > > don't see many using it for cancer – particularly Melanoma. > > > > > > My son is considering trying LDN. It seems, at worst, it will do no > > > harm and it just may help but we have a few questions that the group > > > members might be able to help us with: > > > > > > * Any other Melanoma users out there? – if so, what are your > > > experiences? > > > > > > * Should Dr. Bihari be consulted before starting or can we just go > > > for it? > > > > > > * Is it adviseable to start with 3 mg, and for how long, before > > > going to 4.5 mg? > > > > > > * How long before results can be expected? > > > > > > * Does LDN reduce cancer pain? > > > > > > * Does anyone know of a subscription Doctor in San Diego or > > > Southern Calif.? > > > > > > Any advice you can provide will be very much appreciated > > > > > > Thank you > > > jorn > > ======== > > > > You can start LDN now. If possible try to reach 4.5mg unless your son is > below 100 pounds and then do 3.0mg unless instructed otherwise by Bihari's > office. Contacting Dr. Bihari's office would be in your son's best interest > as they can give you more advice and make suggestions on other supplements > that could be beneficial. You may have to speak to Bihari's assistant due > to Bihari being in rehab for hip surgery. But Bihari's assistant has been > researching LDN for years along with Bihari. Be sure to use one of the > reputable compounding pharmacies from the LDN site for quality LDN. The > best known fillers for the LDN capsules are Acidophilus(so far no > complaints), Lactose(if allergic can cause stomach upset), Avicel (if > allergic can cause nausea, headache & vomiting) and some use Gelatin(so far > no complaints). With your son having cancer take no chances using calcium > carbonate(CC) as a filler in his LDN capsules. CC has been found to be iffy > by some of us. CC has made LDN release slow and LDN must release fast. The > Compounder on the LDN website uses very little CC in with other fillers and > the CC in that fashion so far hasn't caused a problem. If your son is > lactose intolerant ask for Acidophilus as his filler. > > > > > NOTE: The neurologist who prescribes LDN is Dr. Geleris. I put that > statement in the wrong place in my first reply. > > > > Dr. Jeoffrey B. Gordon M.D. MPH 619-223-7164 > 1947 Cable St. > San Diego, CA > > > Neurologist who has prescribed LDN. > Dr. Geleris > West Covina. CA > 626-331-6411 > > > Dr. Neal Rouzier, MD > 760-322-9475 > 2825 Tahquitz Canyon Way, Suite B200 > Palm Springs, CA 92262 > He is familiar with LDN and has used it for MS and Cancer patients. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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