Re: Re: Intro & request for advice

[Guest guest]

Hi ,

The second book is best. It includes all of the first book plus up to date

info.

Hope it helps and don't worry you can and will manage ms.

Regards,

Tom

[low dose naltrexone] Intro & request for advice

>>

>>

>> > Hello everyone,

>> >

>> > My name is and I've been following this forum for a few months

>> > now. I'm a 53 year old woman who has been recently diagnosed with what

>> > appears to be late onset MS. On April 2nd of this year I awoke to find

>> > my

>> > left arm to be numb and spastic. My Primary Care Physician sent me to

>> > the

>> > local ER where a CAT scan showed I may have had a stroke. A follow-up

>> > MRI

>> > indicated that it was instead an area of demylination in the right

>> > posterior parietal area of my brain, just superior to the level of the

>> > lateral ventricles. As we were now looking at a likelihood of my having

>> > MS

>> > my PCP refered me to a neurologist. At my initial consult with the

>> > neurologist he agreed that I likely had MS but that his sense was that

>> > it

>> > would be benign and scheduled a follow-up appointment in 3 months.

>> > After

>> > my initial attack the motor function of my left arm rapidly returned to

>> > normal but numbness in my left hand persisted (and does to this day)

>> > and I

>> > continue to feel to be in a mental fog. On my 3 month follow-up visit 2

>> > weeks ago he decided to have another MRI done, which I had done early

>> > last

>> > week. At that time I also approached him on the subject of LDN.

>> > Surprisingly he had not heard of it... surprising because he is chief

>> > of

>> > neurology at a major city hospital. (Funny thing... my primary care doc

>> > HAD heard of it. Go figure!) Yesterday I received a call from my

>> > neurologist. He had gotten my latest MRI in and there were more areas

>> > of

>> > demylination,so he wanted to make an appointment to discuss our

>> > options. I

>> > once again brought up the subject of LDN and gave him the " 50 words or

>> > less " summary of what it was all about, mentioning that the treatment

>> > was

>> > devised by a fellow neurologist, Dr. Bahari. As he had patients to

>> > attend

>> > to he couldn't go into it over the phone but said he was open to

>> > discussion and told me to bring any supporting literature to my next

>> > session with him (which is Oct. 11). All of which brings me here.

>> > When I

>> > was told I likely had MS I went about learning everything I could about

>> > the illness. Dr. Weiner's " Curing MS " was probably the best book I

>> > found

>> > for understand's MS and medicine's current state of the art in dealing

>> > with it. Searching the WWW also led me to LDN. I have purchased and

>> > read

>> > Bradley's " Up the Creek with a PAddle " . LDN consistantly leads the list

>> > of

>> > positive reviews on RemedyFind.com andlow dose naltrexone.org seems to be

>> > the definitive resource for LDN news. And of course this group is the

>> > place to go for Q & A on all things LDN. On Oct. 11 I need to sit down

>> > with my neurologist, quickly bring him up to speed on LDN, and provide

>> > him

>> > with good supporting documentation that LDN works. In that the CRAB

>> > therapies are not without serious side effects, are expensive, and for

>> > the

>> > most part are injection-only, and given that LDN seems to be MORE

>> > effective than any of the CRAB drugs, I have decided I want to try LDN

>> > first. I have printed out the MS section of low dose naltrexone.com and

>> > Dr.

>> > Bahari's CV. I plan to take those to my neurologist along with

>> > Bradley's

>> > book and web addresses to RemedyFind, ldninfo and this group.

>> > My

>> > question to you good people: (1) Can you recommend any other persuasive

>> > LDN supportive documentation (2) in that Dr.Bahari includes his phone

>> > number and address in his CV, is it safe to assume I can tell my

>> > neurologist to call Dr. Bahari to discuss LDN? In fact, should I call

>> > Dr.

>> > Bahari first? I've read that some on this board have met or talked with

>> > Dr. Bahari so thought I might ask here before calling him. Thanks in

>> > advance for your input... I'll keep you all informed on how it goes.

>> > It's

>> > odd when we find ourselves in the position of having to educate those

>> > we

>> > go to for help. I do know I need to do this thing right.

>> >

>> > Sincerely,

>> >

>> >

>> >

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