Re: HELP need advise LDN and steriods - Caution on Advice

[Guest guest]

> > Long-term steroid use suppresses the immune system and LDN boosts

> the immune system so they conflict. If this is a steroid that must

> be tapered/weaned then do so. If the steroid does not need

> tapering/weaning then stop the steroid immediately. Begin LDN now

> and try to get up to the 4.5mg dose for cancer. Dr. Bihari prefers

> the 4.5mg over the 3.0mg but if 4.5mg causes any problems for more

> than 1 month then back down to 3.0mg.

> >

> >

I have Posted ocassionally to those reading here to use caution on

" advice " presented online. It is important to use judgement seperating

" suggestions " from facts.

A quick search of " steroids " here revealed the post below. I seem to

recall some time back other posts mentioning Dr. B supporting steriod

and LDN use together. Who to believe? I suggest contacting Dr.

Bihari's office directly!!!

I have been told directly by Dr. B that 4.5mg is the optimum dose to

strive for. Obviously, if intolerable, some is better than none but he

indicated to me (more than a year back) that he felt less than 4.5mg

might not slow down (or halt) progression. I don't mean to single

out (please do not take offense), but feel compelled to urge

extreme caution when reading such definitive statements (like the one

above) from anyone other than Dr. Bihari (or perhaps Dr. Lawrence).

Best

Alan

From: " mboylebradley " <mboylebradley@...>

Date: Sat Jul 30, 2005 9:37 am

Subject: Re: Steroids mboylebradley

Although on paper steroids would seems to work against LDN Dr Bihari

has found in practice they compliment eachother in times of relapse.

When my husband took steroids Dr B recomended staying on the LDN for

the duration. To recap .. my husband has PPMS and despite one pseudo

relapse (old symptoms returned with vengeance) as a result of personal

stress .. he has not one brand new symptom since starting LDN in

september 2002.

all the best

www.marybradleybooks.com

[Guest guest]

>

> > > Long-term steroid use suppresses the immune system and LDN boosts

> > the immune system so they conflict. If this is a steroid that must

> > be tapered/weaned then do so. If the steroid does not need

> > tapering/weaning then stop the steroid immediately. Begin LDN now

> > and try to get up to the 4.5mg dose for cancer. Dr. Bihari prefers

> > the 4.5mg over the 3.0mg but if 4.5mg causes any problems for more

> > than 1 month then back down to 3.0mg.

> > >

> > >

>

> I have Posted ocassionally to those reading here to use caution on

> " advice " presented online. It is important to use judgement seperating

> " suggestions " from facts.

>

> A quick search of " steroids " here revealed the post below. I seem to

> recall some time back other posts mentioning Dr. B supporting steriod

> and LDN use together. Who to believe? I suggest contacting Dr.

> Bihari's office directly!!!

>

> I have been told directly by Dr. B that 4.5mg is the optimum dose to

> strive for. Obviously, if intolerable, some is better than none but he

> indicated to me (more than a year back) that he felt less than 4.5mg

> might not slow down (or halt) progression. I don't mean to single

> out (please do not take offense), but feel compelled to urge

> extreme caution when reading such definitive statements (like the one

> above) from anyone other than Dr. Bihari (or perhaps Dr. Lawrence).

>

> Best

> Alan

>

> From: " mboylebradley " <mboylebradley@>

> Date: Sat Jul 30, 2005 9:37 am

> Subject: Re: Steroids mboylebradley

>

> Although on paper steroids would seems to work against LDN Dr Bihari

> has found in practice they compliment eachother in times of relapse.

> When my husband took steroids Dr B recomended staying on the LDN for

> the duration. To recap .. my husband has PPMS and despite one pseudo

> relapse (old symptoms returned with vengeance) as a result of personal

> stress .. he has not one brand new symptom since starting LDN in

> september 2002.

> all the best

>

> www.marybradleybooks.com

========

Cancer & LDN and MS & LDN get a little different advice from Bihari. I

suggested to the person's whose husband is on his death bed with a cancer

illness what Bihari would suggest, no immune system suppressants with LDN if at

all possible. I spoke to Bihari for 90 minutes strictly on LDN and cancer. It

would also be great if the man's doctors would call Bihari. Bihari really does

not like to see anyone take any immune system suppressants if they are taking

LDN for cancers unless there is no other alternative and there are alternative

treatments for treating anemia. Bradley's husband has MS, not cancer.

Bihari stressed hard on me and my mom that he believed that 4.5mg LDN would keep

my mom breast cancer free and to strictly avoid chemo's and other immune system

suppressants. My mom's mammograms & bloodwork 3 months ago and a bone scan

today says she's still cancer free on 4.5mg LDN with no chemo treatments. She

was dx'd aggressive breast cancer & had a lumpectomy April 2004 and started LDN

April 2004.

[Guest guest]

> >

> > I have Posted ocassionally to those reading here to use caution

on

> > " advice " presented online. It is important to use judgement

seperating

> > " suggestions " from facts.

> >

> > A quick search of " steroids " here revealed the post below. I

seem to

> > recall some time back other posts mentioning Dr. B supporting

steriod

> > and LDN use together. Who to believe? I suggest contacting Dr.

> > Bihari's office directly!!!

> >

> > I have been told directly by Dr. B that 4.5mg is the optimum

dose to

> > strive for. Obviously, if intolerable, some is better than none

but he

> > indicated to me (more than a year back) that he felt less than

4.5mg

> > might not slow down (or halt) progression. I don't mean to single

> > out (please do not take offense), but feel compelled to

urge

> > extreme caution when reading such definitive statements (like

the one

> > above) from anyone other than Dr. Bihari (or perhaps Dr.

Lawrence).

> >

> > Best

> > Alan

> >>

> Cancer & LDN and MS & LDN get a little different advice from

Bihari. I suggested to the person's whose husband is on his death

bed with a cancer illness what Bihari would suggest, no immune

system suppressants with LDN if at all possible. I spoke to Bihari

for 90 minutes strictly on LDN and cancer. It would also be great

if the man's doctors would call Bihari. Bihari really does not like

to see anyone take any immune system suppressants if they are taking

LDN for cancers unless there is no other alternative and there are

alternative treatments for treating anemia. Bradley's husband

has MS, not cancer. Bihari stressed hard on me and my mom that he

believed that 4.5mg LDN would keep my mom breast cancer free and to

strictly avoid chemo's and other immune system suppressants. My

mom's mammograms & bloodwork 3 months ago and a bone scan today says

she's still cancer free on 4.5mg LDN with no chemo treatments. She

was dx'd aggressive breast cancer & had a lumpectomy April 2004 and

started LDN April 2004.

>

>

Re Help !

I brought my husband home after 23 days in the hospital. His ?

Hemaglobin or is it hematacrit?? is about 8.5 and platelets have

been running about 10,000, so low.

He has been on LDN for 4 days now 4.5 mg. I have been cutting down

his steroids from 60mg to now 20mg. so far the red count is holding.

Do you think if I called Dr. Bihari he would talk to me? I know he

must be busy, and his time is money. I just want to do the best I

can to help my husband.

Any info would be appreciated.

Pat

[Guest guest]

> >

> > I have Posted ocassionally to those reading here to use caution

on

> > " advice " presented online. It is important to use judgement

seperating

> > " suggestions " from facts.

> >

> > A quick search of " steroids " here revealed the post below. I

seem to

> > recall some time back other posts mentioning Dr. B supporting

steriod

> > and LDN use together. Who to believe? I suggest contacting Dr.

> > Bihari's office directly!!!

> >

> > I have been told directly by Dr. B that 4.5mg is the optimum

dose to

> > strive for. Obviously, if intolerable, some is better than none

but he

> > indicated to me (more than a year back) that he felt less than

4.5mg

> > might not slow down (or halt) progression. I don't mean to single

> > out (please do not take offense), but feel compelled to

urge

> > extreme caution when reading such definitive statements (like

the one

> > above) from anyone other than Dr. Bihari (or perhaps Dr.

Lawrence).

> >

> > Best

> > Alan

> >>

> Cancer & LDN and MS & LDN get a little different advice from

Bihari. I suggested to the person's whose husband is on his death

bed with a cancer illness what Bihari would suggest, no immune

system suppressants with LDN if at all possible. I spoke to Bihari

for 90 minutes strictly on LDN and cancer. It would also be great

if the man's doctors would call Bihari. Bihari really does not like

to see anyone take any immune system suppressants if they are taking

LDN for cancers unless there is no other alternative and there are

alternative treatments for treating anemia. Bradley's husband

has MS, not cancer. Bihari stressed hard on me and my mom that he

believed that 4.5mg LDN would keep my mom breast cancer free and to

strictly avoid chemo's and other immune system suppressants. My

mom's mammograms & bloodwork 3 months ago and a bone scan today says

she's still cancer free on 4.5mg LDN with no chemo treatments. She

was dx'd aggressive breast cancer & had a lumpectomy April 2004 and

started LDN April 2004.

>

>

Re Help !

I brought my husband home after 23 days in the hospital. His ?

Hemaglobin or is it hematacrit?? is about 8.5 and platelets have

been running about 10,000, so low.

He has been on LDN for 4 days now 4.5 mg. I have been cutting down

his steroids from 60mg to now 20mg. so far the red count is holding.

Do you think if I called Dr. Bihari he would talk to me? I know he

must be busy, and his time is money. I just want to do the best I

can to help my husband.

Any info would be appreciated.

Pat

[Guest guest]

>

> > >

> > > I have Posted ocassionally to those reading here to use caution

> on

> > > " advice " presented online. It is important to use judgement

> seperating

> > > " suggestions " from facts.

> > >

> > > A quick search of " steroids " here revealed the post below. I

> seem to

> > > recall some time back other posts mentioning Dr. B supporting

> steriod

> > > and LDN use together. Who to believe? I suggest contacting Dr.

> > > Bihari's office directly!!!

> > >

> > > I have been told directly by Dr. B that 4.5mg is the optimum

> dose to

> > > strive for. Obviously, if intolerable, some is better than none

> but he

> > > indicated to me (more than a year back) that he felt less than

> 4.5mg

> > > might not slow down (or halt) progression. I don't mean to single

> > > out (please do not take offense), but feel compelled to

> urge

> > > extreme caution when reading such definitive statements (like

> the one

> > > above) from anyone other than Dr. Bihari (or perhaps Dr.

> Lawrence).

> > >

> > > Best

> > > Alan

> > >>

> > Cancer & LDN and MS & LDN get a little different advice from

> Bihari. I suggested to the person's whose husband is on his death

> bed with a cancer illness what Bihari would suggest, no immune

> system suppressants with LDN if at all possible. I spoke to Bihari

> for 90 minutes strictly on LDN and cancer. It would also be great

> if the man's doctors would call Bihari. Bihari really does not like

> to see anyone take any immune system suppressants if they are taking

> LDN for cancers unless there is no other alternative and there are

> alternative treatments for treating anemia. Bradley's husband

> has MS, not cancer. Bihari stressed hard on me and my mom that he

> believed that 4.5mg LDN would keep my mom breast cancer free and to

> strictly avoid chemo's and other immune system suppressants. My

> mom's mammograms & bloodwork 3 months ago and a bone scan today says

> she's still cancer free on 4.5mg LDN with no chemo treatments. She

> was dx'd aggressive breast cancer & had a lumpectomy April 2004 and

> started LDN April 2004.

> >

> >

>

> Re Help !

> I brought my husband home after 23 days in the hospital. His ?

> Hemaglobin or is it hematacrit?? is about 8.5 and platelets have

> been running about 10,000, so low.

> He has been on LDN for 4 days now 4.5 mg. I have been cutting down

> his steroids from 60mg to now 20mg. so far the red count is holding.

>

> Do you think if I called Dr. Bihari he would talk to me? I know he

> must be busy, and his time is money. I just want to do the best I

> can to help my husband.

> Any info would be appreciated.

> Pat

========

Dr. Bihari would gladly speak to you. He is rather pricey but maybe with your

husband's condition Bihari might can work payments out with you. It's worth a

try anyway. Tell the person who answers the phone at Bihari's office your

husband's situation and the seriousness of it.

[Guest guest]

> Do you think if I called Dr. Bihari he would talk to me? I know he

> must be busy, and his time is money. I just want to do the best I

> can to help my husband.

> Any info would be appreciated.

> Pat

I would call Dr. Bihari. especially given the serious state of his

health and given the lack of factual source material on LDN and

steriod use. These are mostly uncharted waters and although we here

attempt to help each other as much as possible, a critical case would

best be handled (in my opinion) by the best supported information, or

info right from the horses (Dr. Bs) mouth.

Alan

[Guest guest]

Hi Pat,

Dr. Bihari is one of the nicest people and I cannot imagine that he would

not want to help you. He does charge for appointments, but maybe his

assistant will relay the question and at least let you know if he would talk

to you without an official appointment. There would be no harm in trying.

Hang in there

Aletha

[low dose naltrexone] Re: HELP need advise LDN and steriods - Caution

on " Advice "

>> Do you think if I called Dr. Bihari he would talk to me? I know he

>> must be busy, and his time is money. I just want to do the best I

>> can to help my husband.

>> Any info would be appreciated.

>> Pat

>

> I would call Dr. Bihari. especially given the serious state of his

> health and given the lack of factual source material on LDN and

> steriod use. These are mostly uncharted waters and although we here

> attempt to help each other as much as possible, a critical case would

> best be handled (in my opinion) by the best supported information, or

> info right from the horses (Dr. Bs) mouth.

>

> Alan

>

>

>

>

>

>

>

[Guest guest]

Aletha, I tried to call on Friday, it was closed. now I hear he is laid up again. I am so lost, I don't know what to do. He had to go for a transfusion on Thursday of 2 bags of red blood and one of platelets. He gets another blood test tomorrow, and I suspect he will have to have more transfusions. His appt. with his dr isn't until the 18th. He doesn't want to go back in the hospital. I am sure this whole problem started with mono complicating his leukemia, and them doing chemo while he had it.

Pat

[low dose naltrexone] Re: HELP need advise LDN and steriods - Caution on "Advice">> Do you think if I called Dr. Bihari he would talk to me? I know he>> must be busy, and his time is money. I just want to do the best I>> can to help my husband.>> Any info would be appreciated.>> Pat>> I would call Dr. Bihari. especially given the serious state of his> health and given the lack of factual source material on LDN and> steriod use. These are mostly uncharted waters and although we here> attempt to help each other as much as possible, a critical case would> best be handled (in my opinion) by the best supported information, or> info right from the horses (Dr. Bs) mouth.>> Alan>>>>>>>