Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 - I have. I have had fms (fibromyagia) for twenty years. People with fms can have muscle twitching. I used to have it sporadically. But one of the first symptoms that I was getting sicker was when instead of being sporadic, it started being continual. And I started waking up with muscle cramps in my calves all the time. Within a short period of time of this starting, I got really sick with all kinds of other symptoms. After getting the implants out, that got much better. That is because the muscle twitching is a sign of toxicity and getting the implants out lessens it. Now I only get the muscle twitching when I am toxic from detoxing. Let me explain. I say this because everytime I either take or do something that makes my immune system stronger, or take or do something that kills off candida, mycoplasma, virus, or bacteria or other unknown pathogens, the first and strongest reaction is muscle twitching. And the stronger the thing I did, the worse the twitching. And the reason has to be that when pathogens are killed off, they produce toxins in your body. Your body had to eliminate them. If your body can't eliminate them fast enough (or well enough if your detoxification pathways aren't working correctly), then you get symptoms (called a herxheimer named for the man who discovered this reaction). Once I wait a few days to give my body a chance to eliminate the toxins, the twitching is gone. But it starts up again as soon as I try detoxing again. Once you have the implants out, the toxicity will lessen considerably. In some people that is enough to stop the symptoms. For many others, it also requires detoxing. So, long story short, once your body has lessened its toxicity enough, the twitching will stop. Hugs Kathy -- In , " bluejayfauxpainter " <bluejayfauxpainter@y...> wrote: > I am a new member.joined yesterday. did anyone ever get nonstop muscle > twitches and after explant did they go away? I am so thankful and > relieved to have found this sight. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Hi I had terrible muscle twitching (vasiculations). Sometimes they were little and sometimes big. They are, for the most part, gone. GT --- bluejayfauxpainter <bluejayfauxpainter@...> wrote: > I am a new member.joined yesterday. did anyone ever > get nonstop muscle > twitches and after explant did they go away? I am > so thankful and > relieved to have found this sight. thanks > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Yes, I definitely had the muscle twitching! It was so weird. I also got the cold creepy feeling up my leg. That was even weirder. I am happy to say that all is gone after explant. It took time, but it is definitely gone. I was 7 years post explant at the end of February. I think the muscle twitching was gone within the first couple years. So glad you found us...you will find hope here for getting better from those nasty implants. Patty > I am a new member.joined yesterday. did anyone ever get nonstop muscle > twitches and after explant did they go away? I am so thankful and > relieved to have found this sight. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 I also had the muscle twitching very bad along with internal shaking or pulsating, very weird & hard to explain to someone who hasn't experienced it for themselves. I'm 8 months post explant & most days w I feel back to 100% with no symptoms & while there are still somedays I feel only 98% better healthwise, so I'm slowly but surely getting there & you will too. Jen > I am a new member.joined yesterday. did anyone ever get nonstop muscle > twitches and after explant did they go away? I am so thankful and > relieved to have found this sight. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 jen how long did you have the muscle pain that we talked about earlier, i am still having some areas where it feels like i worked out that area and it is really painful. how long did that go on with you? but you dont have fibro? i am scared that i do have it. it has been almost 1month since explant lizcnjcramer <cnjcramer@...> wrote: I also had the muscle twitching very bad along with internal shaking or pulsating, very weird & hard to explain to someone who hasn't experienced it for themselves. I'm 8 months post explant & most days w I feel back to 100% with no symptoms & while there are still somedays I feel only 98% better healthwise, so I'm slowly but surely getting there & you will too.Jen> I am a new member.joined yesterday. did anyone ever get nonstop muscle > twitches and after explant did they go away? I am so thankful and > relieved to have found this sight. thanksOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 kathy can you give me some advice about fibromyalgia? what are you using for detoxing? i am going to purchase some fungal defense and oregano oil to take. have you tried anything for fm? i have heard about alot of meds to try and use like pregabalin, guafensin which i am trying right now. then some herbal stuff like fibroma and sam-e? i am hoping that i dont have it but we will soon find out. i am still have muscle pain, but always in different areas and only in that one spot really bad but then the rest of my body will some times ache liz mikat828 <mikat828@...> wrote: -I have. I have had fms (fibromyagia) for twenty years. People with fms can have muscle twitching. I used to have it sporadically. But one of the first symptoms that I was getting sicker was when instead of being sporadic, it started being continual. And I started waking up with muscle cramps in my calves all the time. Within a short period of time of this starting, I got really sick with all kinds of other symptoms. After getting the implants out, that got much better. That is because the muscle twitching is a sign of toxicity and getting the implants out lessens it. Now I only get the muscle twitching when I am toxic from detoxing. Let me explain. I say this because everytime I either take or do something that makes my immune system stronger, or take or do something that kills off candida, mycoplasma, virus, or bacteria or other unknown pathogens, the first and strongest reaction is muscle twitching. And the stronger the thing I did, the worse the twitching. And the reason has to be that when pathogens are killed off, they produce toxins in your body. Your body had to eliminate them. If your body can't eliminate them fast enough (or well enough if your detoxification pathways aren't working correctly), then you get symptoms (called a herxheimer named for the man who discovered this reaction). Once I wait a few days to give my body a chance to eliminate the toxins, the twitching is gone. But it starts up again as soon as I try detoxing again. Once you have the implants out, the toxicity will lessen considerably. In some people that is enough to stop the symptoms. For many others, it also requires detoxing. So, long story short, once your body has lessened its toxicity enough, the twitching will stop. HugsKathy-- In , "bluejayfauxpainter" <bluejayfauxpainter@y...> wrote:> I am a new member.joined yesterday. did anyone ever get nonstop muscle > twitches and after explant did they go away? I am so thankful and > relieved to have found this sight. thanksOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)For Healing Therapies and Detox info, and to view Testimonies of Victims, and Studies of harm by implants, go to: /files/To view links to related websites on breast implants, go to: /links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 You are not alone! I too had severe muscle twitches, mostly in my calves. It did get better after explant but I do still have them, I have been explanted for a little over a year and I only had my implants 2 months. Welcome to the group, Stacie >From: Rogene S <saxony01@...> >Reply- > < >, SiliconeKids ><siliconekids > >Subject: Testimony_Pam Dowd_Kathy Nye_Carolyn Wolf_ >Keeling >Date: Sun, 1 May 2005 20:39:05 -0700 (PDT) > > >Note: forwarded message attached. ><< message5.txt >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Liz, Fungal Defense and Oil of Oregano kill of fungal/yeast organisms. . . but you will need a probiotic like Primal defense to build the good organisms back so they can keep the fungal/yeast organisms under control. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 I also had muscle twitching and was one othe main symtpoms that freaked me out toward the end of having implants. All over my legs and arms, like little pulses under the skin. Drove me batty. They were the 1st symptom to go after explant.I ithnk by day 3 or 4, they were gone, and have never came back. My neuro was very concerned with them, as she witnessed them herself. Love JUlie >From: "cnjcramer" <cnjcramer@...> >Reply- > >Subject: Re: muscle twitching >Date: Mon, 02 May 2005 23:24:23 -0000 > >I also had the muscle twitching very bad along with internal shaking >or pulsating, very weird & hard to explain to someone who hasn't >experienced it for themselves. I'm 8 months post explant & most days w >I feel back to 100% with no symptoms & while there are still somedays >I feel only 98% better healthwise, so I'm slowly but surely getting >there & you will too. > >Jen > > > > I am a new member.joined yesterday. did anyone ever get nonstop >muscle > > twitches and after explant did they go away? I am so thankful and > > relieved to have found this sight. thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Liz I have never found medications to be of much use with fms. I seem to have the best luck with stretching exercise and regular walking, detoxification, and eating right. I really felt that the liver cleanse I did helped quite a bit, as well as oil of oregano and olive leaf extract. A lady who I recently talked to said that she had really good luck with Serralone for her fms. It is made by Next Generation. Appleadayandbeyond.com sells it. I tried their Naticor but it proved to be too strong for me. This lady said it was for her also, but the Serralone made her have more energy. She said that product and colostrom probably helped her more than anything else. It also dissolves fibrin which most people with fms probably have a build up of. I just ordered some. I also just ordered a new product that has essential phospholipids in it that are very good for cellular communication and energy. I will let everyone know if I see some good results with it. It is extremely important to keep flexible and I just ordered a stretching dvd also. I belonged to a group that was for guaifenisen some time ago and many people are seeing good results with it. I however, managed to get really sick after I had been on it for about six months. To this day, I don't know if it was coincidence or if I just couldn't eliminate all the toxic buildup it was releasing. I talked to Dr.Amand's office and they didn't think guainfenisen therapy would have made me that ill and they also thought I should have shown signs of improvement by six months instead of getting steadily worse. That was before I got my implants out though. Perhaps if I was to try it again I would have a better experience. It is in the back of my mind to try again sometime in the future when I have worked my detox problems out. I really think once I get past that hump, I will improve the rest of the way fairly rapidly. Hang in there. It may take a while to hit on the right things that gets your body back to a healing mode. And you haven't been explanted very long at all. There is no predictable timeframe for when symptoms will suddenly get better. And like someone posted some time back, don't let them diagnose you with fms. If they write it in your charts, and if you have to change insurance, they might deny coverage. they did it to me. Besides, unless you are trying to get disability (which for fms you can), it is worthless to be diagnosed. there is no formal treatment. they will try to offer antidepressants (for sleep and pain), other sleep meds, pain meds etc. But if you can do with out them you will be far better off. I think that is why I was doing so well after 20 years with fms. It wasn't the fms that made me seek out this group, it was the strange symptoms I developed that got me diagnosed as " mixed connective tissue disease " . But since explant, all of my symptoms improved alot. There are alot of good ideas on this site for getting better. YOu just have to pick a place to start and go from there. Good luck Hugs kathy > > I am a new member.joined yesterday. did anyone ever get nonstop > muscle > > twitches and after explant did they go away? I am so thankful and > > relieved to have found this sight. thanks > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Can't remember who asked, but Magnesium deficiency causes muscle twitch. If taken at night it may help. Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 I went from 3 mg to 4.5 mg, and now back down to 3 mg. I do not have an MS diagnosis. I have fibromyalgia, sensory issues that seem like MS symptoms, (occasional tingling, occasional " shocking " electric sensations in extremities, and when this started one of my big toes was numb, although that resolved). To confuse matters I also have joint pain, and recently had my platelets drop dangerously low (but they went back up). I have pain in the muscles of my back that is severe, I feel like I worked out when I didn't. I had a few fasiculations before LDN, but nowhere near what they are now. The last few days they are multiple times every hour. I have been taking LDN for about 2 months I think. The twitching comes and goes, but since last week it has not gone. I didn't take LDN last night because of all the twitching yesterday but I still have lots of fasiculations today. I had all the MS tests and they were all negative. Negative for Lupus and RA. One thing I do have is high C reactive protein. It has been scary to try to figure out what is going on. The fasiculations scare me because of ALS, and because my first EMG (I've had 2)was slightly abnormal, but I try to reassure myself that the sensory issues do not go together with ALS. I don't have muscle weakness that I can tell. I have had fibromyalgia for at least 8 years, but the rest of the symptoms came on suddenly about 18 months ago after my third child and I don't understand why. Thank you for your response! K. (coincidentally, we have the same name! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 > > I went from 3 mg to 4.5 mg, and now back down to 3 mg. I do not have an > MS diagnosis. I have fibromyalgia, sensory issues that seem like MS > symptoms, (occasional tingling, occasional " shocking " electric > sensations in extremities, and when this started one of my big toes was > numb, although that resolved). To confuse matters I also have joint > pain, and recently had my platelets drop dangerously low (but they went > back up). I have pain in the muscles of my back that is severe, I feel > like I worked out when I didn't. I had a few fasiculations before LDN, > but nowhere near what they are now. The last few days they are multiple > times every hour. > > I have been taking LDN for about 2 months I think. The twitching comes > and goes, but since last week it has not gone. I didn't take LDN last > night because of all the twitching yesterday but I still have lots of > fasiculations today. > > I had all the MS tests and they were all negative. Negative for Lupus > and RA. One thing I do have is high C reactive protein. > > It has been scary to try to figure out what is going on. The > fasiculations scare me because of ALS, and because my first EMG (I've > had 2)was slightly abnormal, but I try to reassure myself that the > sensory issues do not go together with ALS. I don't have muscle > weakness that I can tell. I have had fibromyalgia for at least 8 years, > but the rest of the symptoms came on suddenly about 18 months ago after > my third child and I don't understand why. > > Thank you for your response! > > K. (coincidentally, we have the same name! > ========= All the twitching should eventually fade as your body adjusts to the endorphin spike according to Dr. Bob Lawrence who is from the UK and uses LDN himself for his MS. Have you had Lyme disease ruled out via a Western Blot, not the ELISA but the Western Blot? Type into your search engine the words Igenex Western Blot and you will learn quite a lot. All the FDA approved MS drugs will make Lyme worse, so will steroids and LDN will do nothing to help Lyme disease. If there's a small possibility you have ALS then you need to stay on the LDN. Many people have freaked out over the twitching or other weird feelings LDN has brought on and never stayed on LDN long enough to know if it was going to stop their disease progression or not. I'd much rather have LDN in my system than a CRAB drug. Quote Link to comment Share on other sites More sharing options...
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