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I have. I have had fms (fibromyagia) for twenty years. People with

fms can have muscle twitching. I used to have it sporadically. But

one of the first symptoms that I was getting sicker was when instead

of being sporadic, it started being continual. And I started waking

up with muscle cramps in my calves all the time. Within a short

period of time of this starting, I got really sick with all kinds of

other symptoms. After getting the implants out, that got much

better. That is because the muscle twitching is a sign of toxicity

and getting the implants out lessens it. Now I only get the muscle

twitching when I am toxic

from detoxing. Let me explain. I say this because everytime I

either take or do

something that makes my immune system stronger, or take or do

something that kills off candida, mycoplasma, virus, or bacteria or

other unknown pathogens, the first and strongest reaction is muscle

twitching. And the stronger the thing I did, the worse the

twitching. And the reason has to be that when pathogens are killed

off, they produce toxins in your body. Your body had to eliminate

them. If your body can't eliminate them fast enough (or well enough

if your detoxification pathways aren't working correctly), then you

get symptoms (called a herxheimer named for the man who discovered

this reaction). Once I wait a few days to give my body a chance to

eliminate the toxins, the twitching is gone. But it starts up again

as soon as I try detoxing again. Once you have the implants out,

the

toxicity will lessen considerably. In some people that is enough to

stop the symptoms. For many others, it also requires detoxing. So,

long story short, once your body has lessened its toxicity enough,

the twitching will

stop.

Hugs

Kathy

-- In , " bluejayfauxpainter "

<bluejayfauxpainter@y...> wrote:

> I am a new member.joined yesterday. did anyone ever get nonstop

muscle

> twitches and after explant did they go away? I am so thankful and

> relieved to have found this sight. thanks

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Hi

I had terrible muscle twitching (vasiculations).

Sometimes they were little and sometimes big. They

are, for the most part, gone.

GT

--- bluejayfauxpainter <bluejayfauxpainter@...>

wrote:

> I am a new member.joined yesterday. did anyone ever

> get nonstop muscle

> twitches and after explant did they go away? I am

> so thankful and

> relieved to have found this sight. thanks

>

>

>

>

__________________________________________________

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Yes, I definitely had the muscle twitching! It was so weird. I also

got the cold creepy feeling up my leg. That was even weirder.

I am happy to say that all is gone after explant. It took time, but

it is definitely gone. I was 7 years post explant at the end of

February. I think the muscle twitching was gone within the first

couple years.

So glad you found us...you will find hope here for getting better from

those nasty implants.

Patty

> I am a new member.joined yesterday. did anyone ever get nonstop

muscle

> twitches and after explant did they go away? I am so thankful and

> relieved to have found this sight. thanks

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I also had the muscle twitching very bad along with internal shaking

or pulsating, very weird & hard to explain to someone who hasn't

experienced it for themselves. I'm 8 months post explant & most days w

I feel back to 100% with no symptoms & while there are still somedays

I feel only 98% better healthwise, so I'm slowly but surely getting

there & you will too.

Jen

> I am a new member.joined yesterday. did anyone ever get nonstop

muscle

> twitches and after explant did they go away? I am so thankful and

> relieved to have found this sight. thanks

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jen

how long did you have the muscle pain that we talked about earlier, i am still having some areas where it feels like i worked out that area and it is really painful. how long did that go on with you? but you dont have fibro? i am scared that i do have it. it has been almost 1month since explant

lizcnjcramer <cnjcramer@...> wrote:

I also had the muscle twitching very bad along with internal shaking or pulsating, very weird & hard to explain to someone who hasn't experienced it for themselves. I'm 8 months post explant & most days w I feel back to 100% with no symptoms & while there are still somedays I feel only 98% better healthwise, so I'm slowly but surely getting there & you will too.Jen> I am a new member.joined yesterday. did anyone ever get nonstop muscle > twitches and after explant did they go away? I am so thankful and > relieved to have found this sight. thanksOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your

physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

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kathy

can you give me some advice about fibromyalgia? what are you using for detoxing? i am going to purchase some fungal defense and oregano oil to take. have you tried anything for fm? i have heard about alot of meds to try and use like pregabalin, guafensin which i am trying right now. then some herbal stuff like fibroma and sam-e? i am hoping that i dont have it but we will soon find out. i am still have muscle pain, but always in different areas and only in that one spot really bad but then the rest of my body will some times ache

liz

mikat828 <mikat828@...> wrote:

-I have. I have had fms (fibromyagia) for twenty years. People with fms can have muscle twitching. I used to have it sporadically. But one of the first symptoms that I was getting sicker was when instead of being sporadic, it started being continual. And I started waking up with muscle cramps in my calves all the time. Within a short period of time of this starting, I got really sick with all kinds of other symptoms. After getting the implants out, that got much better. That is because the muscle twitching is a sign of toxicity and getting the implants out lessens it. Now I only get the muscle twitching when I am toxic from detoxing. Let me explain. I say this because everytime I either take or do something that makes my immune system stronger, or take or do something that

kills off candida, mycoplasma, virus, or bacteria or other unknown pathogens, the first and strongest reaction is muscle twitching. And the stronger the thing I did, the worse the twitching. And the reason has to be that when pathogens are killed off, they produce toxins in your body. Your body had to eliminate them. If your body can't eliminate them fast enough (or well enough if your detoxification pathways aren't working correctly), then you get symptoms (called a herxheimer named for the man who discovered this reaction). Once I wait a few days to give my body a chance to eliminate the toxins, the twitching is gone. But it starts up again as soon as I try detoxing again. Once you have the implants out, the toxicity will lessen considerably. In some people that is enough to stop the symptoms. For many others, it also requires detoxing. So, long story short, once

your body has lessened its toxicity enough, the twitching will stop. HugsKathy-- In , "bluejayfauxpainter" <bluejayfauxpainter@y...> wrote:> I am a new member.joined yesterday. did anyone ever get nonstop muscle > twitches and after explant did they go away? I am so thankful and > relieved to have found this sight. thanksOpinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)For Healing

Therapies and Detox info, and to view Testimonies of Victims, and Studies of harm by implants, go to: /files/To view links to related websites on breast implants, go to: /links

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Guest guest

You are not alone! I too had severe muscle twitches, mostly in my calves.

It did get better after explant but I do still have them, I have been

explanted for a little over a year and I only had my implants 2 months.

Welcome to the group,

Stacie

>From: Rogene S <saxony01@...>

>Reply-

> < >, SiliconeKids

><siliconekids >

>Subject: Testimony_Pam Dowd_Kathy Nye_Carolyn Wolf_

>Keeling

>Date: Sun, 1 May 2005 20:39:05 -0700 (PDT)

>

>

>Note: forwarded message attached.

><< message5.txt >>

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Liz,

Fungal Defense and Oil of Oregano kill of fungal/yeast

organisms. . . but you will need a probiotic like

Primal defense to build the good organisms back so

they can keep the fungal/yeast organisms under

control.

Hugs,

Rogene

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I also had muscle twitching and was one othe main symtpoms that freaked me out toward the end of having implants. All over my legs and arms, like little pulses under the skin. Drove me batty. They were the 1st symptom to go after explant.I ithnk by day 3 or 4, they were gone, and have never came back. My neuro was very concerned with them, as she witnessed them herself. Love JUlie

>From: "cnjcramer" <cnjcramer@...> >Reply- > >Subject: Re: muscle twitching >Date: Mon, 02 May 2005 23:24:23 -0000 > >I also had the muscle twitching very bad along with internal shaking >or pulsating, very weird & hard to explain to someone who hasn't >experienced it for themselves. I'm 8 months post explant & most days w >I feel back to 100% with no symptoms & while there are still somedays >I feel only 98% better healthwise, so I'm slowly but surely getting >there & you will too. > >Jen > > > > I am a new member.joined yesterday. did anyone ever get nonstop >muscle > > twitches and after explant did they go away? I am so thankful and > > relieved to have found this sight. thanks > > > > > >

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Liz

I have never found medications to be of much use with fms. I seem

to have the best luck with stretching exercise and regular walking,

detoxification, and eating right. I really felt that the liver

cleanse I did helped quite a bit, as well as oil of oregano and

olive leaf extract. A lady who I recently talked to said that she

had really good luck with Serralone for her fms. It is made by Next

Generation. Appleadayandbeyond.com sells it. I tried their Naticor

but it proved to be too strong for me. This lady said it was for

her also, but the Serralone made her have more energy. She said that

product and colostrom probably helped her more than anything else.

It also dissolves fibrin which most people with fms probably have a

build up of. I just ordered some. I also just ordered a new

product that has essential phospholipids in it that are very good

for cellular communication and energy. I will let everyone know if

I see some good results with it. It is extremely important to keep

flexible and I just ordered a stretching dvd also. I belonged to a

group that was for guaifenisen some time ago and many people are

seeing good results with it. I however, managed to get really sick

after I had been on it for about six months. To this day, I don't

know if it was coincidence or if I just couldn't eliminate all the

toxic buildup it was releasing. I talked to Dr.Amand's office and

they didn't think guainfenisen therapy would have made me that ill

and they also thought I should have shown signs of improvement by

six months instead of getting steadily worse. That was before I got

my implants out though. Perhaps if I was to try it again I would

have a better experience. It is in the back of my mind to try again

sometime in the future when I have worked my detox problems out. I

really think once I get past that hump, I will improve the rest of

the way fairly rapidly. Hang in there. It may take a while to hit

on the right things that gets your body back to a healing mode. And

you haven't been explanted very long at all. There is no

predictable timeframe for when symptoms will suddenly get better.

And like someone posted some time back, don't let them diagnose you

with fms. If they write it in your charts, and

if you have to change insurance, they might deny coverage. they did

it to me. Besides, unless you are trying to get disability (which

for fms you can), it is worthless to be diagnosed. there is no

formal treatment. they will try to offer antidepressants (for sleep

and pain), other sleep meds, pain meds etc. But if you can do with

out them you will be far better off. I think that is why I was

doing so well after 20 years with fms. It wasn't the fms that made

me seek out this group, it was the strange symptoms I developed that

got me diagnosed as " mixed connective tissue disease " . But since

explant, all of my symptoms improved alot. There are alot of good

ideas on this site for getting better. YOu just have to pick a

place to start and go from there. Good luck

Hugs

kathy

> > I am a new member.joined yesterday. did anyone ever get nonstop

> muscle

> > twitches and after explant did they go away? I am so thankful

and

> > relieved to have found this sight. thanks

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own

decisions about how to live a happy life and how to work for a

better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)

>

>

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  • 4 months later...
  • 1 month later...

I went from 3 mg to 4.5 mg, and now back down to 3 mg. I do not have an

MS diagnosis. I have fibromyalgia, sensory issues that seem like MS

symptoms, (occasional tingling, occasional " shocking " electric

sensations in extremities, and when this started one of my big toes was

numb, although that resolved). To confuse matters I also have joint

pain, and recently had my platelets drop dangerously low (but they went

back up). I have pain in the muscles of my back that is severe, I feel

like I worked out when I didn't. I had a few fasiculations before LDN,

but nowhere near what they are now. The last few days they are multiple

times every hour.

I have been taking LDN for about 2 months I think. The twitching comes

and goes, but since last week it has not gone. I didn't take LDN last

night because of all the twitching yesterday but I still have lots of

fasiculations today.

I had all the MS tests and they were all negative. Negative for Lupus

and RA. One thing I do have is high C reactive protein.

It has been scary to try to figure out what is going on. The

fasiculations scare me because of ALS, and because my first EMG (I've

had 2)was slightly abnormal, but I try to reassure myself that the

sensory issues do not go together with ALS. I don't have muscle

weakness that I can tell. I have had fibromyalgia for at least 8 years,

but the rest of the symptoms came on suddenly about 18 months ago after

my third child and I don't understand why.

Thank you for your response!

K. (coincidentally, we have the same name! :)

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>

> I went from 3 mg to 4.5 mg, and now back down to 3 mg. I do not have an

> MS diagnosis. I have fibromyalgia, sensory issues that seem like MS

> symptoms, (occasional tingling, occasional " shocking " electric

> sensations in extremities, and when this started one of my big toes was

> numb, although that resolved). To confuse matters I also have joint

> pain, and recently had my platelets drop dangerously low (but they went

> back up). I have pain in the muscles of my back that is severe, I feel

> like I worked out when I didn't. I had a few fasiculations before LDN,

> but nowhere near what they are now. The last few days they are multiple

> times every hour.

>

> I have been taking LDN for about 2 months I think. The twitching comes

> and goes, but since last week it has not gone. I didn't take LDN last

> night because of all the twitching yesterday but I still have lots of

> fasiculations today.

>

> I had all the MS tests and they were all negative. Negative for Lupus

> and RA. One thing I do have is high C reactive protein.

>

> It has been scary to try to figure out what is going on. The

> fasiculations scare me because of ALS, and because my first EMG (I've

> had 2)was slightly abnormal, but I try to reassure myself that the

> sensory issues do not go together with ALS. I don't have muscle

> weakness that I can tell. I have had fibromyalgia for at least 8 years,

> but the rest of the symptoms came on suddenly about 18 months ago after

> my third child and I don't understand why.

>

> Thank you for your response!

>

> K. (coincidentally, we have the same name! :)

>

=========

All the twitching should eventually fade as your body adjusts to the endorphin

spike according to Dr. Bob Lawrence who is from the UK and uses LDN himself for

his MS. Have you had Lyme disease ruled out via a Western Blot, not the ELISA

but the Western Blot? Type into your search engine the words Igenex Western

Blot and you will learn quite a lot. All the FDA approved MS drugs will make

Lyme worse, so will steroids and LDN will do nothing to help Lyme disease. If

there's a small possibility you have ALS then you need to stay on the LDN. Many

people have freaked out over the twitching or other weird feelings LDN has

brought on and never stayed on LDN long enough to know if it was going to stop

their disease progression or not. I'd much rather have LDN in my system than a

CRAB drug.

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