Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 > Hi Everyone, > > I've been taking LDN for a couple weeks now and I definitely have more energy. My > condition is candida. > > My mother is suffering with fibromyalgia and she has also been on LDN for a couple > weeks. We both started at 3.0 mg nightly and worked our way up to 4.5 mg at 0.5 mg > increments. Mom has more energy, but her fibromyalgia pain is not much better. She > takes several medications for pain, sleeping and osteoarthritis and I'm wondering if > anyone knows of any conflicts with LDN. She takes: > > advil (lately often) for fibromyalgia pain > imipramime (muscle relaxant) 2 x 25 mg each night > zopiclone (for sleeping) 3.75 mg each night > fosamax (for osteoarthritis) 70 mg once per week > > Would be wonderful to hear from any of you with experience or insights about this. > > Thank you kindly, > > Tim ========= If your mom does not have high blood pressure then get at healthfood store or off internet Solaray brand DL-Phenylalanine 500mg and take 3 times per day. Do NOT get the D-Phenylalanine or the L-Phenylalanine...GET THE COMBO DL-Phenylalanine 500mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 LDN is not for Candida though it may give you more energy. You need major probiotics ie. acidophylis, oliveleaf extract(d-lenolate) stuff like that. Are you taking these also? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 EXACTLY MY THOUGHTS. ldn COULD ACTUALLY CONTRIBUTE TO CANDIDA. THERE IS CANDIDA CLEANSE BY BRENDA WATKINS. THE WILLIAMS CROOK'S HANDBOOK FOR CANDIDA (HE HAS WRITTEN 3 I BELIEVE) CAPRIYLIC ACID, OLIVE LEAF, OIL OF OREGANO, AND DIETARY RESTRICTIONS. COLONICS ARE GOOD AND SCRAPING YOUR TONGUE. NO WHEAT, DAIRY, SUGAR, BIRTH CONTROL PILLS, MEDS, ETC. THE BOOK IS A WEALTH OF INFORMATION. YOU CAN'T LIVE IN A BUBBLE BUT IF YOU DO MOST OF THE THINGS HE RECOMMENDS, YOU WILL BE WELL ON YOUR WAY TO BETTER HEALTH. BEST WISHES, KATHY Re: [low dose naltrexone] LDN & fibromyalgia LDN is not for Candida though it may give you more energy. You need major probiotics ie. acidophylis, oliveleaf extract(d-lenolate) stuff like that. Are you taking these also? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 did you check your thyroid.dr hotze says 90 procents of fibromyalgia is thyroid problem http://www.hotzehwc.com/en/cms/?1675 > > Is there anyone in this support group that is taking LDN 3mgs for > fibromyalgia or Myofascial Pain syndrome? I am taking it for this now > for 21 days and have some issues. It is hard to compare mine with what > others are experiencing for MS, Crohns, etc. thanks, Elaine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 Dear Elaine, I have just finished my 6th week on LDN, taking 4.5 mg., primarily for fibromyalgia, but I seem to have a few other autoimmune disorders as well. The problem with fibro is, at least in my experience, once you get that diagnosis, just about no matter what complaints you bring to your doc the response tends to be, " That's your fibromyalgia. " Everything gets blamed on it, and there seems to be a disinclination to investigate other possibilities, such as those brought up here by other members. We get weary with being our own advocates! Please feel free to email me privately if you want to discuss some issues. Konnie > > Is there anyone in this support group that is taking LDN 3mgs for > fibromyalgia or Myofascial Pain syndrome? I am taking it for this now > for 21 days and have some issues. It is hard to compare mine with what > others are experiencing for MS, Crohns, etc. thanks, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 Hi ann, Are you talking about the Stanford study? I wrote to someone involved with that, and she told me that no report will be published for perhaps two years after it is finished. The results have to be evaluated, the report has to be peer-reviewed, etc, etc. That's just the way things work in the academic world. No rushing it, nothing we can do about it, sad to say. Konnie > > Hi Elaine, > > I am here because I am trying to learn about LDN. I have fibromyalgia and arthritis. Supposedly there is a study that was or is being conducted on using LDN for fibro/CFS. I think the results will be important but I don't think they are out yet. > > Thyroid support is important and do check that out. Zahavi responded to you with info about Dr. Hotze and his theory about fibromyalgia. The problem is that once you have it thyroid support is helpful but not curative. I'm certain that if I had been treated for my thyroid problems I might not have developed fibro quite so early. I also think that I should have been treated for hypoglycemia after the birth of my first child. Try to find a doc who will treat your symptoms and not dose using the TSH. Get free T3 and Free T4 blood tests and ask to be dosed until those are in the high range. > > Hang in there and let us know how you do. > > ann > > [low dose naltrexone] LDN & fibromyalgia > > > Is there anyone in this support group that is taking LDN 3mgs for > fibromyalgia or Myofascial Pain syndrome? I am taking it for this now > for 21 days and have some issues. It is hard to compare mine with what > others are experiencing for MS, Crohns, etc. thanks, Elaine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 I have scleroderma, fibromyalgia, and sjrogren’s. I began taking ldn in September of 06, when my son started taking it for MS. Within a few days I felt like a whole new person. At the time I started taking it, I was feeling at the end of my rope with pain, and lack of energy to make it through a work day. I had torn two disks and had a bulging dist from an injury in May of that year which did not help my pain levels. I was taking cortisone to get through the day with pain. My balance was bad, and I was not walking straight to make up for the back injury. At the time I wrote a list a page long of symptoms that improved. I need to find that list again and publish it. But I can tell you two things: I felt like my body was working correctly for the first time in a long time, and I felt like I had my life back. My son told me the same thing, I talk to many people about ldn. I have a friend that started taking it a year ago for ankylosing spondolosis. She asked her doctor for script and he said no, so she went to my doctor for it. A few weeks later she called me and told me that her doctor’s wife, his office manager, called her and told her that her doctor was taking the medication himself and prescribing it. We don’t know what he had that he is taking it himself, but he is a fibro specialist and he is now prescribing it. Turns out that his wife goes to my doctor and they socialize together so they must have been talking about it. My doctor calls me the “alternative lady” but I think he was impresses with how I felt on the medication. I had lumps in my buttock muscles that I believe was part of the Myofacial Pain Syndrome. They were very sensitive and if anyone touched them I would jump. Within a week they were gone when going on ldn. My husband would give me massages and he was feeling for the lumps, and pushing on my lower back and could not believe I was not jumping out of my skin. I can say that almost two years later I am a new person. I think we forget pretty quickly the bad stuff, but I can’t tell you how many times I say to myself that there would have been no way two years ago I would have felt so good after having a really long difficult day of work, or entertaining my family. If you want to email me privately you can feel free to. Conni Quote Link to comment Share on other sites More sharing options...
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