Re MS Australia Research - for your info ... copy of an email despatched today to MS Australia Research Office in support of an LDN clinical trial.

[Guest guest]

for your info ... copy of an email despatched today to MS Australia Research Office in support of an LDN clinical trial.

Regards,

Cris

Sue Barham Medical Research Advisory BoardMultiple Sclerosis Research OfficeDepartment of NeurologySir Gairdner HospitalNedlands, WA 6009

Dear Sue,

Re MS Research Applied research is service-based, investigating ways to improve quality of management of MS in physical, cognitive and psycho-social domains

My name is Cris Kerr and I've been administering the 'Case Health - Health Success Stories' website for the past four years. The website provides a free community service; facilitating the collection and sharing of health success stories.

Through the website I became aware of a drug responsible for improving the quality of life of many MS sufferers. The drug is Naltrexone and there is a growing body of compelling anecdotal evidence (health success stories) of its efficacy.

Dr Bihari, a long advocate and prescriber of Naltrexone has alleviated the symptoms and/or progression of MS sufferers by prescribing Low Dose Naltrexone (LDN). Word is spreading and a conference dedicated to LDN was recently held in New York (http://www.ldninfo.org/). It should be noted Dr Bihari is now only one of a growing number of physicians who are prescribing Naltrexone for MS.

MS sufferers whose symptoms have been alleviated with LDN therapy are very dedicated to spreading the word and are striving to help fellow MS sufferers (low dose naltrexone/) via information-sharing, emotional support, and promoting clinical trial fund-raising.

In addition there's inference LDN may have application for a broader range of diseases.

As MS Australia would be aware, Naltrexone is yet to achieve acceptance as a mainstream treatment option due to absence of clinical trial data. A fund-raising appeal followed the LDN Conference for the purpose of raising sufficient funds for a clinical trial, however; the fund is struggling ... hence my email and enquiry.

Has MS Australia initiated an LDN clinical trial? If not, what criteria must be met prior to initiation?

Sincerely,

Cris Kerr

Cris KerrAdministratorCase Health - Health Success StoriesURL: www.casehealth.com.au & www.casehealth.comWebsite Email: Online formatAustralia

About Case Health ... 'Case Health - Health Success Stories' is a non-income-earning community website providing a free health information-sharing service based on visitor's anecdotal stories of health success. The online database also contains a selection of successful research results. Any visitor can submit their own non-identifying health success story, or; search the database for other health success stories of WHAT WORKS then discuss this information with their doctor. Free searches by condition, symptom, or treatment. Don't have time to enter a story via the online submission form? Submit via the email contact form. We'll do the rest. We can also notify you of new stories. Case Health is a safe surfing site and does not ... sell anything, generate SPAM, spy, or conduct any other intrusions.

HONcode accredited website.

[Guest guest]

Good luck with this letter Chris. The NSW MS Society is very well

aware of LDN as I have been to board level meetings raising the

subject. Until there is a clinical trial, they will not discuss the

issue. All attempts to get them interested in a clinical trial have

failed. If someone will organise and fund a trial, they will listen

to the results. In Australia, there is a set and strict routine laid

out by the TGA on how a trial will be conducted. I have been down

the road with members of parliament and have come up empty handed. I

wish you luck where I have failed.

Hennry.

-- In low dose naltrexone , " Case Health Pty Ltd "

<casehealth@o...> wrote:

> for your info ... copy of an email despatched today to MS Australia

Research Office in support of an LDN clinical trial.

> Regards,

> Cris

>

>

> --------------------------------------------------------------------

------------

>

>

> Sue Barham

> Medical Research Advisory Board

> Multiple Sclerosis Research Office

> Department of Neurology

> Sir Gairdner Hospital

> Nedlands, WA 6009

>

>

> Dear Sue,

>

> Re MS Research Applied research is service-based, investigating

ways to improve quality of management of MS in physical, cognitive

and psycho-social domains

>

> My name is Cris Kerr and I've been administering the 'Case Health -

Health Success Stories' website for the past four years. The website

provides a free community service; facilitating the collection and

sharing of health success stories.

>

> Through the website I became aware of a drug responsible for

improving the quality of life of many MS sufferers. The drug is

Naltrexone and there is a growing body of compelling anecdotal

evidence (health success stories) of its efficacy.

>

> Dr Bihari, a long advocate and prescriber of Naltrexone has

alleviated the symptoms and/or progression of MS sufferers by

prescribing Low Dose Naltrexone (LDN). Word is spreading and a

conference dedicated to LDN was recently held in New York

(http://www.ldninfo.org/). It should be noted Dr Bihari is now only

one of a growing number of physicians who are prescribing Naltrexone

for MS.

>

> MS sufferers whose symptoms have been alleviated with LDN therapy

are very dedicated to spreading the word and are striving to help

fellow MS sufferers

(low dose naltrexone/) via

information-sharing, emotional support, and promoting clinical trial

fund-raising.

>

> In addition there's inference LDN may have application for a

broader range of diseases.

>

> As MS Australia would be aware, Naltrexone is yet to achieve

acceptance as a mainstream treatment option due to absence of

clinical trial data. A fund-raising appeal followed the LDN

Conference for the purpose of raising sufficient funds for a clinical

trial, however; the fund is struggling ... hence my email and enquiry.

>

> Has MS Australia initiated an LDN clinical trial? If not, what

criteria must be met prior to initiation?

>

> Sincerely,

> Cris Kerr

>

> Cris Kerr

> Administrator

> Case Health - Health Success Stories

> URL: www.casehealth.com.au & www.casehealth.com

> Website Email: Online format

> Australia

>

> About Case Health ...

>

> 'Case Health - Health Success Stories' is a non-income-earning

community website providing a free health information-sharing service

based on visitor's anecdotal stories of health success. The online

database also contains a selection of successful research results.

>

> Any visitor can submit their own non-identifying health success

story, or; search the database for other health success stories of

WHAT WORKS then discuss this information with their doctor. Free

searches by condition, symptom, or treatment. Don't have time to

enter a story via the online submission form? Submit via the email

contact form. We'll do the rest. We can also notify you of new

stories. Case Health is a safe surfing site and does not ... sell

anything, generate SPAM, spy, or conduct any other intrusions.

>

> HONcode accredited website.

[Guest guest]

Thanks Hennry.

No acknowledgement or response yet but it's early days and I will follow-up if a response is not forthcoming.

I've copied the content of my email to other parties to help build awareness.

I'm thinking MS Australia or any of the state MS societies should be the organisation/s to sponsor and fund (if not a specialist organisation dedicated to helping MS sufferers, then who?) but I'm new to this so I'd welcome your experience/views.

Do you have any documents related to your extended quest? If so, I'd be interested in seeing them.

Cris

[low dose naltrexone] Re: Re MS Australia Research - for your info ... copy of an email despatched today to MS Australia Research Office in support of an LDN clinical trial.

Good luck with this letter Chris. The NSW MS Society is very well aware of LDN as I have been to board level meetings raising the subject. Until there is a clinical trial, they will not discuss the issue. All attempts to get them interested in a clinical trial have failed. If someone will organise and fund a trial, they will listen to the results. In Australia, there is a set and strict routine laid out by the TGA on how a trial will be conducted. I have been down the road with members of parliament and have come up empty handed. I wish you luck where I have failed.Hennry.-- In low dose naltrexone , "Case Health Pty Ltd" <casehealth@o...> wrote:> for your info ... copy of an email despatched today to MS Australia Research Office in support of an LDN clinical trial.> Regards,> Cris> > > --------------------------------------------------------------------------------> > > Sue Barham > Medical Research Advisory Board> Multiple Sclerosis Research Office> Department of Neurology> Sir Gairdner Hospital> Nedlands, WA 6009 > > > Dear Sue,> > Re MS Research Applied research is service-based, investigating ways to improve quality of management of MS in physical, cognitive and psycho-social domains> > My name is Cris Kerr and I've been administering the 'Case Health - Health Success Stories' website for the past four years. The website provides a free community service; facilitating the collection and sharing of health success stories.> > Through the website I became aware of a drug responsible for improving the quality of life of many MS sufferers. The drug is Naltrexone and there is a growing body of compelling anecdotal evidence (health success stories) of its efficacy. > > Dr Bihari, a long advocate and prescriber of Naltrexone has alleviated the symptoms and/or progression of MS sufferers by prescribing Low Dose Naltrexone (LDN). Word is spreading and a conference dedicated to LDN was recently held in New York (http://www.ldninfo.org/). It should be noted Dr Bihari is now only one of a growing number of physicians who are prescribing Naltrexone for MS.> > MS sufferers whose symptoms have been alleviated with LDN therapy are very dedicated to spreading the word and are striving to help fellow MS sufferers (low dose naltrexone/) via information-sharing, emotional support, and promoting clinical trial fund-raising.> > In addition there's inference LDN may have application for a broader range of diseases.> > As MS Australia would be aware, Naltrexone is yet to achieve acceptance as a mainstream treatment option due to absence of clinical trial data. A fund-raising appeal followed the LDN Conference for the purpose of raising sufficient funds for a clinical trial, however; the fund is struggling ... hence my email and enquiry.> > Has MS Australia initiated an LDN clinical trial? If not, what criteria must be met prior to initiation?> > Sincerely,> Cris Kerr> > Cris Kerr> Administrator> Case Health - Health Success Stories> URL: www.casehealth.com.au & www.casehealth.com> Website Email: Online format> Australia> > About Case Health ...> > 'Case Health - Health Success Stories' is a non-income-earning community website providing a free health information-sharing service based on visitor's anecdotal stories of health success. The online database also contains a selection of successful research results.> > Any visitor can submit their own non-identifying health success story, or; search the database for other health success stories of WHAT WORKS then discuss this information with their doctor. Free searches by condition, symptom, or treatment. Don't have time to enter a story via the online submission form? Submit via the email contact form. We'll do the rest. We can also notify you of new stories. Case Health is a safe surfing site and does not ... sell anything, generate SPAM, spy, or conduct any other intrusions.> > HONcode accredited website.

[Guest guest]

PS I've also emailed the Therapeutic Goods Administration (TGA) - see copy below - to obtain info on procedures for initiating clinical trials.(For group members outside Australia, the TGA is Australia's regulatory agency for medical drugs and devices.)

[low dose naltrexone] Re: Re MS Australia Research - for your info ... copy of an email despatched today to MS Australia Research Office in support of an LDN clinical trial.

Good luck with this letter Chris. The NSW MS Society is very well aware of LDN as I have been to board level meetings raising the subject. Until there is a clinical trial, they will not discuss the issue. All attempts to get them interested in a clinical trial have failed. If someone will organise and fund a trial, they will listen to the results. In Australia, there is a set and strict routine laid out by the TGA on how a trial will be conducted. I have been down the road with members of parliament and have come up empty handed. I wish you luck where I have failed.Hennry.-- In low dose naltrexone , "Case Health Pty Ltd" <casehealth@o...> wrote:> for your info ... copy of an email despatched today to MS Australia Research Office in support of an LDN clinical trial.> Regards,> Cris> > > --------------------------------------------------------------------------------> > > Sue Barham > Medical Research Advisory Board> Multiple Sclerosis Research Office> Department of Neurology> Sir Gairdner Hospital> Nedlands, WA 6009 > > > Dear Sue,> > Re MS Research Applied research is service-based, investigating ways to improve quality of management of MS in physical, cognitive and psycho-social domains> > My name is Cris Kerr and I've been administering the 'Case Health - Health Success Stories' website for the past four years. The website provides a free community service; facilitating the collection and sharing of health success stories.> > Through the website I became aware of a drug responsible for improving the quality of life of many MS sufferers. The drug is Naltrexone and there is a growing body of compelling anecdotal evidence (health success stories) of its efficacy. > > Dr Bihari, a long advocate and prescriber of Naltrexone has alleviated the symptoms and/or progression of MS sufferers by prescribing Low Dose Naltrexone (LDN). Word is spreading and a conference dedicated to LDN was recently held in New York (http://www.ldninfo.org/). It should be noted Dr Bihari is now only one of a growing number of physicians who are prescribing Naltrexone for MS.> > MS sufferers whose symptoms have been alleviated with LDN therapy are very dedicated to spreading the word and are striving to help fellow MS sufferers (low dose naltrexone/) via information-sharing, emotional support, and promoting clinical trial fund-raising.> > In addition there's inference LDN may have application for a broader range of diseases.> > As MS Australia would be aware, Naltrexone is yet to achieve acceptance as a mainstream treatment option due to absence of clinical trial data. A fund-raising appeal followed the LDN Conference for the purpose of raising sufficient funds for a clinical trial, however; the fund is struggling ... hence my email and enquiry.> > Has MS Australia initiated an LDN clinical trial? If not, what criteria must be met prior to initiation?> > Sincerely,> Cris Kerr> > Cris Kerr> Administrator> Case Health - Health Success Stories> URL: www.casehealth.com.au & www.casehealth.com> Website Email: Online format> Australia> > About Case Health ...> > 'Case Health - Health Success Stories' is a non-income-earning community website providing a free health information-sharing service based on visitor's anecdotal stories of health success. The online database also contains a selection of successful research results.> > Any visitor can submit their own non-identifying health success story, or; search the database for other health success stories of WHAT WORKS then discuss this information with their doctor. Free searches by condition, symptom, or treatment. Don't have time to enter a story via the online submission form? Submit via the email contact form. We'll do the rest. We can also notify you of new stories. Case Health is a safe surfing site and does not ... sell anything, generate SPAM, spy, or conduct any other intrusions.> > HONcode accredited website.